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hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 8/25/2008 5:49 PM (GMT -7)   
I haven't posted in awhile, but I received so much advice and support from this site at the beginning of Larry's journey, that I wanted to post again. We started Hospice last week and it was a very emotional decision for the family. Even though the tumors continued to grow with chemo, Larry felt like we were at least trying something, but ultimately, the chemo was affecting his immune system and he ended up in the hospital 3 times this summer with complications. I would like to ask for prayers, good thoughts--whatever anyone's preference is--that Larry will not experience anything we cannot handle. His doctor has been very compassionate and supportive and has assured Larry that he will continue to keep his pain in check. We had hoped for a longer journey, but it is not to be.
I would like to thank all those who shared their stories and advice with us at the beginning. This site has been a valuable asset to us. I may not have posted lately, but I have continued to check-in on other's journeys throughout the summer.
May your journeys be full of zeros and may your lives be filled with love and hope.
Karen eyes
Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st round Chemo
6/18-20/08--2nd round Chemo
7/2/08--blood clot--Coumadin started
7/10/08--Stop chemo--cancer not responding
7/20-24--hospitalized for some type of seizure
7/24--New chemo given-no response
8/20/08--Start Hospice
 
 
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 8/25/2008 5:58 PM (GMT -7)   
Karen-
I am so sorry. Please know that you and Larry will be in my thoughts and prayers.

Chayna
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/25/2008 5:59 PM (GMT -7)   
My goodness.
My prayers will be said everyday for Larry. Thank you for having the strength to update us. I am deeply saddened by this news. I will pray the Lord also gives you strength and peace during these very difficult times. All my best to you, Karen...

May God Bless you both, and your entire family!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 8/25/2008 6:58 PM (GMT -7)   
I am truly sorry to hear the news that the battle has not gone well. You both will be in my thoughts and all the good wishes I can muster are headed your way. Let Larry know there are many, many here who hold him in their thoughts at this difficult time for you both.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable
PSA August 08 <.001 undetectable


Every time I see an adult on a bicycle I no longer despair for the human race.
H.G.Wells


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 8/26/2008 4:57 AM (GMT -7)   
Karen - our thoughts and prayers are with you during this time. May the journey be a peaceful one for you, Larry and your family. God bless you all.....kat and jeff
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!
3/08 - 18 mo PSA <0.1
switched to Levitra - works much better than Viagra & Cialis - fewer side affects
summer of 2008 - have had a few erections with no drugs! yeah!!


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 8/26/2008 6:03 AM (GMT -7)   
Karen

I am so sorry to hear of this news and you and Larry will be in my thoughts and prayers daily.

Norskie
norskie
Current age 50, Age at Dx-48 PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3
March 27th PSA .422 Begin Salvage Radiation April, 14 2008
Radiation Complete June 4, 2008 36 treatments
August 5, 2008 PSA .09 or < .1 again
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 8/26/2008 7:05 AM (GMT -7)   
As with others, I am sympothizing with your extreme difficulty. I hope the God of peace will strengthen all of you during this difficult time. Certainly we will be praying for you.

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 8/26/2008 8:10 AM (GMT -7)   

 

..I'm so very sorry to hear this. I followed your post from before my first signing on the site. Your hope, love and your compassion for the man you love was/is inspiring...You Ma'am, as well as Larry have my humble and deepest  respect....along with the my most positive thoughts and prayers.....God bless ya' both


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
       3hrs in surgery, 2 in recovery...trouble starting the airway pre-
       surgery.
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 8/26/2008 8:32 AM (GMT -7)   
Dear Karen and Larry,

I am so sorry to hear that things are not going as well as as was expected. Please know that you are both in my thoughts and prayers.

Magaboo
Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05


KC9AOP
Regular Member


Date Joined Jun 2008
Total Posts : 85
   Posted 8/26/2008 9:49 AM (GMT -7)   
Karen -

I'm sorry to say that I am personally familiar with your situation and my heart goes out to you and Larry. I will pray for you and your family in my daily prayers. The Lord will see both of you through this.

