Probable implant in my future...and radiation is also likely

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 8/25/2008 9:26 PM (GMT -6)   
Hello HW folks.
 
Do not check in here as regularly as I once did, but do check in some.  Hope all are doing well.
 
My incontinence is still with me, but is G-R-A-D-U-A-L-L-Y disappearing.  A few dribbles a day has turned into a very few dribbles a day, so in the grand scheme of things, I cannot complain.
 
ED is still with me.  Vacuum pump still in use for therapy.  Injections used for therapy and happy times too....lol...but the hit and miss nature of things and inconvenience are not fun.
 
If no BIG improvement on the ED front after 18 months (less than 9 months from now), I plan to have an implant, assuming my overall health allows.
 
Have spoken with two implant patients in my area and am having lunch Tuesday with one of them.  Gaining knowledge from others in the same boat is priceless.
 
All the best to each and every one of you.
 
DanMan
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 8/26/2008 7:02 AM (GMT -6)   
hey Danman, hang in there with the ED issues. 9 months is a long time to have things improve! you may not need an implant. it is good to hear from you again. kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!
3/08 - 18 mo PSA <0.1
switched to Levitra - works much better than Viagra & Cialis - fewer side affects
summer of 2008 - have had a few erections with no drugs! yeah!!


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 8/26/2008 8:41 AM (GMT -6)   

Thanks, Kat.

I have not given up hope on the ED front, but accepting the fact that I might need an implant gives me something to look forward to instead of constantly fretting over what I am dealing with today.

In the meantime, I take my Viagra 3 times a week, use the vacuum pump and inject.

DanMan


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 8/26/2008 6:38 PM (GMT -6)   

Hi Danman, nice to hear from you again. Seems like you're making good progress and the important thing is not to give up too soon. Even with nerve sparing, it can take two years to recover, and I have heard reports of recovery taking as long as four years.

Like you, I'm using the VED and injections. No Viagra or similar. Having sorted out my technique, I am now having 100% success with the injections. So even if I have to inject the rest of my (active!) days, I don't see an implant in my future.

I hang out in other forums and those who have had implants all speak highly of them. So they are certainly an option for those who have given up hope of a natural recovery. Enjoy the Tuesday lunch, and please do let's know what you discover.
Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0 


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 8/26/2008 10:41 PM (GMT -6)   

Danman Bob,

Great to have enjoyed lunch with you today!  I hope I answered your questions to your satisfaction.  I clarified I am at the learning stage of the implant, having just been activated.  At this point, I am pleased with with them both (AUS & IPP), but am expecting them to get better with use and over time. 

As I mentioned, no need to hurry, but perhaps you can have hope in the event nothing acceptable to you works.  With this disease (and all diseases) we all must have hope that things can and will get better in time. My purpose in being so frank is to help others who may be considering the options I took.

Gene214 


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, August 19, 2018 4:16 AM (GMT -6)
There are a total of 2,994,288 posts in 328,118 threads.
View Active Threads


Who's Online
This forum has 161267 registered members. Please welcome our newest member, Kweenkie.
105 Guest(s), 2 Registered Member(s) are currently online.  Details
Zimica, F8