Undetectable! But my rear hurts!

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/17/2008 4:51 PM (GMT -6)   

It’s still good!  Undetectable!!!  I left the Nevada Cancer Institute on a high again.  They are so good!  Life is so good!  The Lord has blessed me with it!  Now on to mine and Ruthie's anniversary this weekend!  As a 3b and still clean...Prostate cancer ~ you can kiss my...well not there.  Still sore from the Lupron Harpoon! Ouch! 

 

My PSA History

October 3, 2006                      19.8

October 10, 2006                    18.9

November 27, 2006                13.9

Surgery February 16, 2007

February 28, 2007                   0.9

March 12, 2007                       0.1

March 23, 2007                       <0.1

May 16, 2007                          <0.1

July 18, 2007                           <0.1

September 19, 2007                <0.1

January 29, 2008                     <0.1

May 9, 2008                            <0.1

September 17, 2008                <0.1

 

AMEN

Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 9 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 9/17/2008 5:04 PM (GMT -6)   
YAY!!!!! I'm so so so so happy for you. Go celebrate and have fun with Ruth. Go do anything you want!! You are so blessed!!
Love to you both,

Cindy and Kent
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
July 08 (3mths post op) Cialis 10 mg every other day. Right now, things are not looking so good in that department. 
Aug 08 PSA 0.04 Yay Again!!


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 9/17/2008 5:43 PM (GMT -6)   
Hi Tony,

Great news. Looks like you have a pattern established. Those shots do make you sore for a few days. I swear they do use a harpoon and it is dull.

Don
Diagnosed 04/10/08
Age 58
PSA 21.5 (first and only test resulted from follow up visit to emergency room for kidney stone. first time for kidney stone too)
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear
Chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
PSA test on July 14, 08 after 8 weeks hormone .82
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
Second Lupron shot 09/11/08
Next PSA test by oncologist 03/09
 
 


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 9/17/2008 6:09 PM (GMT -6)   
Great news!!!!
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 


cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 9/17/2008 6:58 PM (GMT -6)   
Its great to hear good news for someone! Go have fun.
age:  44
1st psa Apr 08 3.06
2nd psa 6/16/8 4.02,  DRE showed nothing abnormal
biopsy 7/10/08 positive 5 of 12
Da Vinci 8/04/8 Parkview Memorial in FT Wayne IN 
gleason 3 + 3 = 6
prostate 27 g, 4 x 4 x 3.1 cm
Stage:  pT2cNXMX
margins:  apical margin involved
no extraprostatic extension of tumor
seminal vesicle involvement: absent
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 9/17/2008 7:01 PM (GMT -6)   
I am so happy for you and Ruthie, and I to hope you guys go out and have a wonderful celebration. You think your rear hurts now, just wait until tomorrow. Love you my friend

peace and grace
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 9/17/2008 7:27 PM (GMT -6)   
Hey Tony,

Keep betting 00!!!! Its a great number...

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Start chemo in September 08
"Patience is essential, attitude is everything."


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 9/17/2008 7:59 PM (GMT -6)   
Way to go Tony!! Congratulations on the old PSA test result and, of cause, on your anniversary.
All the best to you for your future.

Magaboo yeah
Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08
Next step: RT?


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/17/2008 8:34 PM (GMT -6)   
My very biggest thanks to all of you. We are feeling great tonight. My oncologist is excited about the January Lupron being the last one and, er, so am I. I feel so lucky to have applied all the treatment options we have and we have been so lucky. We didn't have confidence when we found out what we were dealing with after surgery, but to be where we are is truly a blessing!

Rick, thank you so much. I will always be in your bleechers cheering that your success stay as it is. The past is the past and today we need people like you trying the new things to get us all a better rout to conquer this disease! PEACE!!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 9/17/2008 8:44 PM (GMT -6)   
SMOOCH Tony!  (LOL.)  I'll kiss your *** in Macy's window as long as you keep those ZEEEEEEEERO PSAs coming.  You da man.  Best to you and Ruthie.  Enjoy the success.
Tom

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07

Third post-surgery PSA -- Undetectable, 2/15/08

Surgery for bilateral inguinal hernia repair, 4/4/08 

Fourth post-surgery PSA -- Undetectable, 8/15/08


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 9/17/2008 9:02 PM (GMT -6)   
Tony

Your back side is looking sooo good with a big 0 attached to it, hey great news go have a wonderful time with Ruthie and celebrate your aniversary and the undetectable PSA. You are a great help and friend to so many here on this site, here's to your continued sucess.

Norskie
norskie
Current age 50, Age at Dx-48 PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3
March 27th PSA .422 Begin Salvage Radiation April, 14 2008
Radiation Complete June 4, 2008 36 treatments
August 5, 2008 PSA .09 or < .1 again
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 9/17/2008 9:10 PM (GMT -6)   

Tony,

Congratulations on your 0's.  Quick question, since you've done a lot of research.  What are the differences between the various hormone drugs?  You have been taking Lupron in the butt, while I've been taking Zoladex 3 month "seeds" every 3 months in the flab above or below the beltline.  Doctor preference or real studies????


Age 57 at diagnosis (2006),  PSA 4.7 (up from 3.2 one year previous)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0;  July 2008 - 0; Sept. 2008 - 0;
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 9/17/2008 9:22 PM (GMT -6)   

  Way to go Tony.  Glad to hear you doing so well.  Thank You for all the work you do here.