Jim
I am age 47 - Father, Paternal Uncle and Maternal Grandfather had/have Prostate Cancer.
Father 74 years old, PSA = 10.6 Gleason = 5 + 5 = 10 (very aggressive) and high involvement in all cores. Seed therapy is the only option. Father died cancer free.
06/04/08 - At physical DRE normal, PSA test returns 4.4
06/20/08 - First Urologist visit. DRE and ultrasound finds nothing conclusive. Doctor says biopsy is the only safe way to go. Prostate volume is 40 grams.
07/11/08 - PSA test returns 4.1. Scheduled the Stereotactic Transperineal Prostate Biopsy for 7/21
07/21/08 - Had the biopsy.  Not so bad but sore on day 2. Back to work tomorrow
07/23/08 - Pathology comes back NO CANCER DETECTED!
08/01/08 - Urologist calls and says High Grade Prostatic Intraepithelial Neoplasia ("PIN") was found in my biopsy (read pre-cancerous leisions)


R&PK
New Member


Date Joined Jan 2008
Total Posts : 17
   Posted 8/26/2008 10:11 AM (GMT -7)   
We are very sorry and sad for you and Larry.   You will be assured that my prayers will include your family.   Our lives were introduced to Hospice with my mom's ovarian cancer struggle.   We felt they were so passionate and comforting and we hope your experience will be the same.   God be with you.  Pat and Roger

Age 55
PSA 2005 - 2.5
PSA 2007 - 4.9
Biopsy - Dec. 2007.  1 of 12 cores - 15% cancer
Gleason 3+3
DaVinci - 4/24/08 - Dr. Michael Esposito - Hackensack Univ. Hosp., NJ
Post Op. Gleason 3+4
Both nerves spared
 
 
 
 
 
 
 
 
 
 
 
 
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 8/26/2008 11:54 AM (GMT -7)   
Karen,

I'm so very sorry to hear this. From the beginning, your posts have shown your deep love for Larry and the hope that he would be able to buy himself more time. I admire the way he tried to do what he could to rid himself of this rotten disease, with you by his side.
You and Larry and family will be in my thoughts. I wish you peace.

Susan

smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 8/27/2008 2:26 PM (GMT -7)   
Karen
 
I can only add that you and Larry will be in our thoughts and prayers.
 
If you ever need an ear let me know. My email is always available
 
Richard
Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Suspected lymph node involvement
Lupron & Casodek May 08 for 2 years
Completed 25 IMRT and 17 PBRT U of Florida Proton Therapy Institute 7/24/08
Latest CT showed no trace of tumor in lymph node area
PSA .21, free PSA .08, Percent free PSA 38.1, testosterone 14.6
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASON10.COM
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 8/27/2008 3:52 PM (GMT -7)   
Karen-

I, too, will keep you and Larry in my thoughts. Please let him know that there's a whole bunch of us wishing peace for both of you.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


Paralleli
Regular Member


Date Joined Jul 2008
Total Posts : 123
   Posted 8/27/2008 6:37 PM (GMT -7)   
Karen –

I’m so sorry. We’re wishing you both a peaceful journey……
53 yrs
PSA 4.8
T1c – Gleason 3 + 3
IMRT 1/07 thru 2/07 (42 treatments)
PSA 6/07 – 0.76
PSA 12/07 – 0.36
PSA 6/08 – 0.72


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 8/27/2008 7:24 PM (GMT -7)   
Dear Karen,

Mary Lu and I have you in our thoughts and are hoping you and yours will find peace...

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Start chemo in September 08
"Patience is essential, attitude is everything."


