RRP - What am I in store for?

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Sike
New Member


Date Joined Aug 2008
Total Posts : 2
   Posted 9/8/2008 7:53 AM (GMT -6)   
Hello all,
  First posting.  I go in for RRP up at Johns Hopkins this Wednesday, 9/10.  Was diagnosed on July 13, 2008 with Gleason 3 + 3 (PSA 1.2; 12 biopsies....< 5% on one biopsy).   Can anybody let me know what the first two weeks are going to be like after surgery?  I live about 75 miles away from Hopkins down in Va.  Will I be able to sit for a 90 minute ride?  Any recommendations on the best way to do this?  Could lay down in the back of the vehicle I guess.
 
  Any advice on how to make things easier on the days after surgery would be appreciated. 
 
Thanks,
 
Ken

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4823
   Posted 9/8/2008 8:12 AM (GMT -6)   
Welcome to the site and sorry you have to be here.
 
There's an almost identical question/post here you might want to read through:
 
Need advice for operating room and recovery 
http://www.healingwell.com/community/default.aspx?f=35&m=1233208
Age 53   - 5'11'   205lbs
Overall Heath Condition - Good
PSA - July 07 & Jan 08 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy


JoelS
New Member


Date Joined Aug 2008
Total Posts : 6
   Posted 9/8/2008 8:54 AM (GMT -6)   
There are lots of posts to help you deal with post surgery tips. But here's mine on the travel.

I live in Orange Co. NY, and traveled 78 miles to the hospital in NJ to have my robotic surgery. I was discharged 28 hours after my surgery time, and the ride home was LONG. Make sure to leave at the peak of your pain pill! And have your pills ready and waiting at home.

Good luck to you.
Joel
Age 55
Pca open surgery 10/08
Hackensack NJ
Final Path:
Gleason 3+4
no mets
Dry at week 13
Waiting for wood
Viagra 100mg


JoelS
New Member


Date Joined Aug 2008
Total Posts : 6
   Posted 9/8/2008 8:57 AM (GMT -6)   
Woops
Made a mistake in my tag line
It should read ROBOTIC
I've made the change in the control panel
Thanks
Age 55
Pca open surgery 10/08
Hackensack NJ
Final Path:
Gleason 3+4
no mets
Dry at week 13
Waiting for wood
Viagra 100mg


Navy corpsman
Regular Member


Date Joined Aug 2008
Total Posts : 61
   Posted 9/8/2008 9:31 AM (GMT -6)   
Sike -
 
I had surgery 2 months ago at Johns Hopkins and I live in VA.  If you want to talk on the phone, email me your phone number.  Click on Navy for email. 
 
- John
Age:  44
We have a family history of PCa.  My Dad and uncle died from it at 65 and 53. My PSA velocity increased in the last 2 years and I had to talk my GP into refering me to a urologist.
Biopsy results:  5 of 11 cores positive, all 30%. Gleason 6. T1c. PSA 2.53  Date of biopsy 15MAY08.
Open RRP at Johns Hopkins with Dr. Partin on 09JUL08.
Pathology report:  Gleason 6, pT2, neg. margins, 0 lymph node and seminal vessical, organ confined, I lost 1 nerve bundle and 22 lymph nodes.
As of today, about a month after surgery, I feel at about 80%. Urinary control seems to be improving. Little Elvis has taken a nap and has not awakened yet. I hope when he wakes up he is well rested because he is going to get one heck of a workout.
 
 


elofdahl
New Member


Date Joined Mar 2008
Total Posts : 19
   Posted 9/8/2008 9:32 AM (GMT -6)   
"Will I be able to sit for a 90 minute ride"?
 
I rode 100 miles home 24 hours after surgery.  I found it easiest to sit with the seat-back partially (not fully) reclined.  As mentioned above, pain meds are helpful during the ride.  The ride home is one of the most memorable events of my post surgical experiences because it was the first "outing."  It was tough, but bearable.
Eddie
Age 55
PSA 6.7
Needle biopsy: T1c Gleason 3+4=7...2 of 10 cores
Non-Robotic laparoscopic RP on 3/4/2008
Specimen pathology: T2C organ confined with clear margins. GS lowered to 6!
100% urinary continence since cath removal on 3/11/2008
ED resolved with Levitra within 3 weeks
4/18/2008  1st PSA undetectable
7/25/2008  2nd PSA undetectable
 


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 9/8/2008 10:11 AM (GMT -6)   
The experience I had with surgery was not difficult at all. There was little pain post operation. I live about 90 miles from where I had surgery and the ride home was easy. I was so happy to have it behind me that I can't recall any real issues with discomfort. The cathedar is probably the most inconvenient item. I wore some loose PJ bottoms and strapped the small bag to my calf.

You will find the surgery to go fast and very likely uneventful - this too shall pass! Blessings. RB


Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

beachbum50
Regular Member


Date Joined Sep 2007
Total Posts : 292
   Posted 9/8/2008 11:54 AM (GMT -6)   

Sike, I had my Robotic done here in Norfolk Virginia, went home less than 20 hours after they finished! I went home in my wifes Explorer, and wished that I had a pillow under me. I felt every bump as pressure on the bladder. The next day I went back to the Doctors office in my expedition, and with a pillow, had no problems. There was never any real pain from the operation, but felt like you just did 10,000 sit ups, just very sore. Good luck, you will be fine!

Beachbum turn


Beachbum
 
PSA 10 June 2007
Biopsy July 2, 15 of 16 samples positive
T2C
3+3=6
prostate weighed 40 grams
Di Vinci 10/09/07, four hours on table, 3 in recovery
Total time in Hospital: 29 hours
Record for Dr. Lance, 70% of prostate had cancer, but NO spread, clean margins,Clean nodes,
First PSA at 5 weeks, UNDETECTABLE!
Catheter out at seven days, dry from hour one!
Second PSA 19 weeks post op, UNDETECTABLE 2/11/2008
Third PSA 5/12/08, six months post op, UNDETECTABLE
Fourth PSA 8/21/08, nine months post op, UNDETECTABLE
The Lord has truly Blessed me.


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 9/8/2008 7:05 PM (GMT -6)   
Hi sike

My ride home was 4 hours. Mr Dr. told me to stop every hour get out and walk around. The good thing is you don't have to find a bathroom on the trip home. I only had a couple of tylenol for the ride home. My hospital gave me a foam donut to sit on and it made the difference. My Dr told me the ride home would be the worst part on the whole experience. Not a real problem except riding with my wife. Be the way she is not looking over my shoulder right now, ha ha.

Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
first year PSA less than zero
 


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 9/8/2008 7:05 PM (GMT -6)   
i flew home ona bumpy aircraft you wil have no probs at all recline seat just a bit piece of cake

Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 9/8/2008 7:18 PM (GMT -6)   
Sike
welcome to the Country Club no one wants to be a member of. Sorry you have to here but since you do jump and enjoy the fellowship. I can't ad to much more to what the other post had to say. I had RRP and a lymph node disection I stayed two nights in the hospital and I would say the first few days are tough so take it easy. Just because the pain medication works please do not try to be a super hero.
Stay in touch and let us know how things go. this is a great place for emotional and spiritual support.
peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 

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