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GumbyDan
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/10/2008 2:04 PM (GMT -7)   
Hey folks - I have been surfing for any and all info re PC and am hoping I can get some mental relief here. We have a family history of PC: paternal uncle had metastatic PC into his bones and passed away. My father was diagnosed shortly thereafter via a PSA of 150, and has recovered nicely with time-release radiation therapy and hormone treatment (he's 74 now, this was about 8 years ago). Around the same time my older brother had a PSA under 4, but had a precautionary biopsy that showed 2 of 12 samples with PC. He underwent a Radical Prostatectomy almost immediately, when he was 44. All good now as far he goes, everything works, etc. When all of this occurred I was about 35. I am now 43, and have had a PSA done approximately every 6 months since all of the above occurred. Always been at 2.3. A month or so ago I tested at 2.6. Not so bad. Then about 2 weeks ago I started feeling some localized discomfort in the nether region - not burning, necessarily, but more of a dull internal ache in the family jewels and surrounding area that seems to migrate occasionally. I get no unusual discomfort when massaging the prostate externally. I have seen no blood, and experienced no outright pain or burning when urinating or ejaculating, though occasional discomfort afterwards. I asked my family doctor for a referral to a urologist, and was given an appointment 1 week later, coming up this Wednesday. I have spoken to them to see what to expect, which will be a general consultation, DRE (can't wait for that) and they will likely schedule a biopsy (really not looking forward to that either). My wife will be attending with me, which I've heard is a smart move. Obviously, there is a lot of concern based on the family history and even the very slight increase in PSA. I am also aware of the nasty little tricks the mind can play when you are looking into the unknown, i.e. was that ache in the legs there before, etc. Looking for some support from those who have gone before - what to expect from the DRE, biopsy, how the hell do you get your mind wrapped around this whole mess and most importantly do these symptoms sound at all familiar for PC? I have read page upon page on symptoms and have never seen anything that matches the odd irritation I am feeling. Any response would be appreciated.

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 8/10/2008 2:22 PM (GMT -7)   

You have never had a DRE?  Most urologists are better at giving them than family practice guys, in my experience.  Just relax...will be a little uncomfortable but not painful.

Biopsy for me was not bad.  A prick of lydocaine and I felt very little during the actual shots into the prostate.  The "nail gun" sound of the injections is a little unnerving at first, but all in all not bad.  Expect some blood in your urine and if you ejaculate that night, as I did, expect a bloody mess.

Relax and best of luck with the outcome of your tests.

DanMan


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 8/10/2008 2:44 PM (GMT -7)   
Of course, the doctor didn't tell you to abstain anything which will stimulate your prostate for several days befoe a biopsy. That includes sex, bike riding, heavy exercise and, of course a DRE!! Stimulation of the prostate artificially increases the PSA reading.

Good luck.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


GumbyDan
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/10/2008 3:32 PM (GMT -7)   
Biopsy is yet to be scheduled - initial consultation and DRE are Wednesday, so here's the question - should I abstain prior to the DRE? Also, anybody heard of similar symptoms, i.e. the dull ache in the repro organs, etc.?

Navy corpsman
Regular Member


Date Joined Aug 2008
Total Posts : 61
   Posted 8/10/2008 3:51 PM (GMT -7)   

GumbyDan-

There are reports that recommend a biopsy for anyone with a psa over 2.5.  My psa was 2.53 when I had a biopsy and I had 5 of 11 cores positive.  One thing I have learned over the last couple of months is that the quality of doctors varies greatly.  Do not forget that the person who finishes last in medical school is called doctor.  The best thing you can do to wrap your mind around this issue is to learn as much as you can so you can make the best decisions.  There is a lot to learn and it can be confusing.  The most informative book I have found is Surviving Prostate Cancer by Dr. Patrick Walsh.  Make sure it is the second edition. 

It sounds like you are on top of things, just remember that prostate cancer is curable if you catch it before it spreads.

