penile shortening

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Navy corpsman
Regular Member


Date Joined Aug 2008
Total Posts : 61
   Posted 8/14/2008 7:38 AM (GMT -6)   
This subject is probably one of the most sensitive to wrap your hands around.  Once again, as I try to gather information I get conflicting opinions.  Some doctors say penile shortening is a side effect of surgery and some say it does not happen.  I have experienced major shrinkage and I did not just get out of the pool.  At the present time, I am 5 weeks out of surgery and Little Elvis is behaving like a frightened turtle.  I am wondering if this is a tempoary condition or if this will last a lifetime.
 
If you prefer to reply privately, my e-mail is available by clicking on Navy.
Age:  44
We have a family history of PCa.  My Dad and uncle died from it at 65 and 53. My PSA velocity increased in the last 2 years and I had to talk my GP into refering me to a urologist.
Biopsy results:  5 of 11 cores positive, all 30%. Gleason 6. T1c. PSA 2.53  Date of biopsy 15MAY08.
Open RRP at Johns Hopkins with Dr. Partin on 09JUL08.
Pathology report:  Gleason 6, pT2, neg. margins, 0 lymph node and seminal vessical, organ confined, I lost 1 nerve bundle and 22 lymph nodes.
As of today, about a month after surgery, I feel at about 80%. Urinary control seems to be improving. Little Elvis has taken a nap and has not awakened yet. I hope when he wakes up he is well rested because he is going to get one heck of a workout.
 
 


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 8/14/2008 8:40 AM (GMT -6)   
Navy corpsman - I am 14 weeks post op. I had heard something about that also. In fact, I thought somebody told me you were guaranteed to lose XX percent of your length. And for weeks after surgery I was unbelieveably tiny.

Then I double checked with my medical professional wife and she said, "What are you talking about, you crazy man?"

After 8 - 10 weeks (I'm guessing) things down there started to relax and I returned to a much more normal size. I think everything down there is just shocked (nerves, blood vessels, supporting tissues, etc.) and it takes a while - some men longer than others - to recover.

Good luck,
kcragman
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 8/14/2008 8:48 AM (GMT -6)   

I’m seven weeks post surgery and thought for sure I’d always have to squat/sit to do my business. Have since learned that isn’t the case. But..

 

My little pee wee and I are Anxiously awaiting the arrival of the vacuum pump to help exercise him via getting blood to flow. From what I understand, it’ll take a good length of time (pardon the pun) to get back to closer to the original size….

 

If it wasn’t so darn hot here, I’d just tell anyone that looks that the water sure is COLD.


Age 53   - 5'11'   205lbs
Overall Heath Condition - Good
PSA - July 07 & Jan 08 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 8/14/2008 8:57 AM (GMT -6)   
Navy- I started with the vacuum pump right after the catheter came out along with 50mg of viagra a day. I am six months post-op and have suffered no penile shrinkage. Actually I think I might have gained a little from using the pump faithfully every day. My Dr. told me that the shortening was due to removing part of the uretha that ran through the prostate, then reattaching what was left to the bladder.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 8/14/2008 11:11 AM (GMT -6)   
Bootheel - That's exctly what I heard (about the urethra and the bladder). Maybe I'm not crazy after all.

But - Steve N Dallas - as I said, after some period of time (8-10 weeks?) things down there seemed to relax and return to normal - well, as normal as you can be with ED.

kcragman
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph nodes and associated glands all appear to be cancer free.


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 8/14/2008 11:27 AM (GMT -6)   

 

...I sure am glad we all know what' we're talking about...can you imagine if this subject was overheard by someone who has no idea?!?  

  yeah the little fella's wantin' to stay inside, not real crazy about coming out to play.....I've been forcing him....getting some pretty good and promising results with the blue pill, and continue with the pump on a daily basis......but when recess is over, he's off and hiding again....I figure that's alright, everything down in that region has been through alot the past few weeks.....but things are lookin' "up"!! 

