Getting up at night to urinate

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DooWopNow
New Member


Date Joined Jul 2008
Total Posts : 6
   Posted 8/2/2008 9:34 AM (GMT -6)   
I think I'm making some progress with respect to continence, but I have to get up at least four times during the night to urinate. Is this typical? Does it go away as continence is recovered?
 
Thanks.
Age: 62
4/11/2008: Biopsy, 10 cores taken. Ouch!
4/18/2008: Diagnosis -- early stage prostate cancer, one core out of 10 cancerous
6/13/2008: Open prostatectomy, all went well, both nerve bundles preserved
6/16/2008: Pathology report excellent. Lymph nodes clear. No positive margin.
6/25/2008: Catheter removed. Praise the Lord. Came out easily.
7/23/2008: First PSA test. Results undetectable. Felt good all day. Doctor says I can resume all normal activities.
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/2/2008 2:05 PM (GMT -6)   
Well, at 9 months, I still get up at least 3 times nightly.  But I have done this almost all of my adult life...

James C.
Co-Moderator- Prostate Cancer Forum

Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
7/31/08 ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's:  3 mts-0, 6 mts.-0, 9 mts.-0.


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 8/2/2008 2:10 PM (GMT -6)   
James C. said...
Well, at 9 months, I still get up at least 3 times nightly. But I have done this almost all of my adult life...


wow really 3 times all that time. I didn't start getting up at all until a few years ago. I just thought that was part of aging. Now after my TFT I may get up once but still later than I did before. Sometimes not at all. But I've never been one to really make an effort not to drink too much before bed.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 8/2/2008 2:15 PM (GMT -6)   
Hey DooWop,

Before open surgery I had to get up at least once each night. After surgery I got up probably 4 times a night for a while and that gradually went away. Now I don't ever have to pee during the night. Just one of the good side effects of PCa treatment...

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Start chemo in September 08
"Patience is essential, attitude is everything."


Guy66
Regular Member


Date Joined Jul 2008
Total Posts : 32
   Posted 8/2/2008 4:41 PM (GMT -6)   
5 months out I get up once about half the time. I try not to drink fliuds close to bedtime. Seems to help. Before surgery I always got up twice.
Guy 66
first biopsy was in 1997. Neg. Dx BPH PSA 5.4
second biopsy in 2001 neg again PSA 9.8
passed blood Feb 08 3rd biopsy positive PSA 14.6 Gleason (3+3)=6
Pre op Xrays, CT scans, bone scans all neg
Da Vinci surgery 3/3/08 no complications, nodes clear
Significant post op discomfort for approx one week
Daily improvement 2nd week, near nornal mobility, etc 4th week
Filled pads every 2 hours for first month, gradually improved to not wearing pads after 2 months. Whoopee!
Occasional small leak when sneezing or farting, haha
Total loss of erectile function so far, some loss of rectal muscle function also.
Currently back to 100% physically, working out, etc.
Some lingering attitude issues over lack of function. Anger sometimes, moderate depression sometimes. Feel good physically but lingering changes in emotions. Joi da vie not the same. Feel lucky overall, but emotionally flat. A vague sense of loss, diminished pleasure in life. Hope to rebound as time goes by. Survived melanoma in 2000, pacemaker in 2002. Three time winner? Doesn't feel that way.


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 8/2/2008 8:44 PM (GMT -6)   
i got up 4 or 5 times after the catheter was removed. over time it got better. at the 2+ month mark, i get up once during the night. bad thing it is about an hour before the alarm goes off so i might as well stay up. strnage thing is during the morning time, i pee about 5 times before lunch or 1 time. it really depends on how much caffeine i am drinking or something.
 
Age 48
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
surgery may 9, 2008 - houston, tx
pathology report -gleason 8
margins clear
4 week and 6 week PSA .04 (undetectible)
continence ok during day - 1 pad
night time different story
kegel's twice a day 20 reps


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/2/2008 9:37 PM (GMT -6)   
beings that I still have a prostate I never dealt with a continence issue, but I still get up 3 or 4 times per night. I think it goes with the territory.
peace and grace
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 8/3/2008 7:06 AM (GMT -6)   
I was gettng up 2 to 3 times a night before my surgery. It was one of the things that tiped me off that something was wrong down there.