-John


Age:  44
We have a family history of PCa.  My Dad and uncle died from it at 65 and 53. My PSA velocity increased in the last 2 years and I had to talk my GP into refering me to a urologist.
Biopsy results:  5 of 11 cores positive, all 30%. Gleason 6. T1c. PSA 2.53  Date of biopsy 15MAY08.
Open RRP at Johns Hopkins with Dr. Partin on 09JUL08.
Pathology report:  Gleason 6, pT2, neg. margins, 0 lymph node and seminal vessical, organ confined, I lost 1 nerve bundle and 22 lymph nodes.
As of today, about a month after surgery, I feel at about 80%. Urinary control seems to be improving. Little Elvis has taken a nap and has not awakened yet. I hope when he wakes up he is well rested because he is going to get one heck of a workout.
 
 


Navy corpsman
Regular Member


Date Joined Aug 2008
Total Posts : 61
   Posted 8/10/2008 4:04 PM (GMT -7)   

GumbyDan-

I did have a dull ache in my right testicle after orgasm for about 6 months before my biopsy that was diagnosed as epiditimitis. I am not sure the diagnosis was correct because the tumor in my prostate was all on the right side. As far as abstaining before your exam it probably does not matter that much, from what I understand it takes awhile for the psa level to change.

-John


Age:  44
We have a family history of PCa.  My Dad and uncle died from it at 65 and 53. My PSA velocity increased in the last 2 years and I had to talk my GP into refering me to a urologist.
Biopsy results:  5 of 11 cores positive, all 30%. Gleason 6. T1c. PSA 2.53  Date of biopsy 15MAY08.
Open RRP at Johns Hopkins with Dr. Partin on 09JUL08.
Pathology report:  Gleason 6, pT2, neg. margins, 0 lymph node and seminal vessical, organ confined, I lost 1 nerve bundle and 22 lymph nodes.
As of today, about a month after surgery, I feel at about 80%. Urinary control seems to be improving. Little Elvis has taken a nap and has not awakened yet. I hope when he wakes up he is well rested because he is going to get one heck of a workout.
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/10/2008 4:40 PM (GMT -7)   
                                                            tongue    Hi ~GumbyDan and Loved Ones,

 

Welcome   to  ~ HealingWell ~ 

and 

A   Special Warm Welcome  to  You !

 

Knowledge gives us POWER.  POWER takes away the fear. 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

  Click  on  link  below for important information that will help you ~ help us!!

                                                                   >>  Welcome New Members ~ to HealingWell 

The information (link) listed above is to help you get around the forum!   

This is a journey best traveled with friends.   

Welcome ~ New Friend from all the members here... on HealingWell.com 

 

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Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 8/10/2008 5:20 PM (GMT -7)   
Navy-

I don't feel like digging up a whole bunch of quotes, but, you're wrong about not having sex before PSA test.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


GumbyDan
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/10/2008 6:30 PM (GMT -7)   
Les - so I am correct in abstaining, right? (starting now)

Thanks for all the replies - good to have a place to discuss.

Navy John - yeah...with the family history I've always had a general knowledge, but boy am I learning more now...


Dan

Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 8/10/2008 7:21 PM (GMT -7)   

Gumby:

It is suggested that you do not indulge in any activity (DRE, sex, ride bike, heavy exercise, etc.) that might massage the prostate for 72 hr prior to having blood drawn for PSA.   Another good read is "You Can Beat Prostate Cancer" by Bob Marckini available on Amazon - this fact will show up in this book.

Dutch


Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - 2001 - No side effects.  My journey is at: http://www.healingwell.com/community/default.aspx?f=35&m=727565
7yr PSA - 0.2
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 


KC9AOP
Regular Member


Date Joined Jun 2008
Total Posts : 85
   Posted 8/11/2008 9:34 PM (GMT -7)   

Hey Gumby,

I was you just a few weeks ago.  Look for a thread titled "Just trying to get the straight facts".  All of the wonderful people here posted a lot of great info for me to get started.