   KW

  


    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


mgl
Regular Member


Date Joined Feb 2007
Total Posts : 122
   Posted 9/18/2008 5:19 AM (GMT -6)   
Great news Tony, congrats good  to here that things are going your way
mike from Minnesota
50 years old
gleason 3+4=7 psa5.8 clinical stageT3a
Da vinci surgery April10 2007 Mayo clinic Rochester, Mn.
extraprostatic extension Gleason -same
pelvic lymph nodes -negative
Catheter out April 19
psa aug 2007 0.28
37 treatments IMRT ended 10/26/07
psa Jan 29 2008 0.10
psa april 30 0.14
psa aug 21, 0.16


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 9/18/2008 6:10 AM (GMT -6)   

 

....oh yeah....that's good to hear Tony, good for you. Congrats! You and Ruth have a great weekend.


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 9/18/2008 7:28 AM (GMT -6)   
Tony . . always glad to hear those ZEROES . . . .what a journey! Thanks so much for being YOU and sharing with all of US. Wishing you a lifetime of ZEROOOOOOOS

;o) Linda & Bob
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May 2008.  WHOOO HOOOO! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 9/18/2008 8:19 AM (GMT -6)   
A little late, but HOOOOOORAAAYYYYYY!!!! Tony, you have been such a friend and incredible resource for so many of us in this PC journey. Congrats on your undetectables! May you have a lifetime of them! Many, many blessings!

Doting
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


DanielleS
Regular Member


Date Joined Jul 2007
Total Posts : 57
   Posted 9/18/2008 8:21 AM (GMT -6)   
Fantastic news!  My best to you and Ruth as you celebrate your anniversary. 

hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 9/18/2008 8:28 AM (GMT -6)   

Tony,

Cheers, L'Chaim - To Life!!! And Happy Anniversary too.


Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 Positive
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Catheter removed 8/26 - reinserted 8/29 - removed 9/2


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/18/2008 9:56 AM (GMT -6)   
I sure do love the support here. And great to see some of you healingwell "old timers" again. Tom, you live a few miles away...When are we going to meet?

Hawk,
I looked into this and asked around. Zoladex, Trelstar, Eligard and Lupron are all LHRH agonists and will shut down production of testosterone by the testes. They can all have simliar side effects and they all cost about the same. I believe it's doctors preference and its marketing that determines what you'll get in the doctors office. At about 3 grand a pop, and lasting up to 4 months, the companies that make this drug offers incentives to doctors to carry a certain amount of prescriptions for it. I kind of compare it to buying a car. When the dealer comes out and brings the "invoice" for what they paid for the car, I know that in reality that invoice only applies if the car was pruchased one at a time from the factory. But when that dealership buys so many they get discounts off the invoice. Same with doctors that carry only Zoladex. They get incentive to carry a specific product and when they have hundreds of patients, there is a million bucks a year for LHRH prescriptions at every oncologists office. Business is business.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Paralleli
Regular Member


Date Joined Jul 2008
Total Posts : 123
   Posted 9/18/2008 10:47 AM (GMT -6)   
Good news! Hope your rear end feels better today...
53 yrs
PSA 4.8
T1c – Gleason 3 + 3
IMRT 1/07 thru 2/07 (42 treatments)
PSA 6/07 – 0.76
PSA 12/07 – 0.36
PSA 6/08 – 0.72


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 9/18/2008 11:51 AM (GMT -6)   
great news. I've been off-line for about a week due to the hurricane and logged in today and saw your great news. it is good to hear that you are doing so well.
 
Age 48
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
surgery may 9, 2008 - houston, tx
pathology report -gleason 8
margins clear
4 week and 6 week PSA >.04 (undetectible)
12 week PSA <.04
continent at 10 weeks (no pads!)
kegel's twice a day 20 reps


Pelahatchie
Regular Member


Date Joined Jul 2007
Total Posts : 86
   Posted 9/18/2008 3:02 PM (GMT -6)   
Let me add my congrats as well, good job.
Age 45 at DX
 
DX 8/05 Gleason 5, Mayo clinic Second Opinion Gleason 6, PSA 2.8
 
Da Vinci surgery Dr. Dasari, Centennial Nashville 9/24/05
 
Pathology Report Gleason 6, 15 % on left side only very near to the edge of capsule, too close to call on margins, doc's said to watch it very closely, final decision T2A
 
PSA's have basically ranged from <.04 to .05 for two years.
 
no E.D. and no Incontinence, feel very blessed
 
PSA Nov 07 = .06
 
PSA Dec 10th 07 =.07
 
PSA Jan 4th 2008= .1
 
Started Guided IMRT on January 7th, 2008 to treat prostate bed and lymph nodes, completed on March 6th, 2008
 
PSA April 18th 2008 =.03
 
PSA August 18th 2008 = .01 or less, test only goes down to .01


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 9/18/2008 5:13 PM (GMT -6)   

Dear Tony,

Man, way to go!  I am really happy for you.  I think that it calls for another bottle of wine, but it's better that you drink it with the love of your life.  And that ain't me!  You and Ruthie have some fun and joy.

Regards,

Bill


August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 9/18/2008 5:31 PM (GMT -6)   
Hey Tony

What great news. Go out and celebrate!!!!!!!!

Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
first year PSA less than zero
 

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