 I'm pretty sure there are some other post about this subject, I remember reading about this subject prior to my surgery. Stands to reason though(the bladder and urethra thing)
 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
       3hrs in surgery, 2 in recovery...trouble starting the airway pre-
       surgery.
        Sent home 30hrs,  JP drain in place 7days, catheter remains..
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
 
        "just tryin' to reason with hurricane season"....


jackcc
Regular Member


Date Joined May 2006
Total Posts : 80
   Posted 8/14/2008 11:48 AM (GMT -6)   
Navy

Welcome to the "turtle club". Doctors deny such a thing will happen but thats not true. It does. It has been shortened like the others said and its something we have to live with. You'll have to work on it with the pump , pills and exercise. Its a distressing thing. Some suffer more than others. But don't let them tell you it doesn't happen. My doctor refused to believe it too. Right. After the catheter was removed and things settled down, the "turtle mode" set in. It was shocking. Maybe things will improve for you.

Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 8/14/2008 4:00 PM (GMT -6)   
I only wish I could get at least one had around it ;) I actually hate getting out of the shower at the health club. Yes it's vain, and I know that, but I really cannot help it.

Maybe if things start to return to normal, so will everything else.
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
07/2008: 4nd PSA <.003 :)
              ED: Still NADA.  Changing to Cialis.
 


KenW
Regular Member


Date Joined Mar 2007
Total Posts : 74
   Posted 8/14/2008 11:58 PM (GMT -6)   
I'm not sure the Doc's known what their talking about as far as the urethra being shortened. I didn't have surgery ( Proton Beams ) and I have the same results. Sure doesn't look like I was curcumsized now. I think trama is trama no matter what the process was.

Diagnosed with a Gleason 4X3. Second opinion at Stanford came back as 3X4, 1 out of 7 samples, Left Side. DRE showed Normal. Before Biopsy Psa gradually crept to 10. Dropped to 6.4 with Alt. suppliments.
Proton Beam Therapy at Loma Linda 11-06. 1st PSA 4 Months 3.4, PSA at 8 Mo. 1.7. - 1 Yr. PSA 1.8 ( Different Lab ) 4 th PSA Slightly up at 2.19- Free PSA at .33 probably due to BPH. 1 year and 11 mo. Urologist discovered Scar Tissue in the uretha causing frequent urination with burning. Bladder not emptying completely.
Scheduled ( 12/17/07 ) to have the scar tissue sliced to open up the restriction. Good news is PSA is down to 1.14.
Urethrotomy performed. Flow much improved. No more burning.
PSA bump to 3.1. being checked at 3 months now.


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 8/15/2008 7:37 AM (GMT -6)   
Maybe that's it.... We all had are foreskins re-attached. How silly of me.
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
              Both nerve bundles spared
              Pathology Report: Tumor confined w/in prostate
              T2c, Gleason is 3+3=6
              Went home with JP drain
10/2007: Made return trip to hospital.  All urine was comming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003 :)
              ED: Started Viagra, no response yet.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :)
              ED: next to no response.
04/2008: 3nd PSA <.003 :)
              ED: next to no response.  Changed the Viagra prescription.
07/2008: 4nd PSA <.003 :)
              ED: Still NADA.  Changing to Cialis.
 


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 8/15/2008 8:38 AM (GMT -6)   

 

...ha ha, by george Roger I think you may be on to something!!


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
       3hrs in surgery, 2 in recovery...trouble starting the airway pre-
       surgery.
        Sent home 30hrs,  JP drain in place 7days, catheter remains..
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
 
        "just tryin' to reason with hurricane season"....


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 8/19/2008 8:38 AM (GMT -6)   
Well - I was in the same club as the rest of you post-surgery. I barely had enough to stand in front of the toliet like a man. I was better suited for squatting. But, that soon changed and now 13 weeks out Junior seems to be about where he was - I am of course still dealing with ED. This whole thing is an act of patience...patience. RB
Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 8/19/2008 10:39 AM (GMT -6)   
I am a little more than 2 years post-surgery. From what I was told, one can lose 10% to 15% of length on average after surgery. My understanding of why is similar to Bootheel's above.

This is a somewhat issue, I believe, from just the "hiding penis" syndrome that many have right after surgery. I certainly had that for several months.

I lost a bit more than the average... I think some was due to surgery, and some was due to subsequent Peyronie's syndrome that developed. It is not fun when you notice your penis has gotten smaller; even less so when your partner(s) notice.