So here's what I would do...  No sex, bike or heavy leg lifting for 72 hours before the PSA test.  That's the consolidated view I've put together from my hundreds of hours out here trying to get the facts straight.

Briefly, I had a general physical done and my PSA was 4.4 which is just over the limit according to the "standard chart".  Check my signature for all of the chronology and you can see my journey.  When I visited the Urologist he did a DRE and an ultrasound.  I asked the doctor to use extra lubricant for the DRE as I've had a couple of these exams and found that the urologist used copious amounts of lube and it was less uncomfortable.  At any rate all of the diagnostics that were done were not conclusive so the doctor recommended the standard 12 core biopsy in his office.  I did have my wife with me and it is a good idea.  Also bring a notepad or medical diary and a pen to take notes.

My father had very aggressive cancer at age 74 (Gleason 5 + 5 = 10, right now Gleason scores may not be familiar to you) so I thought it was a good idea to contact his oncologist, Dr. Moran.  He was very happy to treat me, and actually pursued me to come to him for a consultation.  Since I had 3 close relatives with PCa, Dr. Moran suggested a high density biopsy called a Stereotactic Transperineal Prostate Biopsy (I have a post about that too) and I asked for a repeat PSA for sanity (no luck there).  The biopsy was done under a general anesthetic and 42 samples were taken.  The recovery time for the procedure was really about 2 full weeks before complete normal.  I was back and functional after 2 days.  There's more blood involved in places where you aren't used to seeing any, and some bruises too.  Otherwise I really was not in pain, but a few days of fairly constant discomfort followed the procedure.

Above all find a urologist that you like, can understand and will take all the time you need to talk and explane things to you.  My doctor is very patient, smart and will take hours with me if I'd like him to.  I couldn't be happier or luckier.  Other musings I've made are in my blog in my signature if you are interested.

Be calm now and ready for your initial consult.  There is a link here on this site that is a list of questions to ask.  Questions to ask your doctor during all stages of evaluation and treatment: is the direct link.  Find the questions you want answered and write them down in your diary and bring them with you.  Make sure your wife gets them all answered.  You may not be "all there" at the time and she can be sure to cover the ground for you.

Remember, you don't know what is going on so you kind of have to live in denial until you do.  Pretend a bit that things are "normal" when your anxiety raises.  It helps... and "normal" happens to be the truth until proven otherwise.  Keep posting here and reading.  I turned to blogging to get the tension out.  You can find your own outlet.

 Oh and I have the same groin area pains that you describe.  I had an epididymal cyst a few years back and this feels exactly like it.  Dull pain that is fairly constant and episodic.  Nothing to keep you from functioning, but there is something going on.  When I find out what is going on with me I'll be sure to let you know.
 
 
Jim



I am age 47 - Father, Paternal Uncle and Maternal Grandfather had/have Prostate Cancer.
Father 74 years old, PSA = 10.6 Gleason = 5 + 5 = 10 (very aggressive) and high involvement in all cores. Seed therapy is the only option. Father died cancer free.
06/04/08 - At physical DRE normal, PSA test returns 4.4
06/20/08 - First Urologist visit. DRE and ultrasound finds nothing conclusive. Doctor says biopsy is the only safe way to go. Prostate volume is 40 grams.
07/11/08 - PSA test returns 4.1. Scheduled the Stereotactic Transperineal Prostate Biopsy for 7/21
07/21/08 - Had the biopsy.  Not so bad but sore on day 2. Back to work tomorrow
07/23/08 - Pathology comes back NO CANCER DETECTED!
08/01/08 - Urologist calls and says Prostatic Intraepithelial Neoplasia ("PIN") was found in my biopsy 

Post Edited (KC9AOP) : 8/11/2008 10:38:59 PM (GMT-6)


GumbyDan
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/12/2008 3:03 AM (GMT -7)   
Jim/KC9,

Wow - thanks so much for taking the time to share your experience! I am doing my best to stay cool while beginning this adventure, though it is not easy at times. Yesterday was the first day in over a week that I actually was able to put some of the thoughts away and be my normal self (normal being a relative term :) ). Initial consult is tomorrow, so tonight will be full of reading and preparing my question list, etc. I will post whatever happens, as I am sure there are people in our positions who join this club unexpectedly, as we did, and enter full of confusion and anxiety. You all have helped me alot in the short time I've been in the room.

