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Texman
New Member


Date Joined Oct 2006
Total Posts : 7
   Posted 8/29/2008 9:37 PM (GMT -6)   
OK guys. I had Davinci Laproscopic surgery 18 months ago.
Still cancer free.
I'm 57 now (55at the time)
Used the pump for a while......waste of money.
Viagra 50 mg 3 x's a week for therepy (not sex)
Have been using bi mix (Phento .5 mg and Papa 30 mg) 6 units of 1/2 cc 50 unit insulin needle for sex.
Use 2 - 3 times a week. Works like a charm.
Today I actually had my first erection (98 % firm) without anything (enough for penetration) since surgery.
I hope this means my nerves are finally waking up and I will continue to improve.

Anyone else improving (returning to old self) or do doctors give us false hope?

Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 8/30/2008 5:00 AM (GMT -6)   
Excellent news Texman, I am at 12 mos and see some good results with manual stimulation only, you give me hope!! The injections work fine, I just have grown to hate them, I can see why the dropout rate, no pun intended, is very high with them. Thanks for sharing your good news with us, I am sure others here will gain confidence about the future because you did.

Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


nemo57
Regular Member


Date Joined May 2008
Total Posts : 43
   Posted 8/30/2008 6:40 AM (GMT -6)   
Great news Texman. We all need to stay positive and hopefully things will get better. Good luck.
New Jersey
Age 51
Psa 0.9
Biospy 1 core positive
Gleason 3+3-6
Surgery date Aug.11, 2008 at Monmouth Medicial Center
Robotic Surgery By Dr. Lanteri And Dr. Esposito
Both nerve bundles saved. Margins clear.
Gleason score stayed at 3+3-6. Cancer contained to prostate.
1-2 pads a day. No problems at night.
ED 25mg viagra at night. Usable erections 1 day after catheter was removed.


Tony1951
Regular Member


Date Joined Jul 2008
Total Posts : 50
   Posted 9/1/2008 4:44 PM (GMT -6)   

I was wondering if someone could share more information about the ED shots?  Do they work for everyone?  Does the frequent (2 X week) use of the needle cause tissue damage?  What about the erection, is it as good as when you were 17 or is it just enough to satisfy your wife with a little extra effort?   While I'm functional now ( 50% of what I was in my 30s) I'm thinking of all my options after treatment.

Thanks in advance

------------

Age 57

Diagnosed July of 2008

PSA 6.7; Biopsy was positive in 2 of 12 cores

Gleason 3+4 and 4+4

 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 9/1/2008 5:06 PM (GMT -6)   
Hey Hopeful,

Shots work great for me although they took a while to get used to. My routine is to take 1000 mg L-Arginine and 50 mg Viagra (generic) then after a couple of hours inject .03 ml (that's right just a few drops) of Trimix after a little manual stimulation to plump things us a bit. I get a very good erection after 15 minutes or so and it lasts about an hour to an hour and a half. Its a better time than I had before cancer. I use a 1/2 cc diabetic syringe with a 31 gauge, 5/16 inch needle. No pain and easy to fill and use.

My theory is that shooting only a very small amount of Trimix is better for me all around. My doc started me with .1 cc and it was waaaay too much. I experimented starting at .01 cc and worked up to .03 cc. Getting it right just takes time and, like everything else with cancer, lots of patience.

Good luck,

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Start chemo in September 08
"Patience is essential, attitude is everything."


Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 199
   Posted 9/1/2008 10:46 PM (GMT -6)   
98% erection with no meds !!! yeah Way to go !!!
Sounds like your nerves are really working.
I get about a 75% with no meds 5 months post op.
With 10 mg Cialis, I can "cut diamonds" !! Really great just like
pre op.
Bob
Age 59, psa 4.7 in Jan. 08. Biopsy: one positive sample out of 13. 1% of one sample cancer. Prostate removed on 3/5/08. Open Surgery. Northeast Georgia Medical Center, Gainesville Ga. Nerves spared. Cath out 12 days later. Continence good. No pads needed since 6/10/08. First PSA: Less than 0.1 on 6/17/08. First erection five days post op and have been improving well since then. Full erection now possible (less than four months post op) with the assistance of Cialis. I am pleased with the progress so far. Married to same wonderful woman for 39 years.
She is still beautiful and sexy as ever. A great help in my recovery !!


Pux
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 9/2/2008 4:24 AM (GMT -6)   

Hi There

Just read in today's paper that my urologist has done many studies and is a strong believer that for those with nerve sparing ops the best ED medicine is Levitra. By the way he has me on Viagra. I am assuming the next time I see him he will suggest Levitra.

Pux


Age 62 Born Dec 30/45
Diagnosed with regular check up PSA 4.7
Biopsy Sept 2007  7 of 12 positive
Surgery- Da Vinci Nov 13- London Ontario- Canada
PSA MAR 3 .03 UNDETECTABLE
 


geon
Regular Member


Date Joined Oct 2007
Total Posts : 103
   Posted 9/3/2008 10:48 AM (GMT -6)   

Texman,

You are blessed.  Congratulation!

Wow, a natural erection after 18 months.  I at 18 months after DaVinci and undectable PSA remain erectionless naturally.  I envy you and am thrilled by the event (I almost sound like a 10 year old having his first one don't I?).  I can only strain at the thought of an erection to happen, I miss it so much. 