I hate that this subject is not discussed or clearly documented anywhere. It is clearly an issue for many men. My surgeon mentioned it in the second meeting I had with him prior to surgery. In hindsight, I think he kind of downplayed it (easy for him to do, having his whole penis!), and the other surgeons and radiologists I interviewed swept it under the carpet.

I encourage you to use vacuum pumps and injections and Viagra (or similar meds) sooner than later, and to be aggressive in treating your ED as well as any shortening.
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-18 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007); - 3rd post-surgery PSA: 0 (May 2007);
4th post-surgery PSA: 0 (June 2007); 5th post-surgery PSA: 0 (Dec 2007); 6th post-surgery PSA: 0 (June 2008)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix #3 batting average: .722 (13 for 18) Bimix #1 batting average (23 for 24) = .958
- Trimix batting average: .500 (1 for 2) Grand total 41 for 55 = .745

"Lost in the valley without my horses, no one can tell me what my remorse is..."


jackcc
Regular Member


Date Joined May 2006
Total Posts : 80
   Posted 8/19/2008 9:43 PM (GMT -6)   
http://www.phoenix5.org/sexaids/basics/penile/jack.html


Don't know if you all are familiar with this site(phoenix5) but it has lots of good information.

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 8/21/2008 9:58 AM (GMT -6)   

I’m still laughing about -> Welcome to the "turtle club".

 

It might be my imagination and or hopeful thinking but I’m now five days into using the vacuum pump and there seems to be a difference.

 

Course, I have a feeling it helps if you have/had something to work with in the first place which kind of leaves me out rolleyes


Age 53   - 5'11'   205lbs
Overall Heath Condition - Good
PSA - July 07 & Jan 08 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy


jackcc
Regular Member


Date Joined May 2006
Total Posts : 80
   Posted 8/21/2008 12:08 PM (GMT -6)   
Right. It all depends on the length before the procedure. Since the urethra runs right through the prostate, when they remove the prostate some of the urethra is lost and they pull it up and reattach it. That makes us shorter. Some people won't even notice the loss. The pump is necessary. My surgeon laughed it off and said "I didn't do anything down there". But he did. I think this is an important subject. Thats why I joined in.

B&B's World
Regular Member


Date Joined Mar 2007
Total Posts : 120
   Posted 8/22/2008 11:11 AM (GMT -6)   
We were not told about the shortening of the penis, until we asked about it well after surgery was over and we were in a follow-up check. The surgeon confirmed that one half to one inch of shortening can occur due to the removal of the portion of the urethra. It made sense logically. Though I am a believer in full disclosure, I wonder if this bit of disheartening knowledge was better to know later. After all, it was such a depressing experience for B anyway, it may have caused him even more worry. Being on the "receiving" end, I can tell you truthfully what it is like to have it just a bit shorter! Well, it is absolutely the best feeling in the whole world having B here, by my side, and able to be inside me! Like any bodily change in the one you love...its part of life, and you accept in the same way you hope your partner accepts you. The other fact is that an inch or two really does not have much to do with a woman's satisfaction in bed. Now that 18 months have passed after surgery, and we have happily resumed our lovemaking, the difference is negligible.

Age 51

Gleason 3+3

PSA from 3.2 to 4.3 in one yr

Biopsy 11/06

DRE negative

4 of 12 cores positive, one lobe, less than 10%

Inflammation only second lobe

Stage T1C Clinical Dx

PSA prior to surgery: 3.9

Da Vinci Prostatectomy 2/27/07:

PCa in BOTH lobes 5-10% of gland

Gleason 3+3

Negative tissue margins

Bladder, seminal ves, vas deferntia negative

Two inguinal hernia repairs

Catheter removed 1 wk after surgery

Full continence (no pad needed) 1 wk after surgery, then intermittent drips 4 wks out

Full erection, 12th day after surgery

2 mo’s post-op, some ED after penetration

3 month PSA 0.03

6 month PSA non-existent

1 year   PSA  non-existent

1 1/2 yr PSA  non-existent

Erectile function--up and running!

 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/22/2008 8:23 PM (GMT -6)   
Gotta love this sight, where else can you go to get this information, as serious as it is, you would have to agree that it has a level of humor to.
As for me, well the little fellow just plum quit working and beings that the libido is sub zero, I guess it doesn't matter. I think I will just join the ladies and squat.