Dan

KC9AOP
Regular Member


Date Joined Jun 2008
Total Posts : 85
   Posted 8/12/2008 7:20 AM (GMT -7)   
GumbyDan said...
Jim/KC9,

Wow - thanks so much for taking the time to share your experience! I am doing my best to stay cool while beginning this adventure, though it is not easy at times. Yesterday was the first day in over a week that I actually was able to put some of the thoughts away and be my normal self (normal being a relative term :) ). Initial consult is tomorrow, so tonight will be full of reading and preparing my question list, etc. I will post whatever happens, as I am sure there are people in our positions who join this club unexpectedly, as we did, and enter full of confusion and anxiety. You all have helped me alot in the short time I've been in the room.

Dan

Dan,

I'm very happy I could help. It is very stressful and since I've been though it I can offer my thoughts anyway.

Stay cool, do some research but be sure not too much. I overindulged in the research and got too consumed with this. Right now you need to be prepared but really need to keep it light(ish) until you have something concrete to go on. Take it a step at a time, don't freak and be sure your wife is there to back you up. If you do that you have done the best you can.

I'll be thinking about you tomorrow and sending positive thoughts/prayers your way for good results and peace of mind.

Jim
I am age 47 - Father, Paternal Uncle and Maternal Grandfather had/have Prostate Cancer.
Father 74 years old, PSA = 10.6 Gleason = 5 + 5 = 10 (very aggressive) and high involvement in all cores. Seed therapy is the only option. Father died cancer free.
06/04/08 - At physical DRE normal, PSA test returns 4.4
06/20/08 - First Urologist visit. DRE and ultrasound finds nothing conclusive. Doctor says biopsy is the only safe way to go. Prostate volume is 40 grams.
07/11/08 - PSA test returns 4.1. Scheduled the Stereotactic Transperineal Prostate Biopsy for 7/21
07/21/08 - Had the biopsy.  Not so bad but sore on day 2. Back to work tomorrow
07/23/08 - Pathology comes back NO CANCER DETECTED!
08/01/08 - Urologist calls and says Prostatic Intraepithelial Neoplasia ("PIN") was found in my biopsy 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 8/12/2008 7:55 AM (GMT -7)   
Welcome to HW! Glad you found us! Best of luck with your appointment and keep us posted!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Mbshine
Regular Member


Date Joined Aug 2008
Total Posts : 67
   Posted 8/12/2008 10:29 AM (GMT -7)   
Gumby Dan
I found the biopsy much, much easier than I feared. My urologist had done a sonogram a week or so earlier in his office and pretty much showed me what to expect and what the procedure was. I was cautioned about possible blood in stools or urine, discomfort, "leaking" etc for two weeks after the needle biopsy.....a few days later I has on a long airline flight....moderate walking and swimming...and no after effects at all that I noticed....my wife waited and drove me home after the procedure...from arrival at hospital until time of release probably 90 minutes......
Mbshine

RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 8/12/2008 2:07 PM (GMT -7)   
Just want to tell you that I think I was more nervous about the biopsy than anything I have ever done.  A big tough guy here at work told me it was rough and I carried that in my mind.  But - - and I am sincere about this - it was not nearly as bad as I thought.  I left the situation thinking that I made too much of this, and I went back to work straight from the biopsy. 
 
