NBC prostate show and misinformation

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smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 7/30/2008 12:13 PM (GMT -6)   
I saw an interview on MSNNBC this morning and I had to SCREAM at the TV and George Lewis when he repeated that men over 50 should get their PSA checked. It show how little some people in the media learn from being affected. Most know and will tell you men over 40 need to start checking their PSA. We need to call everyone media outlet we know and inform them of this misinformation.
 
Richard
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Jan & Feb & Mar all tests clear
MD Anderson = No surgery and No Proton only Hormone and IMRT
Contacted with Loma Linda and UFPTI in FL
Started Treatment at the U of Florida Proton Therapy Institute in April 2008
May 2, 2008 LUPRON & Casodex
IMRT to started  5/27/2008 Will get 42 treatments 25 IMRT and then 17 Proton
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/30/2008 1:35 PM (GMT -6)   
Well said, Selmer,
I heard the insurance industry has a say in this as well. Just for curiosity I looked up the cost of a PSA test ~ $71.00. Wow! seventy-one bucks to know. Total cost for annual PSA's from 40 to 50 is under a grand. Now I have to have them bi-monthly, with Lupron shots, RO followups, and everything else. It would have cost the insurance company a lot less to have found this while it was still contained in the prostate. It's probably cost them a quarter million by now.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 7/30/2008 5:42 PM (GMT -6)   
I'm surprised the AMA hasn't changed it from 50 to 40 yet.

That's the change that would be really effective.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
Quarterly PSA tests to start and
another biopsy next April
 
 


Guy66
Regular Member


Date Joined Jul 2008
Total Posts : 32
   Posted 7/30/2008 6:26 PM (GMT -6)   
It is interesting that the medical community stresses testing for a variety of cancers, protate and colon being examples, at age 50. I know that demographics indicate that incidence rates for many, if not most, cancers increase with age. A factor often overlooked, however, is that cancer that occurs in younger men is often more aggressive. As we age, many of our biological functions slow down, but younger men, in their early forties perhaps, might have even more to gain from earlier detection. And as we all know, the earlier cancer is detected, the better.
Guy 66
first biopsy was in 1997. Neg. Dx BPH PSA 5.4
second biopsy in 2001 neg again PSA 9.8
passed blood Feb 08 3rd biopsy positive PSA 14.6 Gleason (3+3)=6
Pre op Xrays, CT scans, bone scans all neg
Da Vinci surgery 3/3/08 no complications, nodes clear
Significant post op discomfort for approx one week
Daily improvement 2nd week, near nornal mobility, etc 4th week
Filled pads every 2 hours for first month, gradually improved to not wearing pads after 2 months. Whoopee!
Occasional small leak when sneezing or farting, haha
Total loss of erectile function so far, some loss of rectal muscle function also.
Currently back to 100% physically, working out, etc.
Some lingering attitude issues over lack of function. Anger sometimes, moderate depression sometimes. Feel good physically but lingering changes in emotions. Joi da vie not the same. Feel lucky overall, but emotionally flat. A vague sense of loss, diminished pleasure in life. Hope to rebound as time goes by. Survived melanoma in 2000, pacemaker in 2002. Three time winner? Doesn't feel that way.


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4835
   Posted 7/31/2008 9:48 AM (GMT -6)   
And in the for what its worth catagory - NBC Evening news did a segment with George Lewis...Good old George suggested men 45 to 50 should get tested.
Age 53   - 5'11'   205lbs
Overall Heath Condition - Good
PSA - July 07 & Jan 08 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy


