Dennis Holt spoke in Dallas back in June at a same kind of seminar. I heard him then. My AUS/IPP surgery was already sceduled, but it was very, very informative. Dennis had a "double prostatectomy", the only one I've ever heard of.
He had the robotic, which left part of the prostate in him, so they had to go back with open surgery to get the rest. He suffered the worse incontinence of anyone I have ever heard and he shares all the frustations with that and his attempts to regain erections... the same struggles many of us have with repeated failures. His penile prosthesis and the new sphincter solved his problems. However, he recently had to have a male sling installed to correct some new leaking. Acording to him, that procedure worked to make him dry again.
There were Q & A's and he was very, very explicit about how things were and how things are today. I would encorage everyone with similar issues to hear him. He travels from city to city with his message, financed by the AMS and local clinics, such as Southwestern Medical Center.
I may try to attend the seminar again. If so, I'll look you up if you are there.
PS. I am to go in Monday for my devices to be activated. I have had some issues with my incisions healing. Hopefully, everything is better and will not hinder my activation.
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP activation appointment: 08-18-08