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dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 9/19/2008 9:09 PM (GMT -6)   
I wanted to say good bye to all in here. I have appreciate your support in the past year. Although my husband's PCa continues to be under control, the colon cancer is catching up with him. Today, we decided to discontinue the chemo. It is unclear how much time we have left. It is heartbreaking.
Again, thanks and good luck to everybody in here. Dutchy
Dutchy's husband
Diagnosis: 7/6: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia

Treatment: 3 monthly Lupron injection (22.5 mg) + Zometa (4 mg IV). Added daily Casodex (50 mg) in September 2007.

07/06: PSA 1946
25/06: PSA 407
20/08: PSA 3,7
29/09: PSA 0.7
14/10: PSA 0.17
18/12: PSA < 0.003 and continues to be undetectable

May 2008: diagnosed with advanced colon cancer (over 90% of liver covered with tumors)
July 2008: minor heart attack


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 9/19/2008 9:15 PM (GMT -6)   
God Bless Dutchy. Will keep you and yours in my thoughts.

Swim
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 9/19/2008 9:29 PM (GMT -6)   
Hi Dutchy and Husband,
I've read your post with great sorrow and despair. I am so sorry to read about your situation. Non of us here know what the future has store for any of us, but I hope that the brotherhood here at this forum, has made things a little bit easier for both of you. I'm just sorry that we could not do more.
 
With kind regards,
Magaboo

Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08
Next step: RT?


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 9/19/2008 9:37 PM (GMT -6)   
Dear Dutchy,

Thank you for updating us. MaryLu and I are so sorry that it has come to this. While we all know we face an ucertain future, it is always a shock when one of our fellowship comes to this. Be assured that our thoughts and hopes are with you...

Jim

Post Edited (biker90) : 9/19/2008 9:00:30 PM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/19/2008 9:46 PM (GMT -6)   
I am so full of sorrow about this news. My heart bleeds.

May you have Love and Peace in the coming days...

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 9/19/2008 9:57 PM (GMT -6)   
In times like this I am always at a loss for words. We're sorry to hear you news. Bless you and our thoughts will be with you.

KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 9/19/2008 10:03 PM (GMT -6)   
Dutchy-
You have been such a source of inspiration and hope throughout this process. Medical miracles happen every day and I will pray for one for you. Sending you love, friendship and a shoulder in Seattle.

Your friend,
Chayna
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 9/20/2008 5:14 AM (GMT -6)   
I to would like to extent my thoughts, I have followed your post from the beginning and it seems as though the journey just kept getting tougher. I hope in the days, weeks, and months to come that as the days seem dim, they can be lit my memories of the friends that know and love you, and that includes all of us hear at healing well. I am heading out to my Champions of Hope of event in a few minutes and I assure you my thoughts will be on the fellowships I have made here and Dutchy that includes you.
I know you are signing off, but I hope you can find the strength to keep us updated as to yours and your husbands condition.

peace and much love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 9/20/2008 6:11 AM (GMT -6)   
I am very sorry to hear your news, the decision you have made is a courageous one. We never know our future, probably a good thing. I will remember both of you in my thoughts and can only hope that things turn out the way you want them to. Good Luck.
Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


Tony1951
Regular Member


Date Joined Jul 2008
Total Posts : 50
   Posted 9/20/2008 11:15 AM (GMT -6)   

Dutchy,

I too want to thank you for your posts and pray that you have peace and calm days ahead -- all that any of us are given with certainty is this moment.

 

The other Tony


Name: Tony  Born: 1951
Diagnosed PCA 7/23/2008;  Prostate Volume 19 grams
Cancer Location: Right Mid and Right Apex 2 of 12 cores positive
Percentage of tissue involves 14%  Gleason 3+4=7 4+4=8
PSA levels  6/08/08 7.7;  6/30/08 6.8
Began HT Zoladex 8/26/2008
As of 9/11/08 I am waiting to start IMRT IGRT
 


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 9/20/2008 12:54 PM (GMT -6)   
Dutchy

You are in our thoughts and may you have as many peaceful days ahead as possible. Thank you for letting us all get to know you and helping so many others on this site along the way.

