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lemonlime1
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 8/10/2008 9:54 AM (GMT -6)   
hi all iam new 2 this , i was wondering how long after catheter is removed do you have constant leakege. im goin on 4 days still leaks all day at nite i get up 2 go 2 times leaks alot less at nite any help please thank you

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 8/10/2008 10:47 AM (GMT -6)   
Welcome to the site. Sorry you have to be here. As far as regaining continence, each guy's experience is very different. but many guys are dry around three months. Some take longer...some MUCH longer.  You will notice you will be dry at night first. Then in the morning. As the day goes on, you will have a harder time staying dry.  So, the last thing to go away is leaking in the evening.  Even now, if I have any stress leaks, it's after 7:00 pm.  Don't look for any improvement for several weeks ...or months...to come. 
Paul
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at six weeks
Pad free on March 14 - (10 weeks.)
ED - Take 100mg viagra every night.
Totally usable erections at 10 weeks.
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/10/2008 11:03 AM (GMT -6)   
                                                      tongue    Hi ~lemonlime1 and Loved Ones,

 

Welcome   to  ~ HealingWell ~ 

and 

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Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 8/10/2008 9:31 PM (GMT -6)   
Sorry that you have to be here, but welcome to the best PCa forum on the net.
It is my understanding that most men leak for around 2-3 month after the catheter has been removed. A few men are lucky and are dry very soon after removal, but some are not so lucky and will leak for much longer. We're all a little different.
Little or no leakage at night after only 5 days is a good sign that you might be dry in the not to distance future.
Do you 'kegels' and walk as much as you can without straining to much. One thing you will have to learn with this disease and that is patience. 
All the best to you in your future.
 
Magaboo

Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4823
   Posted 8/11/2008 9:05 AM (GMT -6)   
lemonlime1 - do you leak just sitting still or when getting up out of a chair?
 
If its getting up out of a chair, see if you can mentally, so to speak, try and stop it like doing the kegel...
Age 53   - 5'11'   205lbs
Overall Heath Condition - Good
PSA - July 07 & Jan 08 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 8/11/2008 11:15 AM (GMT -6)   
Hello Lemonlime1:

I am 14 weeks post op - still using 7 pads a day, still waiting for that "overnight" improvement. I am involved in an incontinence trial study. The doctors told me they are seeing the biggest improvement between the 3 and 6 month marks.

Everybody is different. I've been pretty good at night from day one. Just can't stop dribbling during the day - and yes, evenings seem to get worse. I think all the muscles involved in holding it back just get tired.

Good luck,
kcragman
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 8/11/2008 1:52 PM (GMT -6)   
My experience (today I am 12 weeks from RRP) is gradual improvement, but very gradual. I thought 4 weeks ago I was nearing the dry-up point, but I am still leaking a little here and there especially depending on how much I am on my feet. I have no problem when horizontal, and none when sitting. Getting up and moving is a different story and so is straining standing up. I also have found it gets worse toward the end of the day. I am now using 2 pads (one during the day), and one at night, although the one at night is basically dry. I have also had some days better than others. I keep an extra pad handy just in case of an emergency situation.

The only thing I can say positive about it is that I have gotten use to the routine, and it is not so bad.

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

lemonlime1
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 8/11/2008 2:39 PM (GMT -6)   
thank u all for your imput i was really scared about leaking all day and steve you are rite sittig down it seems to slow when i get up i try to go to the bath room and go . how long does it take before you feel the urge to go during the day is it normal to have no urge now 4 days after removal of catheter thank you all . lemonlime

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 8/12/2008 9:05 PM (GMT -6)   
Just hang in there LL1, Your just a few days post cath. I hope you dry up within the normal time frames. Just keep working the Kegeals and you might want to limit the caffene and alcohol. We'll be here for help and support if you need us.
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
     

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