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lemonlime1
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 9/12/2008 9:57 AM (GMT -6)   
cool  hi guys lemon lime here 6 weeks out of robotic surgery ,question , 3 days ago i thought i was making a big turn 4 pads a day wow. yesterday and to day bamb , just like the catherter was removed back to 7 a day is this suppose 2 be normal ,, ty also did any 1 have 2 take potassium supplements because of urinating so much .... thank u guys so much for your help have a great week end. sorry forgot to put in 48 yrs old  gleason 6 , 3+3  all clear after surgery , 3 month comin up in nov  ty

Post Edited (lemonlime1) : 9/12/2008 10:00:42 AM (GMT-6)


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 9/12/2008 12:19 PM (GMT -6)   
LL1,
As you probably know from reading all over this forum everyone is different and there are no guarantees. I can only tell you I am 16 weeks out and almost dried-up. I wear one pad a day, but right now that is more a safety net than anything else. However, at 12 weeks I had a reversal for about a week. Looking back I had gotten cocky stating to my spouse that I was almost dry and would be in a matter of days. What followed was a lot of squirting and going through 3-5 pads a day for about a week - this was very disheartening. I know that at the time I was doing a lot of working on my feet, and I had also ramped-up my drinking of diet cokes (which seem to aggrevate the situation).

Beyond that, things starting improving again. It however seems to be a very gradual process (at least for me). Improvements are hard to measure daily. I encourage your patience. You may want to try the kegels. I really have done little of that myself. I could never tell it helped. I wish you well, and hope you will soon be able to look back on this with some sense of humor.

RB

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

dead space deleted by Moderator


RB

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

Post Edited By Moderator (James C.) : 9/13/2008 7:13:41 AM (GMT-6)


Navy corpsman
Regular Member


Date Joined Aug 2008
Total Posts : 61
   Posted 9/12/2008 5:39 PM (GMT -6)   

Lemonlime -

Are you feeling better after painting the bathroom?

As far as the leaking goes, my experience has been sort of like 2 steps forward and 1 step back.  Over time you make progress but it will take a while.  I think what you are experiencing is normal, however stay in touch with your docs. From what I understand, after surgery we have to condition our muscles that control our urination.  My doctor told me the best thing to do is to stop your urine in mid-stream and hold back the urine for 10 to 15 seconds.  He said you need to do this every time you urinate and this activity builds up the muscles.  Keep working at, it can take months to recover continance.

Stay in touch.

- John


Age:  44
We have a family history of PCa.  My Dad and uncle died from it at 65 and 53. My PSA velocity increased in the last 2 years and I had to talk my GP into refering me to a urologist.
Biopsy results:  5 of 11 cores positive, all 30%. Gleason 6. T1c. PSA 2.53  Date of biopsy 15MAY08.
Open RRP at Johns Hopkins with Dr. Partin on 09JUL08.
Pathology report:  Gleason 6, pT2, neg. margins, 0 lymph node and seminal vessical, organ confined, I lost 1 nerve bundle and 22 lymph nodes.
As of today, about a month after surgery, I feel at about 80%. Urinary control seems to be improving. Little Elvis has taken a nap and has not awakened yet. I hope when he wakes up he is well rested because he is going to get one heck of a workout.
 
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 9/12/2008 6:25 PM (GMT -6)   
I heard an interesting discussion at a prostate support group the other night. It involved blood pressure medication and urination. One of the fellas had put up with constant incontinence following prostatectomy for over two years. Somebody he knew suggested he ask his doc if his blood pressure medication included a diuretic. It did, his doc changed his medication to eliminate the diuretic and his incontinence resolved itself very quickly thereafter. I suppose it stands to reason that the last thing you need while incontinent is a medication that's designed to increase the removal of water from your body (especially during the small hours of the morning).
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07----4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable
PSA August 08 <.001 undetectable


Every time I see an adult on a bicycle I no longer despair for the human race.
H.G.Wells


lemonlime1
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 9/13/2008 9:14 AM (GMT -6)   
 thank u all for reply it really helps to git support there are no prostate support groups in our area . maybe i should try to start 1 but probably like every 1 else you have to have the time thanks again  lemon lime . ps navy , i did finish the bathroom . must have done to good now she wants the kitchen done lol. ty smurf

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 9/13/2008 10:12 PM (GMT -6)   
I too had that problem with the Diovan I was taking for blood pressure. Probably the wrong choice but I quit taking it due to the leaking. After I get my AUS activated I will start back on it. But dont do this because I did. Ask your Doctor for a different medicine.
Hang in there Lemon. I'm sure your control will come back soon.
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 9/15/2008 10:24 AM (GMT -6)   
Just jumping in here - I've already recounted my story about seeing my doctor for the 3 month check up and pad weigh in. I was doing really well (for me), but on that particular day I had argueably my single worst day EVER - and then made immediate progress down to 5 thin pads a day or less. There just ain't no rhyme or reason...

That's where I am now, but I feel like I'm getting better & better.

kcragman
Age: 52
March 2006: PSA 2.5

Dec 2007: PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.

March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.

May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph nodes and associated glands all appear to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.

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