Oh yea back to the topic, it is no doubt a real issue and I have heard several reasons as to the why, beings that my surgery was ineffective that wasn't my cause, yet I did have 44 IMRT's plus the hormones, I am thinking just the fact that it is a muscle that isn't being used probably creates some of the problem.

I will look forward to checking back with this thread.

peace and love to all
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Tony1951
Regular Member


Date Joined Jul 2008
Total Posts : 50
   Posted 8/22/2008 8:43 PM (GMT -6)   
These posts are very interesting to one who has not yet been treated. When you say the penis developes turtlitis after surger, or perhaps even radiation, I would go one step further. Gilligan (my little buddy who is always getting me into trouble) has an early bout of turtlitis which is obviously a psycho-physiological reaction to an uncertan future - I dare think what will happen when I begin HT! I had an MRI at the James Center (OSU) yesterday and today was told the cancer has not left the prostate. I've decided on IMRT with the IGRT (?) guidance. At this time it seems I'll start HT this coming Wednesday, and I after being on it for a couple of months I will begin the radiation after which I'll be on HT for an additional 2 months. ARRGGHH! I really dislike this but it is what it is.

Jeesh I'm usually a stable guy, but this is really tossing me around emotionally. Do others have similar feelings?

Stephen

-----------------
57 PSA 6.7 , DRE negative, DX on 7/25/08 Biopsy positive 2 of 12 cores with Gleasons 3+4 and 4+4 As of this date no treatment. It seems like I was diagnosed 6 months ago.

RLF
New Member


Date Joined Jul 2008
Total Posts : 14
   Posted 8/29/2008 9:05 AM (GMT -6)   

I am 59 and had my prostate removed 8 years ago and I remember dealing with the "shrinkage" issue.  I had it especially right after the cathater was removed and for several months afterward.  I didn't have it to the point that I ever had any shaft skin even come close to touching the back of the glans like some of you guys have experienced (I guess that is the only benefit us guys that have been circumcised really tight have).  I still have shrinkage especially right out of the shower and in the morning for some reason.  Have any of you all tried Jelq exercises?  I have been doing this on and off or several years and I think it helps some.  I was also wondering  if wearing boxer shorts 24/7 would let things hang a little looser all the time as opposed to bunching things up in Jockeys? 

RLF 

 

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 8/29/2008 9:52 AM (GMT -6)   
Boxers will certainly let your testicles sag. just like women's boobs, our ball sac will look more and more like something out of National Geographic as time goes by. My sister in law works in a nursing home and she warns me about wearing boxers. Says i'll regret it when someone sets me down on the toilet and my privates get a cold bath.

Actually, i asked my surgeon about this and asked him to explain. His answer is that it most certainly is NOT the loss of the inch of urethra. they must leave the exterior abdominal boundaries where they are and pull everything else down to the urethra. They pull the bladder down into the urethral canal and create a new neck for the bladder. Read Snuffy Meyers book. it has illustrations and all. if they did not do this, and simply pulled the penis up to the bladder, you would tug directly on the bladder and cause huge damage just by pulling your penis. God knows, we men do that enough.

There is trauma to the area which shrinks everything down, but this is due to low blood flow. What happens, according to my surgeon, is that you have a certain grace period where you can recover from this low blood flow and have few side affects. But, the longer it lasts, the more smooth muscle tissue is lost from the penis and surrounding area. Once the smooth muscle tissue atrophies, it is gone forever. he insists it is very strongly linked to the skill of the surgeon how much collateral damage is done and so prevent a lot of trauma and tissue atrophy. The soner you get blood flowing back into the penis, the better things will be. ED drugs, pumps, JO (even when limp) will all get blood flow going and minimize shrinkage. As many guys have said here, a pump that will stretch things out and pull in blood is probably the best tool to keep things going.

having said that, he did say that most men should not experience mush shrinkage at all. If you are getting erections as firm as you were before surgery, your penis will not be noticably shorter. Most of us have the problem that the engorgment simply is not there. Over 1/3 of the penis is inside the body. Without that full engorgement, that bulb of the penis will not push the exterior part of the penis out further. I have rarely gotten an erection as firm as before surgery, but when I did, my wife mentioned that it was good to see my back to my old self. So, i think the dr was right.

limp out of a warm shower, I think I look perhaps a tad thinner than before surgery, but length is still there. when things are under full pressure, I am perhaps 1/4 to 1/2 inch shorter, but not enough to notice or bother either my wife or me....and it's not as though I was hung like a horse to begin with! just average.