 The trimix is OK but our timing is not.  I use it more for exercise than IC.  Spontaniety is missed deeply as you know.  At 18 months I have begun to loose hope as the reality of all that has happened is now setting in.  Although, my libido seems to be more intense and I find myself wanting to carry out great intimacy sessions more frequently.  The urge is getting stronger but the means is weak.  This tangles my mind as it is very frustrating as I just want to do something with the situation but can't except with soft stimulation or a delayed injection.  I can't quite capture the "moment" as it were before DaVinci.  I am thankful that I continue to have the thought of my wife and I having mutual climax the last time we had intercourse prior to surgery.  Such a pleasant thought that will probably never happen again.  Climax now is sometimes suttle and passive and sometimes sharp and intense but nothing like it was with ejaculate.  The duration is so short and gone before you know it.

Trimix works OK at 0.08cc.  A good stimulated erection will last for 2 to 3 hours.  I am pretty hard but angling down causing penis slippage often during IC.  I am looking for ways to help that situation.  Climax usually occurs in about one to two minutes at which time I go limp for maybe 20 minutes but then it comes back and last for some time.  During the 20 minutes of limp time, I generally satisfy my wife manually and by the time that takes place the erection comes back I pretty much have lost my drive.  I wish I could find a way to continue to take advantage of these now limited opportunities.  A continued hard erection would be nice as I could go on to satisfy my wife vaginally and naturally. 

Sorry to dump on you like this but I think you caught me in the "right" moment but in doing so maybe I can get some ideas from you and others on what I might do to improve the situations.  Female advice seems to be more helpful in these situations as they tend to see more clearly from outside the box.  Adding also that because of our faith beliefs, ********** does not seem to be an option for me but I think would help in bringing some needed relief when needed.  Maybe I should look at this situation differently as not just ********** but trying to help myself develop the nerve system that controls blood flow to the penis.  Need to think about this more I guess.

I have been getting some erectile changes I believe as evidenced by getting an 60% erection with some stimulation using 20mg of Cialis.  Maybe there is promise.  My URO is taking me off of Cialis and all other types except for Trimix as he said that if I have not gotten erections with meds to date that I probably will not be getting them at all in the future.   This also took more wind out of my sails.

But you Texman, have given me a boost which I need and is helpful.  Thank you for taking the time to post.  Let me (us) know how you are doing as the Natural erections continue.

Have you started having nocturnal erections as well?

Thanks again,

Cram


64 years old 100307; healthy; active,
married 41 years, good strong erections before surgery.
DaVinci Prostate Removal February 5, 2007
2/12 samples malignant.
Catheter removal 2/13.
Viagra 25mg every other day from 2/14 to 5/12.
Tried Viagra 100mg on occasion-no erections.
Incontinence almost gone after three months.
No pads, occasional  dribble.
Lavitra every other day 5/12 to 7/22.
Muse 1000mcg - no help (50% at best).
Cialis twice a week 7/25 to 11/6/07.
Vacuum pump daily/twice a day 8/2 and going - no help.
Begin Trimix injections, two low dose per week, 11/05/07.
Currently, vacuum pump and low dose Trimix twice per week each.
Trimix in office - 0.10cc.  Low dose set at 0.05cc
First drug induced erection 10/8/07....Wow!
Natural erections - 0 as of 10/25/07.
PSA's, three to date undetectable.  Thank God!
 
Geon


geon
Regular Member


Date Joined Oct 2007
Total Posts : 103
   Posted 9/3/2008 10:52 AM (GMT -6)   

Texman.

Sorry I signed my previous post reply to you in error.  I should have signed it Geon and not Cram.   Thanks......Geon


64 years old 100307; healthy; active,
married 41 years, good strong erections before surgery.
DaVinci Prostate Removal February 5, 2007
2/12 samples malignant.
Catheter removal 2/13.
Viagra 25mg every other day from 2/14 to 5/12.
Tried Viagra 100mg on occasion-no erections.
Incontinence almost gone after three months.
No pads, occasional  dribble.
Lavitra every other day 5/12 to 7/22.
Muse 1000mcg - no help (50% at best).
Cialis twice a week 7/25 to 11/6/07.
Vacuum pump daily/twice a day 8/2 and going - no help.
Begin Trimix injections, two low dose per week, 11/05/07.
Currently, vacuum pump and low dose Trimix twice per week each.
Trimix in office - 0.10cc.  Low dose set at 0.05cc
First drug induced erection 10/8/07....Wow!
Natural erections - 0 as of 10/25/07.
PSA's, three to date undetectable.  Thank God!
 
Geon


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/4/2008 6:30 PM (GMT -6)   
Geon and/or Cram,
 
I understand your frustration.  But the one thing I can offer you is a little experience with the penile implant.  I too seemed to be at the end of my rope, and it included not only impotence but also total incotinence. 
 
I found an experienced surgeon here in Dallas who does lots of the Artificial Urinary Sphincter implants as well as inflatable penile prostheses... and made an appointment.  We agreed I was a good candidate for the AUS and then he asked, "How important is sex to you?"  Having a wonderful wife of many, many years, you can guess my positive response.  But I already had learned the clinical things regarding the penile implant and wanted no part of it.  I just could not bare to go through such a surgery.  However after talking further with this surgeon, I decided to go for both implants.
 
Making a long story short, I do not regret that decision.  I now have near perfect control of my bladder and am also enjoying intercourse with my wife again.  I also am now in touch with many penile implantees and almost all of them are delighted that they now can enjoy sex again with their lovers.  The penile implant is not perfect, but some of the implantees say it is even better than before.  That's hard to believe, but since I am just now getting used to an erection and sex with my wife,  I am still in the "learning" stage, but I can tell you that thus far it is indeed very, very, very satisfying...and it's almost as if we are experiencing it for the first time on our honeymoon. 
 
So please do not give up hope.  There are solutions, as you have been informed here on HW.  If you would like to contact me personally, my email address is available on the sidebar.  Feel free to email me.  It could be...could be... the very thing that will restore you to intamacy with your wife.
 
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 

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