UI and ED Seminar - Dallas Tx Aug. 21st

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kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 8/14/2008 10:22 PM (GMT -6)   
    Hey Guys.  There will be a Urinary Incontinence and ED Seminar at the UT Southwestern Medical Center in Dallas on Thursday the 21st of August, at 6:30 p.m. The guest speaker will be Dennis Holt.  Former drummer of rock band Kansas and a PCa survivor.  I do not know what UI or ED issues he faced but he must have had some to be a speaker.  The phone number for more info is 214-648-0202.
    I will be there for my AUS surgery.  I may try to make it just to see what is said.
 
    KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
     


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 8/15/2008 7:27 AM (GMT -6)   

KW,,

Dennis Holt spoke in Dallas back in June at a same kind of seminar.  I heard him then.  My AUS/IPP surgery was already sceduled, but it was very, very informative.  Dennis had a "double prostatectomy", the only one I've ever heard of. 

He had the robotic, which left part of the prostate in him, so they had to go back with open surgery to get the rest.  He suffered the worse incontinence of anyone I have ever heard and he shares all the frustations with that and his attempts to regain erections... the same struggles many of us have with repeated failures.  His penile prosthesis and the new sphincter solved his problems.  However, he recently had to have a male sling installed to correct some new leaking.  Acording to him, that procedure worked to make him dry again.

There were Q & A's and he was very, very explicit about how things were and how things are today.  I would encorage everyone with similar issues to hear him.  He travels from city to city with his message, financed by the AMS and local clinics, such as Southwestern Medical Center.

I may try to attend the seminar again.  If so, I'll look you up if you are there. 

Gene214

PS. I am to go in Monday for my devices to be activated.  I have had some issues with my incisions healing.  Hopefully, everything is better and will not hinder my activation.


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP activation appointment: 08-18-08


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 8/16/2008 8:09 AM (GMT -6)   
KW & Gene,

I was reading the board and saw your posts.
Thanks for the information on the seminars.  I may be in the Dallas are near Southwestern at that time.

At 18 months post -surgery (I had blood drawn for a PSA yesterday.), I'm back to my pre-prostatectomy life (albeit with ED) and don't get to visit chat rooms much these days.

I often think of all my old friends here fondly.  
I thought of KW just yesterday when we were looking for someone to weld stainless steel..... cool

Best wishes to both of you on your AUS surgeries!

Sincerely,

ICTHUS!
CCEDAR



2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
OPEN R P 16FEB07 at age 54. 1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  PSA: 6 mths <.003  :)   9mths <.008
:)  1 Yr <.008 :) 
18mths <.008 :)  
  5 Year Colonoscopy 19FEB08:  Clear!
Texas Hill Country FRESH Produce Department Manager  - Have you had your 5 colors today?My Threads?

Cedar Chopper's Page & Updates ~ Radical Prostatectomy ~ Feb '07
"Zen and the Art of Orchestral Erectile Function"

"Zen and the Art of Symphonic Continence"

Post Edited (Cedar Chopper) : 8/29/2008 4:38:54 AM (GMT-6)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 8/16/2008 10:27 PM (GMT -6)   
Hey Cedar, Thanks for the well wishes.  If your in the area I should be at the seminar.  Would be nice to see you.
 
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
     

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