Regrets about Prostate Surgery

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Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2286
   Posted 8/29/2008 8:16 PM (GMT -6)   
There is an article and comments on the NY Times Well blog that may be of interest to some here:
 

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/29/2008 9:12 PM (GMT -6)   
Hi Tim,
I imagine that there is a high number of regretters of any form of treatment in time. I think 19% is possible but I wonder about the questionaire. I doubt that this is a great study to go by, however. As the writers said there were 219,000 new patients with half had surgery. So of 110,000 people who underwent surgery only 400 were interviewed. There is a lot of room for error there. And the demographics can be selective and skewing the results as well.

There is also a new set of studies that are showing that radiaologists claims that radiation therapy is just as good as surgery at controlling cancer are exagerated. This is already known to be only if the cancer is localized. There is also studies that show that patients with locally advanced, or advanced disease that undergo LRP or RRP prior to adjuvant radiation and adjuvant HT are fairing better and avoiding hormone refractory disease for longer periods than any other treatment options.

Also I would like to see more studies that exclude or segregate the 15% of those treated with surgery that ended up with advanced disease. I bet the number of regretters is way higher in that group. Obviously if the surgery fails, living with advanced cancer, ED or incontinence, and hormone therapy, patients might regret bothering with the surgery at higher rates. Just a thought.

Also a study of the same nature for alternative treatments after 5, 10 and 15 years might yeald the same results. Just guessing because there isn't any.

For me, I would be among the 82% in this Duke study you've linked that has no regrets about my surgery.

Tony

Post Edited (TC-LasVegas) : 8/29/2008 11:51:17 PM (GMT-6)


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2286
   Posted 8/29/2008 9:41 PM (GMT -6)   

Good points, Tony.  For the record, I do not regret having surgery for my early-stage cancer. I find it interesting to read the comments posted about the study.

As with most studies, one has to take it with a salt-shaker full of salt.  Mark Twain's words give a good perspective:  'There are three kinds of lies:  Lies, darned lies and statistics.'



divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 8/30/2008 1:11 PM (GMT -6)   
Tim, I just looked at the article, and also read with great interest the more than 74 replies....from a variety men and women who discussed their experiences with ED, incontinence, and whether they had surgery or radiation. Somehow it made me feel better about our journey. It seems that almost everyone has higher expectations than what really occurs.. Im more sanguine about our situation now...Thanks...Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2286
   Posted 8/30/2008 2:05 PM (GMT -6)   
divo said...
Tim, I just looked at the article, and also read with great interest the more than 74 replies....from a variety men and women who discussed their experiences with ED, incontinence, and whether they had surgery or radiation. Somehow it made me feel better about our journey. It seems that almost everyone has higher expectations than what really occurs.. Im more sanguine about our situation now...Thanks...Di

I agree, divo, that many of the replies are well worth reading.  There is also  a thoughtful reply by Dr Randy Fagin, whom some here have had as their robotic surgeon.
P.S.  The word filter on posts here changed my Mark Twain quote to 'darned' from its original more accurate, steely d-word.  Hey, even the Puritan John Bunyan uses the d-word in his classic book, Pilgrim's Progress.  Go figure.

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 8/30/2008 5:15 PM (GMT -6)   
Tim -- I knew Mark Twain didn't really say that :-)

I find forum censor amusing. Try to use the word "*****footing" anywhere. "**********" is censored too -- which leads to all sorts of creative misspellings -- my favorite is "musterbation". 
Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0 

Post Edited (Piano) : 8/30/2008 5:24:33 PM (GMT-6)


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 8/30/2008 5:24 PM (GMT -6)   
Who says "darned" anyway!! Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu

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