You will see - it will not be that bad, and it won't last long either.  Hoping that you will receive good news from the results.  RB
 
_________________________________
Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind). 
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

GumbyDan
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/12/2008 5:05 PM (GMT -7)   
Thanks again everybody - tomorrow is only the initial consult and DRE, biopsy will follow based on family history I am certain. I think the biggest fear is of the unknown, so I will be in a better place at least for knowing something, regardless of the results. That and the fact that there is nothing exciting (at least for this guy) about the "process", so to speak. Spirits are good (better, anyway), and again, at least the wondering can be put to rest.

GumbyDan
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/13/2008 3:45 PM (GMT -7)   
Hey Folks,

The world can be a confusing and uncertain place. During my initial consult with my new Urologist friend, I learned that I was provided incorrect PSA results not once, but twice on my most recent visit to my family physician. While it had initially been confirmed that my PSA was 2.6, the report from LabCorp that I saw in the Urologists office this afternoon clearly stated 1.6...We went ahead with the finger wave (which was about as unpleasant as I thought it would be - but less unpleasant than the process of biopsy, I'm sure), and he stated very surely that there was absolutely nothing out of the ordinary that he could detect. The exam also showed no sign of hernia, or any issues related to my urine sample. With this information, we determined to take a wait and see approach, with a follow up PSA in 90 days, biopsy on hold. That having been said, he also could offer no information related to the odd discomfort, but he felt certain that it had no relation to the prostate, etc. What I have learned in all this is that there are terrific groups of people out there who are (sadly) going through the same situation, albeit not with the same level of positive outcome that I was fortunate enough to experience today. I want to extend my sincere appreciation to all of you who have read and responded to my posts - I have learned much in very little time, will check in often, and will keep all of you in my thoughts and prayers. Thanks again, and God Bless.

GD

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/13/2008 6:15 PM (GMT -7)   
That is really good news.  I am glad for you......Be sure to check back in 90 days, and tell us what that next PSA test is, ok?

James C.
Co-Moderator- Prostate Cancer Forum

Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
7/31/08 ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's:  3 mts-0, 6 mts.-0, 9 mts.-0.


KC9AOP
Regular Member


Date Joined Jun 2008
Total Posts : 85
   Posted 8/14/2008 3:33 PM (GMT -7)   
Dan!!!!

HURRAH!!!! I'm so very very happy that the lab or the office or whoever made a mistake and that you are safely in normal PSA range. This may have been an early wake up call to be diligent.

Do be sure to check in again in 90 days and let us know how the follow up blood test goes. Once again, it looks like you and I are in the same place. Watching and waiting. I have some more direct implications and and pre-cancerous results in my biopsy. You should just be on top of things and don't let your guard down. Maybe even change your diet a little to battle all types of cancer. I'm trying that myself and it's easy.

Take care and I'm glad you are fine.


Jim
I am age 47 - Father, Paternal Uncle and Maternal Grandfather had/have Prostate Cancer.
Father 74 years old, PSA = 10.6 Gleason = 5 + 5 = 10 (very aggressive) and high involvement in all cores. Seed therapy is the only option. Father died cancer free.
06/04/08 - At physical DRE normal, PSA test returns 4.4
06/20/08 - First Urologist visit. DRE and ultrasound finds nothing conclusive. Doctor says biopsy is the only safe way to go. Prostate volume is 40 grams.
07/11/08 - PSA test returns 4.1. Scheduled the Stereotactic Transperineal Prostate Biopsy for 7/21
07/21/08 - Had the biopsy.  Not so bad but sore on day 2. Back to work tomorrow
07/23/08 - Pathology comes back NO CANCER DETECTED!
08/01/08 - Urologist calls and says High Grade Prostatic Intraepithelial Neoplasia ("PIN") was found in my biopsy (read pre-cancerous leisions)


GumbyDan
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/15/2008 4:35 AM (GMT -7)   
Definitely a wake up call! That is exactly how I am seeing this, and you can count on my follow up. I have always monitored the PSA and have been conscious of my risk factor, but now I know so much more about what to look for, expect, etc. Best of luck to all...I'll be watching!

