Need Good Info Re: Abdominal Prostectomy

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VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 8/29/2008 12:21 PM (GMT -6)   
HI all!
 
All is well on our end but a friend is having the abdominal Prostectomy on Wednesday. I believe its the open surgery, not robotic. They are really in the dark about it all and because Kent had Perineal, I don't know much about this one. I looked all thru the posts but am overwhelmed at trying to find one of you that had this and your journey. I would like to give them a print out to help them thru this time. I want to include the good and bad because of the fact they really don't understand all that it involves.
I have told them about this site but they both work so much they can't take the time. I know how important it is but they just don't realize yet.
Any of you that would like to give me your journey would be much appreciated. I will take them all, so they can see different things that can happen.
Thank you so much!
 
Cindy
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
July 08 (3mths post op) Cialis 10 mg every other day. Right now, things are not looking so good in that department. 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/29/2008 12:50 PM (GMT -6)   

Hello Cindy ~ And Kent!
Basic description of RRP or Radical Retropubic Prostatecomy ~ http://en.wikipedia.org/wiki/Radical_retropubic_prostatectomy

Technical Description : http://www.emedicine.com/med/TOPIC3054.HTM

Da Vinci is becoming more popular but the results are very similar. 

Love ya!

Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1
I will continue HT until May '09. 
Years in Remission (3/23/07): 1
Visit my Journey at:
And at:
 
STAY POSITIVE!
 
 


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 8/29/2008 2:46 PM (GMT -6)   
HI Tony!!

Thank you! I have printed out what you gave me for them. Do you know of anyone on here that I could contact that posted their journey with this surgery? I know I saw one not too far back but I can't remember who it was. I would like to have a personal account if its possible.
Hope you are doing well. Write to me and let me know.
Kent had colonoscopy today. No cancer, no polyps. Yay!

Love
Cindy
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
July 08 (3mths post op) Cialis 10 mg every other day. Right now, things are not looking so good in that department. 
Aug 08 PSA 0.04 Yay Again!!


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 8/29/2008 3:12 PM (GMT -6)   

    Cindy, If you want a "passed with flying colors" story.  Look for Biker90.  He blazed through his "open" surgery better than most.  If you want one with some difficult twist and turns you can look at mine, KW's Journey.  Mine will be a way back on the forum.  My latest battle has been choosing and having the Artificial Urinary Sphincter (AUS) installed to give me my urine control back.

    Please tell them not to get scared because of my story.  I was one of the few (less than 5%) people that have the urinary problems I ended up with.  But know that no matter how bad things seem sometimes you can always move forward.  Incontenance does not end your life.  I makes you think about things more.  But in the past two years I have gone to the PGA Golf Tournament, an Alaskan Cruise, a work trip to Ohio, vacations and many other family outings.  All without any major malfunctions.

    You can contact me at the e-mail address on my profile and I can send you My Journey also.  I am also willing to share my story on the phone if you wish.

    We wish you well and feel free to lean on us anytime.

    KW


    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Navy corpsman
Regular Member


Date Joined Aug 2008
Total Posts : 61
   Posted 8/29/2008 5:47 PM (GMT -6)   

VaFan-

I've had the open procedure and I live in VA.  E-mail your digits and I'll call you tonight.

- John


Age:  44
We have a family history of PCa.  My Dad and uncle died from it at 65 and 53. My PSA velocity increased in the last 2 years and I had to talk my GP into refering me to a urologist.
Biopsy results:  5 of 11 cores positive, all 30%. Gleason 6. T1c. PSA 2.53  Date of biopsy 15MAY08.
Open RRP at Johns Hopkins with Dr. Partin on 09JUL08.
Pathology report:  Gleason 6, pT2, neg. margins, 0 lymph node and seminal vessical, organ confined, I lost 1 nerve bundle and 22 lymph nodes.
As of today, about a month after surgery, I feel at about 80%. Urinary control seems to be improving. Little Elvis has taken a nap and has not awakened yet. I hope when he wakes up he is well rested because he is going to get one heck of a workout.
 
 


Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 199
   Posted 9/1/2008 9:56 PM (GMT -6)   
Hi Cindy,
I had open surgery on March 5th 2008.
Please read my signature below. My wife and I had our 39th anniversary on Aug 31st. blush We celibrated by having sex as good as pre op. I am continent & I get a 75% erection naturally and a full 100% with
10mg Cialis. It all depends not on the procedure but the experience of the surgeon. Tell them that whatever
method one uses, make sure he has done hundreds of them over many years.
Age 59, psa 4.7 in Jan. 08. Biopsy: one positive sample out of 13. 1% of one sample cancer. Prostate removed on 3/5/08. Open Surgery. Northeast Georgia Medical Center, Gainesville Ga. Nerves spared. Cath out 12 days later. Continence good. No pads needed since 6/10/08. First PSA: Less than 0.1 on 6/17/08. First erection five days post op and have been improving well since then. Full erection now possible (less than four months post op) with the assistance of Cialis. I am pleased with the progress so far. Married to same wonderful woman for 39 years.
She is still beautiful and sexy as ever. A great help in my recovery !!


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 9/2/2008 1:55 AM (GMT -6)   
Hi Cindy,
I've had the open RRP in Nov., 06. I'm now 72 years old (70 at surgery) and I'm doing very well. ED took about 18 month to clear up. All in all not a very big deal. Just hope that my PSA will stay low.
All the best to you.
Magaboo


Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05

Post Edited (Magaboo) : 9/2/2008 1:37:55 AM (GMT-6)


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 9/2/2008 4:57 AM (GMT -6)   
Thank you for all the replys. His surgery is tomorrow and I have given them lots of info and will give them more along the way. I'm a believer that you need to know what is going on when going in. They just want it over with. They know they can come to me when needed.
Thanks again
Cindy
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
July 08 (3mths post op) Cialis 10 mg every other day. Right now, things are not looking so good in that department. 
Aug 08 PSA 0.04 Yay Again!!

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