New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

lemonlime1
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 8/27/2008 9:13 AM (GMT -7)   
 hi all im at 4 weeks post op . i was wondering if u could help me on this i was going through 8 pads a day until 2 days ago i had my first urge to urinate . i was like alittle kid called my wife , and then boom the next day it started leakin all over again , seems to be worst at about 8;00 pm at nite while sleeping i get up and go . will i get control back eventually    thank you all for your help         lemon lime                                                                                                                                    
 

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 8/27/2008 9:30 AM (GMT -7)   
    Hey Lemon,  Do not get discouraged.  You are only a few week out from surgey.  MOST people will get control back in weeks or months.  Just listen to your body.  Do your Kegeals.  Try not to worry about it.  You will probalby dry up in the normal time frame.  I was not so lucky.  But I am still alive and well!
    Hang in there,
    KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 8/27/2008 9:32 AM (GMT -7)   
Hi lemonlime1,
If you read thru this forum, you will find that most men take between 2 and 6 month to get dry. Some are a little quicker; some, unfortunately, take longer. I would say that you are right on track for 4 weeks after RRP. Patience is an absolute MUST for this darn disease. Do your kegels and try to walk as much as possible and in due time I'm sure you'll be just fine.
All the best to you in the years to come.

Magaboo
Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 8/27/2008 9:35 AM (GMT -7)   

Lemonlime,

Sounds like your doing great.  You will find that you will experience ups and downs with this issue. (sorry for the pun). The urge to urinate is a great thing.  I found that my muscles down there got tired at night.  800 p.. sounds about right.  We are all different in this recovery thing.  Keep a log of how many pads you use.  You will be surprised at how fast you are getting better.  I noticed getting better day by day then week by week, and so on. I was so happy when after walking and physical activity I was able to have urine left to discharge.  That is when I knew I would soon get back to normal.

I am at 5 months and just using a liner for insurance actually.  It takes time.  My bladder issues are just about normal as far as getting better.  I am lucky for my E.D. issues are doing great for 5 months in recovery.

Good luck to you.

Frank

 

 

 


Diagnosed 01-08-08 @ 53 years old 
DRE normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
PSA @ surgery 6 
Bone and Ct scans negative
clinicaly Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage Erectile function better with Viagra
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on top of prostate. 1 positve margin measureing less than .5 ml at urethra and bladder..
Six week PSA < 0.1 , 4 month PSA <.05 Gen II test.  Urologist recomends to hold off on Radiation and watch PSA closely. Oncologist and Radiation Oncologist seem to lean to doing pre-emptive radiation.Uroligist says 50/50 chance of PSA re-occurence.  
I have decided to hold off and see for 3 months.
Next PSA October...
 
 
 
 


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 8/27/2008 9:44 AM (GMT -7)   
Lemonline1:

I'm 16 weeks post op, still using 6-7 pads a day, but improving. The vast majority of guys will regain control, it just takes time. AND - everybody seems to be different. I wrote a post called "Progress 2" a couple days ago. That has some possilby useful information about how your body might be reacting.

It seems like I wear out anywhere from 12:30 - 5:50 PM. After that I dribble a lot when I walk. I sleep on my back at night and I usually only have to get up once. Some guys on this board get up 3-4-5 times a night. Everybody is different.

For the first few months all you can do is kegel and wait. It is frustrating.

Good luck,
kcragman
Age: 52
March 2006: PSA 2.5

Dec 2007: PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.

March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.

May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph nodes and associated glands all appear to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 8/27/2008 11:23 AM (GMT -7)   
hey there lemon lime   franks right , italways leaks at night when your tired and the mucsles are weak ,, worse if you drink ill be three months on the 29th and im pad free and that was at 9 weeks, you sound VERY similar to me youshould see serious results at 10weeks to 3 months and getn this , ithought these guys were crazy but it really did happenover night , and i really tried as i saw progress to wean myself off the pads on the weekends , DONT THINK YOU CANT BECOME PHSYCOLOGICALLY dependant on the pads,good luck  my brother...................dirt

Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 8/27/2008 11:59 AM (GMT -7)   

 

  ...kragman's right, we're all different...I'm dry at night and will dribble through the day some....especially when lifting heavier objects. It'll happen, walk, do your kagels keep pushing foward and stay positive...

   ...and Dirt, I have to agree with you as far as becoming somewhat phsycologically dependant on the pads. yep' sure do.....I think I'm gonna do that weekend weaning thing your talking about....cause' I think sometime in your head you think, especially while out in the garage or the yard, what the heck....just alittle dribble won't hurt...I DO have my pad on!!  See, now that's something that's been on my mind, that very subject....and bam, someone on the forum has experienced the same thought.....what a site this is!  Thank you my brother!!
 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
       3hrs in surgery, 2 in recovery...trouble starting the airway pre-
       surgery.
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 8/27/2008 1:07 PM (GMT -7)   
I am 14 weeks out and am almost dry (one pad a day and mostly dry). I started significant improvement around week 12. It is obviously worse in the PM, and when on the feet - especially picking something up. Someday I hope we can all look back on this stuff and smile!

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

lemonlime1
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 8/28/2008 9:47 AM (GMT -7)   
hi all that replied ty 2 u all god bless you all and rbinCountry you hit it on the head with hope some day we can all laugh about this i tell my wife that all the time honey i say hope next year we can laugh about this . only thing i cant figure is the doctors office seems more concerned about the erection tha the incontinence id r5ather urinate rite im 47 and i could find oter means of pleasure with my wife rather p rite wat u all think lol lemonlime

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 8/28/2008 9:08 PM (GMT -7)   
I know all too well how you feel Lemon. you are still new to the game. Hang in there.
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, February 25, 2018 8:53 AM (GMT -7)
There are a total of 2,933,139 posts in 321,824 threads.
View Active Threads


Who's Online
This forum has 160491 registered members. Please welcome our newest member, UCtough/IAMtougher.
416 Guest(s), 10 Registered Member(s) are currently online.  Details
journeytoheal, CaliJR, Uniform Charlie, Purple111111, Saipan Paradise, Gutsycal, InTheShop, OriolCarol, leo77, Charlie1950