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kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 8/18/2008 8:28 AM (GMT -6)   
Tuesday, 8/12: Had my 3 month PSA check, and turned in my pads from the previous 24 hours. I had a horrible day for incontinence that day for some reason. They said my net urine weight was 615 grams - about 1.3 pounds.
 
Wed: Started trying what I believe to be are elevator kegels.
 
Thurs & Fri: Noticed improvement.
 
Saturday: Inspired by Salty Clark's home trials, I discovered I had a gram scale in the house and I started my own trial. I carefully weighed my pads on Saturday (6 pads) and Sunday (5 pads). All of them were light - and Sunday was significantly lighter than Saturday. I weighed the individual pads, and subtracted the dry pad weight (25 grams). For the two days, my average net urine weight was 162.5 grams - or about 5.5 ounces, or about a third of a pound.
 
Options are:
 
1. Tuesday was way worse than I thought and I have been making steady progress all along.
2. The doctor's office made a mistake. Did they subract the dry pad weight?
3. I am doing something wrong with my trial at home, although I am not sure what it could be.
4. I am hitting the magic "getting better overnight" syndrome and this is all coincidence.
5 After 14 weeks I finally figured out how to do a kegel, and they work almost overnight.
6. I am a complete mental head case.
 
It is too hard to do this during the week (capturing wet pads at the office is no fun), so I'll try again next weekend.
 
In any event, this is raising my spirits, and making being incontinent a little more interesting. (As an ever-encouraging friend told me, "Well, at least you are #1 at #1.")
 
I apologize to anyone who injured themselves falling after they fell asleep reading this email.
 
Live on!
kcragman 
Age: 52
March 2006: PSA 2.5

Dec 2007: PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.

March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.

May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph nodes and associated glands all appear to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 8/18/2008 10:13 AM (GMT -6)   

 

hahahh...Sounds like improvement to me!  And I love that spirit as well.....Live on kcragman...LIVESTRONG!! Live well... 


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
       3hrs in surgery, 2 in recovery...trouble starting the airway pre-
       surgery.
        Sent home 30hrs,  JP drain in place 7days, catheter remains..
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
 
        "just tryin' to reason with hurricane season"....


Salty_clark
Regular Member


Date Joined Apr 2008
Total Posts : 95
   Posted 8/18/2008 10:31 AM (GMT -6)   
Great news Kc...I have never been able to get down to 162 grams.  Based on my experience testing extra liquid intake and more frequent bathroom trips, I would say that you are making definite improvement.  The only suggestion I would make is that you keep a record of your time intervals in your trips to the bathroom.  Obviously the more frequent the trips the less that goes in the pad.  In any case this indicates that your spincter is working good; provided that is that you spent a good amount of time during the weekend on your feet rather than being a couch potato like me.  My legs do not permit me to do much walking or standing so I compensate somewhat in my calculations by stretching out the time interval of my trips to the bathroom.
Another observation:  You say your pads are 25 grams...this is very light.  Mine are 50 gram pads (Depends Belted Shields).  I use 2-3 pads every 24 hours with an exception now and then going to a 4th pad.  I don't know particularly what the significance of the lighter pads are for you except that I think if I were using the lighter pads I would be going more frequently to relieve myself and change the pads more often.  If you don't mind me asking, how often do you go?  Maybe I should switch over, I don't know.

Age 75 at DX 76 on 9 May 08
DRE positive with nodule 15 Jan 08
PSA 3.8 18 Jan 08
Biopsy 11 Mar 08 Gleason 8 (4+4) on the right 3 out of 12 positive <5%. Gleason 7 (4+3) on the left 1 out of 11 positive <5%.
Bone scan and CT scan Negative 12 Mar 08
Robot Assisted da Vinci prostectomy with Dr Fagin in Austin scheduled for 30 April 08.
- - - - - - - -
da Vinci successfully completed by Dr Fagin as scheduled.
Path Report:
Gleason downgraded to 3+4=7
Tumors confined to the prostate.
Bilateral tumor on right side 5 of 10 levels and on left side tumor present in 9 of 10 levels.
Margins Negative.
Extraprostatic Extension Negative
Seminal Vesicle Invasion Negative
Stage pT2c
As far as it goes between you, me and the fence post I am cured. But I am required to keep an eye out for the PSA due  toward the end of June.
06-24-08 <0.1 Undetectable.
Free Psa Undetectable also.


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 8/18/2008 10:58 AM (GMT -6)   
Salty: You know, I don't really know how often I go. I have not paid attention. When the catheter first came out, EVERY TIME I stood up I just walked straight to the bathroom. I was so uncomfortable down there that I just could not tell if I had to go or not. 15 weeks later, things are much closer to normal, still not perfect, I still do not always get an identifiable urge to go. Sometimes I just think, "Man, my pad is wet. Why?" Sometimes I go to the bathroom just because I have not been in a while, and I'll have a surprisingly large whizz, but I never felt overly urgent.

I'll try to keep track of that.

Pads? I use CVS men's guards during the day, and Serendipity guards at night (I think the word Teva is in there somewhere). The CVS pads are thick and absorbent, and the Serendipity pads are very thin and light - and not overly absorbent. I was surprised they weighed the same. But both pads are probably less absorbent than yours, which is why I have to use more of them.

Why those pads? Before my surgery, a previous PCa surgery friend gave me his left over Serendipity pads - he was dry in about 3 weeks. I quickly found out THEY wouldn't cut it with me during the day. So I tried CVS and liked them. I've tried others and gone back to CVS. I like the Serendipties at night because they are very thin and light, and leaking at night is not a big issue with me.

kcragman
Age: 52
March 2006: PSA 2.5

Dec 2007: PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.

March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.

May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph nodes and associated glands all appear to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 8/18/2008 11:26 AM (GMT -6)   
great news. i took a bio-feedback session before surgery on kegel's and had a horrible experience. the nurse told me to act like i was passing gas and to stop. i could never find the muscle. they stuck a rod up my rear and shocked me so i could feel the muscle contract. when i had the catheter removed, the doctor said to pee and then stop. he said you did your kegel. from that point forward i got it. looks like you are on your way... hang in there. i now know when i pass gas i pee at the same time (multi-tasking:-)
 
Age 48
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
surgery may 9, 2008 - houston, tx
pathology report -gleason 8
margins clear
4 week and 6 week PSA >.04 (undetectible)
12 week PSA <.04
continent at 10 weeks (no pads!)
kegel's twice a day 20 reps


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 8/18/2008 9:17 PM (GMT -6)   
Hope things continue to improve for you KC.
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
     

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