We are not statistics!!!!!!!!!!!!!!!!!!!!!!!

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montee
Regular Member


Date Joined Mar 2007
Total Posts : 315
   Posted 8/4/2008 7:41 PM (GMT -6)   
http://newsblogs.chicagotribune.com/triage/2008/08/stop-prostate-t.html
diagnosed sept 2006 @ 54 years old, live in Georgia
 biopsy report gleason 3+4=7, right lobe only
psa 4.7  (psa rose 1 point per year for 3 years, urologist said still under 4 and no concern.  If I can find out about PSA velocity, why didn't he know!)
Told not to have surgery at Dana Farber as cancer had already penetrated prostate, in seminal vesicles, would have positive margins. Would only treat with radiation and HT
RP Emory Atlanta December 2006
Path-negative margins, negative lymph nodes
negative seminal vesicles, multifocal perineural invasion, both lobes involved
40% gland involved
gleason 3+4=7
Fully continent 2 weeks post catheter removal
1st psa April 2007-<0.04
 6 Mos PSA <0.04
9 mos PSA still <0.04
12 mos PSA still <0.04
15 mos PSA <0.04 (3-21-2008) 
18 mos PSA <0.04 (6-25-2008)


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/4/2008 7:54 PM (GMT -6)   
that was an interesting read, thanks for sharing.

peace and love
dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 8/4/2008 8:05 PM (GMT -6)   
interesting point of view. i believe the psa test saved my life....
 
Age 48
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
surgery may 9, 2008 - houston, tx
pathology report -gleason 8
margins clear
4 week and 6 week PSA .04 (undetectible)
continence ok during day - 1 pad
night time different story
kegel's twice a day 20 reps


henry5
Regular Member


Date Joined Jul 2008
Total Posts : 24
   Posted 8/5/2008 4:03 AM (GMT -6)   
yep, interesting point of view...psa saved my life as well.
Age : 45
 
Nerve Sparing Rad. Prost: 3 July 2008
 
PSA: 3.2 (had been high for four years)
 
Gleason : 3+3 = 6
 
T1 .1cm diameter, right apex. Contained, excellent clearance.
 
First Post op PSA: 18 August 2008
 
Continence: Discovered my pelvic floor, continence was great day one...wore pads for insurance, no pads from day five after catheter removal (had a few small stress leaks).
 
Potence: A work in progress...


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 8/5/2008 4:53 AM (GMT -6)   
Well, lets see. Good health, absolutely no symptoms, life expectancy maybe 20 years............great idea, let's do away with PSA testing as a good health maintenance measure. confused
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable
PSA August 08 <.001 undetectable


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 8/5/2008 10:35 AM (GMT -6)   
I think it would be a hard sell to us 40 year old's.  No routine PSA testing would have meant no retirement with my wife, no children's weedings, no grandchildren. Two to three more years and I would have joined our bretheren on Hormone theropy, Chemo, etc...
 
I have tried to learn from my father's misfortunes in more ways than one.

Roger

 
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
07/2008: 4nd PSA <.003 :)
              ED: Still NADA.  Changing to Cialis.
 


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 8/5/2008 11:29 AM (GMT -6)   
Doesn't save lives?! My cancer was picked up strictly by PSA. I was a Gleason 9, with a T3a tumor. I was told (later) that if I had done nothing, there is a better than even chance I would have been dead in a year, or at least too far gone to save.

Now I feel like I have a really decent chance to see what life is like at age 75. Incontinence and impotence be darned!

Doesn't save lives?!
kcragman
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 8/5/2008 11:59 AM (GMT -6)   
I give full and unmitigated credit to the PSA test for saving my life.

Biopsy: Diagnosed March 25, 2007. PSA 3.0. Gleason 6. Five of twelve samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007, Florida Hospital, Orlando,FL
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes. T2c
Continence/Erections Out of pads at five weeks. Fully continent and can achieve erections.
Post Surgery PSA: Five tests, all <0.1
Family history: Great-great grandfather died from PC. My Father had his prostate removed at age 67 in 1997 and has had an undetectable PSA ever since. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.


Mbshine
Regular Member


Date Joined Aug 2008
Total Posts : 67
   Posted 8/10/2008 11:33 AM (GMT -6)   
thankk G-d for psas...a few months ago feeling fine had routine blood test....primary care physician noted psa of 4.6.....noticed report in 2001 that it was 0.08....around 3.0 three years ago....referred me to urologist...sonogram showed nothing....but at age 60 he suggested biopsy to be sure...bingo, bummer...3 of 11 samples positive...and now awaiting meeting with surgeon..but at least the PSA (which I think added $16 to my TOTAL blood test cost) was the catalyst for further action...perhaps PSA should be a mandatory part of the typical "full panel" cholestoral, triglyceride etc screening for all men!

mbshine

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2285
   Posted 8/11/2008 1:48 PM (GMT -6)   
It may be of interest to note that of the major medical organizations, only the American Cancer Society and American Urologic Association recommend routine PSA test at any age.  The American Medical Association does not specifically recommend PSA testing. 
 
So....it's a crap shoot. If you have a primary care physician who does testing, you get the test.  If you have one who doesn't, you don't get the test unless you insist on it.
 
I think this strongly points out the need for each individual to be an active participant in their own health care and gain sufficient expertise to be a knowledgeable consumer of medical services. Bottom line: If you want a PSA test after age 75 or before 50 you need to be a savvy patient and find a physician who will perform this test. 
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