Again, it bothers us men more than it bothers our female partners. Gee, wish I could invent an augmentation procedure along with a prostatectomy so that a reward for going through all this crap would be a **** size member. Let me start disecting mice or something....

Paul
47 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6      (Biopsy 3/07 just suspicious)
10/07 PSA 5.06   (Biopsy 11/07  1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC  www.roboticoncology.com
Saved both nerve bundles.
Path Report:  Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at six weeks
Pad free on March 14 - (10 weeks.)
ED - Take 100mg viagra every night.
Totally usable erections at 10 weeks.
 
 


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 8/29/2008 11:59 AM (GMT -6)   
Awww Man...you mean I will go back into the single digit again? Haven't been there since I was a teenager...just joking

Seriously though, thanks to everyone including B&B Worlds for posting. I am scheduled soon for surgery and my surgeon as well as two others never brought this subject up. Sure they talk about the potency problem but not the length. Both my wife and I talked about this to reassure each other that it is just part of life and that we will deal with life as it comes our way.

So thanks for the heads-up (I know bad pun) from everyone. I may join the "Turtle Club", but I will become a Ninja Turtle when all is said and done.
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
Robotic Surgery scheduled Sept 18, 2008


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 9/15/2008 11:58 AM (GMT -6)   
Hi guys - hate to bring this up again, but I have been lying to you.

At 19 weeks post op I assume I am pretty close to being where I am going to be. I was not hung like a stallion to begin with, but now I have two observations: 1) I am not sure I am ever going to be able to stand and whizz again. I am still using thin pads, but even without them I'm not sure I can clear my trousers, and 2) my pubic hair never used to get in the way of ANYthing. Now it gets in the way of EVERYthing. I've taken to trimming it back with scissors. How can THAT not change your perception of what is happening down there?

I also have a stunning dimple in my abdomin right at the base of (and above) my penis - so deep I can stick my finger in there almost up to the first knuckle. I am pretty darned sure it was not there before the surgery.

Imagine an inflated balloon with a straw sticking through the wall of the balloon - but permanently attached to the balloon. If you reach inside the balloon and pull on the straw it creates a dimple on the outside of the balloon where the straw enters. I feel like that is what has happened to me - rightly or wrongly.

Just reporting what I am seeing.

kcragman
Age: 52
March 2006: PSA 2.5

Dec 2007: PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.

March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.

May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph nodes and associated glands all appear to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 9/15/2008 6:28 PM (GMT -6)   

Kcragman, I guess the site of your dimple is where you had an incision. I had a much smaller dimple for a time where the JP drain went it, but that dimple has pulled out. I guess yours will too, given more time.

I had a definite shortening of flaccid length immediately after surgery, and never had an erect length that I could check! But with "penile therapy" (which means regular erections) my length, either way, seems about the same as before surgery.


Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0 


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 9/16/2008 11:29 AM (GMT -6)   
Piano - No, nowhere near an incision. All of my incisions are at the belly button level or above (more or less). This dimple is right at the base of my penis.

My drain was plugged in through the left-most incision.

I am ordering a pump and I hope that helps with one or more of my issues.

kcragman
Age: 52
March 2006: PSA 2.5

Dec 2007: PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.

March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.

May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph nodes and associated glands all appear to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.

New Topic Post Reply Printable Version
27 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Tuesday, September 25, 2018 8:45 AM (GMT -6)
There are a total of 3,006,397 posts in 329,333 threads.
View Active Threads


Who's Online
This forum has 161832 registered members. Please welcome our newest member, cocospinelli.
297 Guest(s), 11 Registered Member(s) are currently online.  Details
Jack@, HeartsinPain, cashlessclay, Steven Hazlett, 3timechamp, Darla, dmanIndy, InTheShop, cocospinelli, Robertmp, iPoop