Guy66
Regular Member


Date Joined Jul 2008
Total Posts : 32
   Posted 7/31/2008 9:54 AM (GMT -6)   
Conflicting studiess seem to be the rule. Now they are saying women should not do self exams of their breasts because it leads to unnecessary testing and biopsies. We have a 36 yr old niece who just found her own lump and it turned out to be a fast growing high grade tumor. She was very lucky that her nodes are clear but she is now undergoing chemo to shrink the tumor before surgery. I would prefer that my family and loved ones be their own advocates and get tested early. I recently encouraged my 40 year old son to get his first PSA. I don't care what some of these studies say. The problem is they may be accurate about a large group of people, but they don't mean caca with respect to any given individual. I am an advocate for early testing for anyone who wants it, especially when there is a family history. And how many families don't have a history of some type of cancer? I was volunteer of the year at Moffit Cancer Center in Tampa a few years back and my forte was consuling new patients, mostly advanced stage melanoma, but also a variety including prostate and even breast. Imagine the irony of me having a negative biopsy with a PSA over 10 consuling a patient with prostate cancer and a PSA of 4.5 prior to surgery. One of my first lessons in dealing with cancer was to place less importance on statistics based on large groups, and fucusing instead on the fact that every individual is unique, and even some of the most advanced patients will somehow pull through. I also learned, over and over again, the value of early detection. So I am a very vocal advocate of early and routine testing (especially relatively low cost non invasive testing like PSA).
Guy 66
first biopsy was in 1997. Neg. Dx BPH PSA 5.4
second biopsy in 2001 neg again PSA 9.8
passed blood Feb 08 3rd biopsy positive PSA 14.6 Gleason (3+3)=6
Pre op Xrays, CT scans, bone scans all neg
Da Vinci surgery 3/3/08 no complications, nodes clear
Significant post op discomfort for approx one week
Daily improvement 2nd week, near nornal mobility, etc 4th week
Filled pads every 2 hours for first month, gradually improved to not wearing pads after 2 months. Whoopee!
Occasional small leak when sneezing or farting, haha
Total loss of erectile function so far, some loss of rectal muscle function also.
Currently back to 100% physically, working out, etc.
Some lingering attitude issues over lack of function. Anger sometimes, moderate depression sometimes. Feel good physically but lingering changes in emotions. Joi da vie not the same. Feel lucky overall, but emotionally flat. A vague sense of loss, diminished pleasure in life. Hope to rebound as time goes by. Survived melanoma in 2000, pacemaker in 2002. Three time winner? Doesn't feel that way.


Guy66
Regular Member


Date Joined Jul 2008
Total Posts : 32
   Posted 7/31/2008 1:57 PM (GMT -6)   
Demograhpic studies comparing the incidence rates of various cancers are very interesting. For example, low red meat consumption and a high vegetarian low fat diet in some Asian countries resulted in low rates of heart disease, colon and prostate cancers. The odd trade off was a high rate of throat and stomach cancers suspected to be caused by common natural carcinogins found in plants. Go figure. As for my son, he is a Firefighter/Paramedic who eats healthy and works out vigorously. I personally believe most cancers are the result of a combination of genes, environmental exposures, diet and lifestyle (including drinking or smoking). I also believe that there is an element of random chance, where an individual does all the right things, has no known risk factor, and yet aquires cancer. No simple causes, no simple cures. about the best we can do is to do as many of the right things as possible to improve our odds and be very vigillant with our health.
Guy 66
first biopsy was in 1997. Neg. Dx BPH PSA 5.4
second biopsy in 2001 neg again PSA 9.8
passed blood Feb 08 3rd biopsy positive PSA 14.6 Gleason (3+3)=6
Pre op Xrays, CT scans, bone scans all neg
Da Vinci surgery 3/3/08 no complications, nodes clear
Significant post op discomfort for approx one week
Daily improvement 2nd week, near nornal mobility, etc 4th week
Filled pads every 2 hours for first month, gradually improved to not wearing pads after 2 months. Whoopee!
Occasional small leak when sneezing or farting, haha
Total loss of erectile function so far, some loss of rectal muscle function also.
Currently back to 100% physically, working out, etc.
Some lingering attitude issues over lack of function. Anger sometimes, moderate depression sometimes. Feel good physically but lingering changes in emotions. Joi da vie not the same. Feel lucky overall, but emotionally flat. A vague sense of loss, diminished pleasure in life. Hope to rebound as time goes by. Survived melanoma in 2000, pacemaker in 2002. Three time winner? Doesn't feel that way.