Dan

GumbyDan
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/15/2008 4:41 AM (GMT -7)   
Definitely a wake up call! That is exactly how I am seeing this, and you can count on my follow up. I have always monitored the PSA and have been conscious of my risk factor, but now I know so much more about what to look for, expect, etc. Best of luck to all...I'll be watching!

Dan

Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 8/15/2008 7:06 AM (GMT -7)   

 

...Well good for you, I'm sure you feel relieved, in fact I know you do. I did the same thing about 8-10 years ago. Spiked up to 5.0, then it settled back down into the 1.2-3 range...family history and all that jazz(dad and cousin) My urologist told me at the time, "it's not a matter of if, it's a matter of when" and we started with the DRE, PSA's etc. Finally we found what we were looking for, so, in a sense...it was a success story, at least that's how I see it....(except for me getting alittle apathetic toward the whole process last fall and putting off my yearly appointment for three months, whew close call, don't let that happen)......I'm not trying to make you overly anxious about this whole experience, just stay diligent  of the facts and all you've learned over the past few weeks and don't let it consume you. Have fun man.......Good Luck to you and for sure let us know how you're doin' out there-Take care


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
       3hrs in surgery, 2 in recovery...trouble starting the airway pre-
       surgery.
        Sent home 30hrs,  JP drain in place 7days, catheter remains..
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
 
        "just tryin' to reason with hurricane season"....


Bubblehead
New Member


Date Joined Aug 2008
Total Posts : 2
   Posted 8/18/2008 7:32 AM (GMT -7)   
Dan
It is amazing that until we find ourselves with PC, there is not a lot of information available. I attended a couple of training sessions (1 hour ea.) just for information and learned very little. I joined a study at work because I was eligible and thought that it couldn't hurt. Probably helped me get a years jump on detection and surgery. Now I've switched to the recovery mode. Like the pre-surgery situation, everybody has a unique experience. It's helpful to hear (here) how others have handled my upcoming concerns (recovery, IC, ED etc.). Once again, it is amazing how little is known (in the general public) about this wide spread disease. Maybe us "old guys" didn't want to talk about it before. Fortunately, more and more is being spread about the recovery and positive future ahead of us.

Age 69

4/21/04 Entered “Select” Study with Vet. Admin. (In addition to annual physicals), PSA 1.73 10/6/05 PSA 2.26, 10/2/06 PSA 2.42, 10/4/07 PSA 2.59
3/25/08 PSA 3.42, recheck 4/29/08 PSA 4.06. referred to Urologist

5/29/08 Biopsy – 12 core samples, #10 Left Mid Lateral (Adenocarcinoma GL 4+3=7 30% of

             specimen), #11 Left Base Medial (Adenocarcinoma GL 4+3=7 50% of specimen,

             perineural invasion present) Staging  pT2a. PSA 4.06
6/16/08 Bone scan and CT scan, both negative no evidence of spread
7/22/08 (open) Retropubic Radical Prostatectomy performed
7/29/08 Post-op Path Report: GS 4+3=7 Staging pT3a, pN0 110gms, margins negative for

             tumor. Lymph nodes & seminal vesicles negative for tumor.  Extraprostatic Extension

             by tumor, present.


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 8/19/2008 10:52 AM (GMT -7)   
Prior to my biopsy and eventual surgery I had 5 separate PSA checks over 4 months. One was an insurance test, another at the annual company checkup, and 3 others at two separate doctor offices. Three of the PSA's were 5.1. One was a 5.2, and one was an 8.1. The 8.1 was two weeks before the last one before surgery which was a 5.1. The second Urologist and eventual surgeon said it was not possible for the PSA to change that fast in that short of time. It became obvious that either the nurse got me confused with someone else's number, or there was some kind of malfunction. I have never heard anyone address the validity of PSA's but especially when discussing the results after a treatment when persons are making decisions based on very small differences it leaves a person a little on edge about what to believe.

So happy that your situation was caught before other measures were taken.

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04
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