Now post surgery, and at the nine month mark, I only have to getup once..... if I had to much beer when out with my wife :) I normally watch what I drink from about 6pm on. It's a habbit I had from before sugery.

Roger
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
07/2008: 4nd PSA <.003 :)
              ED: Still NADA.  Changing to Cialis.
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 8/3/2008 7:45 AM (GMT -6)   
My dad was having to get up a few times during the night to urinate for quite awhile after surgery. I will add that he didn't stop drinking...or shy away from beer or caffeine, however, even with beer and caffeine on board, his trips to the urinate got better with time. It will be a year since his surgery on Aug 31 and he might have to get up once a night every once in awhile. Hang in there! Hope things get better soon!~
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 8/3/2008 8:30 AM (GMT -6)   
I've never had surgery, just 3.5 years of ADT.....I get up twice a night....at least
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (6-30-08)
PSA: 53.40
Taxotere + Prednisone + Atrasentan
[started June 9th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 8/3/2008 11:51 AM (GMT -6)   

I get up about every hour through the night. If I'm lucky sometimes I make 1 1/2 hours, I'm a very light sleeper and the smallest "urge" wakes me. It sucks but I'm over it.

Your friend,

Pete


55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 8/3/2008 12:53 PM (GMT -6)   
After my catheter was removed I was getting up between three and five times a night. Talk about being tired the next day! As time went on that was reduced. Fourteen-months post-op I can generally sleep all night without getting up, but that depends on my fluid intake before bed.
Biopsy: Diagnosed March 25, 2007. PSA 3.0. Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007, Florida Hospital, Orlando,FL
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c
Continence/Erections Out of pads at five weeks. Fully continent and can achieve erections.
Post Surgery PSA: Five tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 8/4/2008 10:57 AM (GMT -6)   
13 weeks post op.

Before surgery I had a cast-iron bladder. I got up in the night about once every 2 years or so. It just was not a problem.

Since surgery you can set your watch by me - every 4 hours my eyes pop open and I have to go. That has been me since the day after the catheter came out. I sleep on my back - which is a change for me from about 30 years of sleeping on my stomach. But I surprisingly find it is no problem. I usually don't get 8 hours of sleep, which means I only have to get up once each night - which surprisingly is not bad for me. But if I have to get up twice a night, I am just wrecked the next day.

I have to salute you guys who have to get up multiple times a night - you are stronger, better men than me. I know you do what you have to do, but if I had to get up 3 or 4 times a night (or more), I truely do not know how I would survive. Our condition is so unfair in so many ways.

Fight on!
kcragman
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 8/4/2008 10:58 AM (GMT -6)   
Oh - PS!

On continence - lying down I am fine (for 4 hours). Standing up I am still leaking like a sieve. 7 pads a day.

kcragman
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 8/4/2008 2:00 PM (GMT -6)   

DooWoop,

You and I are near the same age and similar in time from RRP - I am 11 weeks post surgery today.  I had no real problems with having to go during the night before surgery.  Oh there were times if I drank a lot of pop or tea late that I would go twice, but most of the time one trip was necessary.  Since surgery, I average 1 & 1/2 hours - or maybe 2 hours if I am lucky.  It has been rough, and I have almost gotten to the point of sleep walking in the process. 

I also continue to have some dribbling - using one (sometimes two) pads during the day.  The pad at night is basically dry.

I am taking it from what others say that it will get better.  RB

RBAge 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04


Salty_clark
Regular Member


Date Joined Apr 2008
Total Posts : 95
   Posted 8/4/2008 2:17 PM (GMT -6)   
After my da Vinci I was getting up from 2 to 4 times per night until about 8 weeks after surgery.  Then, I just began sleeping through most of them until I am down now to once per night.  I have, however, not been dry any night since my operation.  I always have to change pads each morning.  Strange how the "big I" affects each person differently.  I use 2 to 3 pads during the daytime depending on my activity.  I have neuropathy so don't walk too good and can't exercise like lot of you guys so I sit alot.  I find that while sitting I can contain the urges fairly well until I can get to the bathroom.  Extended standing, walking, and sleeping I am unable to retain any semblance of dryness.  My therapist says that the standing position is the most difficult because of gravitational pull on the bladder and that seems logical but what I don't understand is that when leaking in the sleeping position there is no gravitation involved.  She says because a sleeping man is relaxed he permits involuntarily the bladder to empty.  I was reflecting on this last night and realized that from my old age of 76 I have reverted to my early toddler days  when I had a bed-wetting problem.  At least we can change our own mess now and not have to call on our mommas to do it for us.  Strange how it seems that validates the saying about all things that go around come around again.
 
