Urinary pad etc.

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jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 8/5/2008 1:48 PM (GMT -6)   
I am writing about items used to combat incontinence.  I have had this problem for about two years and had Two AUS fitted and both failed.  I am back to pads and have been using Tena pads which don''t chaff your body but to change these about 8 times a day is no fun.  It also costs me about $100.00 per month.  Everybody has a solution and I have tried several different things---pads of course are basic; tried several different condo drain systems and none have worked.  I get a real good seal but if I sit for any period of time they back up and it breaks the seal.  The latest one which was to solve all is Bioderm which is a two piece unit but have had no success with that.  Today I ordered a starter kit from Arcus medical which is supposed to work.  I am going to have an AUS installed in October and hope it will work but I am looking beyond just in case it doesn't.  I would appreciate hearing from you guys and there must be thousands of you out there.  Would appreciate any help.
Jerryv

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 8/5/2008 10:04 PM (GMT -6)   
Jerry, Just curious. Where and who did your first two AUS? Where and who is doing your 3rd?
I have stuck with my Depends Guards for Men. I have had no rash using them. But we all have our own opinions.
Good Luck and hang in there.
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
     


jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 8/6/2008 1:34 PM (GMT -6)   

Hi KW

I don't want to mention the urologist who did the first two operations but they were done in the Milwaukee area.  At the time i did not know what kind of questions to ask and i got someone who was not knowledgeable.  I am having Dr Dan Elliott from Mayo Clinic in Rochester Mn do the next surgury.  I know will all work well because he has done at least 1000 of these.  I will keep all posted and the next opration will be October 3,2008.

Jerryv


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 8/6/2008 10:50 PM (GMT -6)   
Ok...understand that. I do remember you now. I almost went to Elliot. But I decided to go to a guy in Dallas. He is not at 1000 but he has done several hundred and is doing them weekly. He only does surgery two days a week.

Hang in there.
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
     


skeptic
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 8/7/2008 7:42 AM (GMT -6)   
Jerry, I went to a prostate support group recently and they had all kinds of latest devices, information, etc. about incontinence.  One of the items they talked about (but did not have on hand to show) was a clamp device of sorts.  It is meant not only to clamp (mildly) but to exert pressure on the urethra to hold back leakage.  I'm posting this mainly to see of any others are familiar with this device.

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 8/7/2008 8:35 AM (GMT -6)   

I used the clamp device and I think you have tried it, JerryV.  I used the Cunningham Clamp successfully for months.  It kept me dry except for the stress moments.  Hardly anyone else on this forum likes the clamp because it is a bit uncomfortable but to me it was better than being wet on all the time.  I can no longer use it because I've been fitted with both an AUS and penile impant and the doctor does not want me using the clamp.  I still have two weeks to go with the wetting on myself all the time.  Jerryv, you might re-try the clamp just to see.  A medical supply house in any large city will have them or you can go on line and order.

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP activation appointment: 08-18-08


jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 8/7/2008 6:23 PM (GMT -6)   
Thanks Gene
I have gotten a new Cuningham clamp and i am the guy who said it was devised by some oriental torture specialist.  At the time i was given this to use i was in such bad shape that i don't think i gave it a fair chance.  I have now started bending the top portion and it does seem to be a bit better  Thanks Gene.  I hope you guys who have just been fitted with AUS will report how you are doing once the unit has been activated.  My first one was a great dissapointment because it never did work properly and the second one was never activated because i was so infected that i almost died.  This is when i went to Mayo
Blessings to all
Jerryv

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 8/7/2008 7:25 PM (GMT -6)   
Perhaps some men do not know that one can bend the Cunningham to fit the penis more comfortably.
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP activation appointment: 08-18-08

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