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2268
   Posted 8/27/2008 9:27 PM (GMT -7)   
I can't imagine how difficult this has been for you and Larry. May you both know peace and in the midst of this....Tim


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/28/2008 3:13 AM (GMT -7)   
Karen thank you so much for writing, and I to will ad my prayer to the list. Through my ministry and website I get to hear from several people per month that deal with similar circumstances and one thing is for sure it will always be difficult. Please stay in touch with us here and please keep us posted as to Larry's condition. If you would ever like to talk away from the forum just send me an email.

peace and much love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 8/28/2008 4:44 AM (GMT -7)   

Thank you all for your kind words, prayers and support. I would like to acknowledge each of you individually, but since that is difficult, please know that each of you have continued to touch our lives and are a great source of emotional support.  May you all feel the gentle breeze of hope.

Thank you,

Karen eyes


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st round Chemo
6/18-20/08--2nd round Chemo
7/2/08--blood clot--Coumadin started
7/10/08--Stop chemo--cancer not responding
7/20-24--hospitalized for some type of seizure
7/24--New chemo given-no response
8/20/08--Start Hospice
 
 
 


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 8/31/2008 11:11 AM (GMT -7)   
Karen,
I can't do any more than add my thoughts and prayers to all the others you have received.
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear. February 2007 - Three to fo ur pads a day, no erection with viagara. April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.July, 2007 - Six Month Post-op: PSA 0.04 No change in ED. October, 2007 - Nine Month Post-op: PSA back down to 0.02!Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment. January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.
July, 2008 PSA 0.04 again, will recheck in October. Use .15cc Trimix injections, partial success. Will try .20cc.


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 9/3/2008 6:40 PM (GMT -7)   
Oh Karen, How strong you are.....I thought of my favorite quote by Emily Dickinson:
"Hope is the thing with feathers... That perches in the soul ...That sings the tune without the words,...And never stops at all...."
I pray that you have peace....Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 9/4/2008 1:59 PM (GMT -7)   
Karen,

I shall keep you in my thoughts and prayers.

Frank
Diagnosed 01-08-08 @ 53 years old 
DRE normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
PSA @ surgery 6 
Bone and Ct scans negative
clinicaly Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage Erectile function better with Viagra
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on top of prostate. 1 positve margin measureing less than .5 ml at urethra and bladder..
Six week PSA < 0.1 , 4 month PSA <.05 Gen II test.  Urologist recomends to hold off on Radiation and watch PSA closely. Oncologist and Radiation Oncologist seem to lean to doing pre-emptive radiation.Uroligist says 50/50 chance of PSA re-occurence.  
I have decided to hold off and see for 3 months.
Next PSA October...
 
 
 
 


Bob & Wife
Regular Member


Date Joined Apr 2008
Total Posts : 100
   Posted 9/4/2008 7:06 PM (GMT -7)   

We are also keeping you in our thoughts and prayers.

Bob & Sherry


Age 59 at diagnosis
PSA 1.7  Nodule felt. Biopsy 4+4 T2B
1-30-06 Surgery, Infiltrating adenocarcinoma.Nodes & margins clear
Post op Gleason 7  T2c 4+3 PSA .04
12-07 PSA jump .14  (11 Months)
12-07 Nodule felt -  biopsy negative
PSA .16
PSA .17
4-3-08 PSA .32 ouch
4-15-08  Nodule size increased.
5-8-08 PSA still .32
5-15-08 Bone scan clean, nodule size increased. Biopsy scheduled for 5-22-08
5-30-08 Biopsy came back cancerous. Next step consultation with oncology 6-5-08 for further scans & test.
 
6-19-08 Starting Radiation, treatment facility two hours from home.


DanielleS
Regular Member


Date Joined Jul 2007
Total Posts : 57
   Posted 9/5/2008 9:45 AM (GMT -7)   
Karen, my prayers are with you and your family.  You have been so strong with all you have faced.  I hope Larry remains comfortable and this can be a time of peace and love for your family. 

JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 9/9/2008 9:07 AM (GMT -7)   

Karen:

You and Larry are in my thoughts as well.

Regards,

JustJulie

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