Good Luck to all you guys with the "big I."
 
Salty

Age 75 at DX 76 on 9 May 08
DRE positive with nodule 15 Jan 08
PSA 3.8 18 Jan 08
Biopsy 11 Mar 08 Gleason 8 (4+4) on the right 3 out of 12 positive <5%. Gleason 7 (4+3) on the left 1 out of 11 positive <5%.
Bone scan and CT scan Negative 12 Mar 08
Robot Assisted da Vinci prostectomy with Dr Fagin in Austin scheduled for 30 April 08.
- - - - - - - -
da Vinci successfully completed by Dr Fagin as scheduled.
Path Report:
Gleason downgraded to 3+4=7
Tumors confined to the prostate.
Bilateral tumor on right side 5 of 10 levels and on left side tumor present in 9 of 10 levels.
Margins Negative.
Extraprostatic Extension Negative
Seminal Vesicle Invasion Negative
Stage pT2c
As far as it goes between you, me and the fence post I am cured. But I am required to keep an eye out for the PSA due  toward the end of June.
06-24-08 <0.1 Undetectable.
Free Psa Undetectable also.


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 8/4/2008 4:27 PM (GMT -6)   
I just passed the 2 year mark. I sometimes have to get up once during the night. I find that I am more sensitive to having something in my bladder post-surgery, and have to make more of an effort to not drink something close to bedtime. Sounds like that is the opposite experience from some here, however...
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-18 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007); - 3rd post-surgery PSA: 0 (May 2007);
4th post-surgery PSA: 0 (June 2007); 5th post-surgery PSA: 0 (Dec 2007); 6th post-surgery PSA: 0 (June 2008)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix #3 batting average: .722 (13 for 18) Bimix #1 batting average (20 for 21) = .952
- Trimix batting average: .500 (1 for 2) Grand total 38 for 52 = .731

"Lost in the valley without my horses, no one can tell me what my remorse is..."


casteli
New Member


Date Joined Aug 2008
Total Posts : 2
   Posted 8/15/2008 6:19 AM (GMT -6)   
3 times per night, after 5 1/2 years from surgery. I've got use to it.
The nights are getting longer and I learn to enjoy falling a sleep time after time.
Radical Prostatectomy at 46(2/18/2003)
Post-op GS-8, negative margins, 0-PSA
Radiation therapy 32 sessions (9/2003)
Start Lupron 2/2006, after PSA-0.6
PSA<0.01 since then...
normal activity, positive, got a lovely dog,
loving family.

casteli


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 8/15/2008 7:41 AM (GMT -6)   

 

....once a night, once in awhile....mostly sleeping through the night, I'm thankful...


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
       3hrs in surgery, 2 in recovery...trouble starting the airway pre-
       surgery.
        Sent home 30hrs,  JP drain in place 7days, catheter remains..
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
 
        "just tryin' to reason with hurricane season"....


Ripandburn
Regular Member


Date Joined Aug 2007
Total Posts : 125
   Posted 8/15/2008 12:26 PM (GMT -6)   
I use to get up maybe 1 time per night before surgery. I am 13 months out now. I get up 1 - 2 times in a 6 - 7 hour period. I can say that I think the sling that was installed during my surgery may not allow my bladder to expand as much, if that makes sense. I seem to have to go more often during the day than I did pre-surgery.
52 years old
T1c 3+3=6
DaVinci July 16, 2007
largest cancer .2mm
Bladder Sling installed during prostate removal
nerve sparing with both nerve bundles intact
all cancer contained within prostate nothing near margins
11 weeks post-op - no more pads
4 PSA's all < .1 - Undetectable

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