Open Prostate Surgery

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BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 9/2/2008 11:28 AM (GMT -6)   
I was diagnosed with prostate cancer on May 15.
Gleason 6, PSA 4.4
Clean bone san and CT for pelvic and abdomen region
However my doctors are concerned the cancer has spread to the seminal vesicles
One core of the biospy was unconclusive about that
have been on hormone therapy since June 15
I am scheduled for open "old fashioned" (non-robotic) surgery on September 15. will remove the prostae, vesicles and nearby lymph nodes
Find this website forum very helpful and reassuring.
Thanks for being there.

KC9AOP
Regular Member


Date Joined Jun 2008
Total Posts : 85
   Posted 9/2/2008 1:04 PM (GMT -6)   
BillSD,

This is a great resource and everyone here is SO helpful. Keep checking in and stay visible. Please let me know how you are doing before and after the surgery. My PSA score is the same as yours but I'm "just" in pre-cancer stage now. It would be great to keep in touch to support one another.

Take care of yourself.


Jim
I am age 47 - Father, Paternal Uncle and Maternal Grandfather had/have Prostate Cancer.
Father 74 years old, PSA = 10.6 Gleason = 5 + 5 = 10 (very aggressive) and high involvement in all cores. Seed therapy is the only option. Father died cancer free.
06/04/08 - At physical DRE normal, PSA test returns 4.4
06/20/08 - First Urologist visit. DRE and ultrasound finds nothing conclusive. Doctor says biopsy is the only safe way to go. Prostate volume is 40 grams.
07/11/08 - PSA test returns 4.1. Scheduled the Stereotactic Transperineal Prostate Biopsy for 7/21
07/21/08 - Had the biopsy.  Not so bad but sore on day 2. Back to work tomorrow
07/23/08 - Pathology comes back NO CANCER DETECTED!
08/01/08 - Urologist calls and says High Grade Prostatic Intraepithelial Neoplasia ("PIN") was found in my biopsy (read pre-cancerous leisions)


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 9/2/2008 1:12 PM (GMT -6)   
Thanks Jim,

I will definitely keep in touch. Thanks for caring...it means a lot. I am grateful your biopsy showed no cancer!

By the way, I neglected to say I just turned 60. Doing very well except for chronic fatigue, probably from hormone therapy and donating my own blood in preparation for surgery. I am very optimistic...and have a great team of doctors.

Bill

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 9/2/2008 10:16 PM (GMT -6)   
Bill, Wishing you well on your surgery. We will be here for support if ya need us.
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 9/3/2008 9:53 AM (GMT -6)   
Thanks KW

I really appreciate you taking time to respond. I can see from your history you have had some post op challenges. You will be in my thoughts and prayers. The best news is your PSA is 0.0. I am a bit concerned about getting a clear margin. That is why my urologist suggests open surgery...so he can do the best he can to get it all if indeed it has spread ouside the prostate.

Hope the AUS surgery fixes the remaining problems for you.

Many thanks,
Bill

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 9/3/2008 2:38 PM (GMT -6)   
Thanks Bill, And really, do not worry. The vast majority of the RRP guys come out very well with incontinance and ED. I was just one of the un-lucky ones.
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


broker59
Regular Member


Date Joined Apr 2007
Total Posts : 88
   Posted 9/9/2008 1:30 PM (GMT -6)   
nono  Bill
You can see from my Bio we are close in numbers.  i had the open procedure 16 months ago, and it was "NO BIG DEAL"!  While I wish I never got PC it is what happened.  I like the fact that your surgern is taking out a lot of potential areas that can harbor cancer cells.  Dr. Scardino's book on PC is worth a read.  I was swimming at the New Jersey shore 4 weeks after surgery.  On discomfort for me was the cath, and staple removal, and that was not bad.  i see kids going through operation, after operation with the courage I could only wish for.  You will be fine, keep a Positive Mental Attitude!
Broker 59


Date of Dx 3/20/07

PSA: 2.5
Gleeson: 3+4
Stage: T2
Bone Scan: Clean

Date of Surgery: 6/21/07  Open RP
 
Post Opp: ALL NEGATIVE margins & L/N, S/V.
Cath out after 18 days = BIG RELIEF!!!
 
PSA: 7/23/07 0.01
PSA: 9/04/07 0.01
PSA: 12/04/07 undetectable.
PSA: 3/12/08 UNDETECTABLE!!!!!
PSA: 6/13/08 UNDETECTABLE!!!!!!


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/9/2008 3:44 PM (GMT -6)   

Several of us on this forum have had the open surgery.  Stats tell there's hardly any difference.  You are in our hearts.  You really are.  Most all of us have been where you appear to be.

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 9/9/2008 5:03 PM (GMT -6)   
You have all helped me. I am ready to get the surgery behind me and on the road to recovery. I'll let you all know ho0w things turn out.

Bless you,
Bill in San Diego

mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 9/10/2008 4:59 PM (GMT -6)   
I don't have the expertise of most people on this site, but if you are talking about a Lupron shot or something like it as being hormone therapy, I too got a shot (3Month) that my Dr. told me was used to put the cancer on hold until the operation.

I also had RRP and had a Gleason of 9 with a PSA of 6.8 going in.

He took my left nerve bundle, but left my right intact. I would make sure your Dr. will save the nerve bundles if at all possible.

I'm now roughly 6 month's out from surgery, and in June I still had a testosterone level of 10 (Should be 700 minimally) which was attributed to the Lupron.

I'm told that I should be back in form within a year to a year and a half, so sit back, relax, and try to ignore the catheter as much as possible, it was the hardest part to deal with mainly because my penis blew up like a balloon and frankly scared the hell out of me, but nobody, including my R.N. wife was concerned about it. (I forgive her).

One bit of warning, when the Dr. tells you not to do anything, follow his advice carefully. I helped my sons move two weeks after surgery. I'm scheduled for a hernia operation in November.

Billy
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
SURG, SCHED. 3/26/08
RRP, 3/26, HOME 3/31
BIOPSY REPORT:
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT.
VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
INCONTINENCE EBBING FAST
ED, FLAT TIRE. MAYBE LUPRON?
PSA 5/21 O.O1 UND
PSA 6/30 O.OI UND
TEST. 10 SHREDDED TIRE STILL LUPRON
INCON. HISTORY
PSA 9/30

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