Guy66
Regular Member


Date Joined Jul 2008
Total Posts : 32
   Posted 7/31/2008 5:02 PM (GMT -6)   
I agree with you Selmer. Good nutrition is probably a much better prevention than cure for cancer. I have always been lean and athletic all my life. Always tried to eat a healthy balanced diet (still have a 32 waist), but I'll be damed if some things just seem to be punishment for living long. haha You have a nice day!
Guy 66
first biopsy was in 1997. Neg. Dx BPH PSA 5.4
second biopsy in 2001 neg again PSA 9.8
passed blood Feb 08 3rd biopsy positive PSA 14.6 Gleason (3+3)=6
Pre op Xrays, CT scans, bone scans all neg
Da Vinci surgery 3/3/08 no complications, nodes clear
Significant post op discomfort for approx one week
Daily improvement 2nd week, near nornal mobility, etc 4th week
Filled pads every 2 hours for first month, gradually improved to not wearing pads after 2 months. Whoopee!
Occasional small leak when sneezing or farting, haha
Total loss of erectile function so far, some loss of rectal muscle function also.
Currently back to 100% physically, working out, etc.
Some lingering attitude issues over lack of function. Anger sometimes, moderate depression sometimes. Feel good physically but lingering changes in emotions. Joi da vie not the same. Feel lucky overall, but emotionally flat. A vague sense of loss, diminished pleasure in life. Hope to rebound as time goes by. Survived melanoma in 2000, pacemaker in 2002. Three time winner? Doesn't feel that way.


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 7/31/2008 9:21 PM (GMT -6)   
Well, if I'd have waiting until 50 to start..... I'd be on my way to a 6 foot whole in the ground.
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
07/2008: 4nd PSA <.003 :)
              ED: Still NADA.  Changing to Cialis.
 


Guy66
Regular Member


Date Joined Jul 2008
Total Posts : 32
   Posted 7/31/2008 10:14 PM (GMT -6)   
43??? Bless you dude. Sometimes life sure isn't fair. I'm only about 5 months out and the doc said he was able to spare the nerves, but Mr Happy hasn't made even a brief appearance and I'm not optimistic. But being an old phaert,  I'd give up my shot if you could regain yours.
Guy 66
first biopsy was in 1997. Neg. Dx BPH PSA 5.4
second biopsy in 2001 neg again PSA 9.8
passed blood Feb 08 3rd biopsy positive PSA 14.6 Gleason (3+3)=6
Pre op Xrays, CT scans, bone scans all neg
Da Vinci surgery 3/3/08 no complications, nodes clear
Significant post op discomfort for approx one week
Daily improvement 2nd week, near nornal mobility, etc 4th week
Filled pads every 2 hours for first month, gradually improved to not wearing pads after 2 months. Whoopee!
Occasional small leak when sneezing or farting, haha
Total loss of erectile function so far, some loss of rectal muscle function also.
Currently back to 100% physically, working out, etc.
Some lingering attitude issues over lack of function. Anger sometimes, moderate depression sometimes. Feel good physically but lingering changes in emotions. Joi da vie not the same. Feel lucky overall, but emotionally flat. A vague sense of loss, diminished pleasure in life. Hope to rebound as time goes by. Survived melanoma in 2000, pacemaker in 2002. Three time winner? Doesn't feel that way.


cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 8/3/2008 8:37 PM (GMT -6)   

I am having Da Vinci tomorrow morning.  Age 43. 


age:  44
1st psa Apr 08 3.06
2nd psa 6/16/8 4.02
biopsy 7/10/08 positive 3 of 12
gleason 3 + 3 = 6
core 12 = 20%
core 8 = 15%
core 3 = 10%
prostate size 18cms?  not real sure about this

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