Good luck and peace to you
Norskie
norskie
Current age 50, Age at Dx-48 PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3
March 27th PSA .422 Begin Salvage Radiation April, 14 2008
Radiation Complete June 4, 2008 36 treatments
August 5, 2008 PSA .09 or < .1 again
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 9/20/2008 3:15 PM (GMT -6)   

Dutchy,

I understand how difficult it is to stop chemo--may each moment you spend with your husband be filled with love and peace. I will keep you both close to my heart.

Karen eyes


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st round Chemo
6/18-20/08--2nd round Chemo
7/2/08--blood clot--Coumadin started
7/10/08--Stop chemo--cancer not responding
7/20-24--hospitalized for some type of seizure
7/24--New chemo given-no response
8/20/08--Start Hospice
 
 
 


beachbum50
Regular Member


Date Joined Sep 2007
Total Posts : 293
   Posted 9/21/2008 1:24 PM (GMT -6)   

Dutchy, I wish I had some magic words to offer you both comfort and peace. Please know that we will keep you both close in our hearts and prayers.

Beachbum


Beachbum
 
PSA 10 June 2007
Biopsy July 2, 15 of 16 samples positive
T2C
3+3=6
prostate weighed 40 grams
Di Vinci 10/09/07, four hours on table, 3 in recovery
Total time in Hospital: 29 hours
Record for Dr. Lance, 70% of prostate had cancer, but NO spread, clean margins,Clean nodes,
First PSA at 5 weeks, UNDETECTABLE!
Catheter out at seven days, dry from hour one!
Second PSA 19 weeks post op, UNDETECTABLE 2/11/2008
Third PSA 5/12/08, six months post op, UNDETECTABLE
Fourth PSA 8/21/08, nine months post op, UNDETECTABLE
The Lord has truly Blessed me.


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2331
   Posted 9/21/2008 1:46 PM (GMT -6)   
My heart goes out to you and your husband.  I hope that you will find peace and comfort during this difficult time...Tim

lifeline
Regular Member


Date Joined Aug 2007
Total Posts : 67
   Posted 9/21/2008 2:37 PM (GMT -6)   
Hello Dutchy: I am so sorry to hear this news. My heart aches for you and your husband. I pray that your time together is full of have peace and love. I pray for a miracle for both of you. You have been such a strong support to everyone here. You will be in my thoughts daily. I understand you must focus everything on your husband, but i hope at times you are able to let us all know how both of you are doing. We will continue to keep you in our thoughts. Good luck to you both. Lifeline

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/21/2008 3:14 PM (GMT -6)   
Remember Dutchy,
This site is a support site for the guys and the gals. If ever need anything we will always keep you close in our heart! God Bless!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 9/22/2008 9:34 AM (GMT -6)   
Once you are part of a family (like Healingwell), you will always be a part of the family. Sort of like adoption. Whether you are here or not, you will always be somewhere in our minds. We wish you the best in difficult times.

Your decision is one which resonates to everyone here. We have all at some point thought "what if?" So we all feel and share your pain. When you hear about people for whom cancer has gotten the better of them, it is a reminder that this is why each and every one of us here fights cancer and is here to support each other.

What a difficult decision, but one which we all hope you find peace with now and in the future.

We will keep you in our thoughts.
 
43 yo. now
 
5/07 PSA 4.65 at routine physical
6/07 biopsy Gleason 7 (3+4)...diagnosed at 41 y.o.
6/07-9/07 manic research and interviews with physicians across the country in search of the "right" decision.  I went to Mass General in Boston, Loma Linda, University of Chicago and Northwestern.
9/17/07 - RRP at Northwestern Memorial by Dr. William Catalona.  Thankful the father of the PSA test was right here in Chicago.
Post op path report confirmed Gleason 7 (3+4). negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  
9/27/07 - catheter removal...let the games begin...
12/31/07 - threw out the pads (I only had used 1 pad per day for protection against minor drips)
 
I started Trimix 8 weeks after surgery with success.  I hope someday I won't need injections, but I hope more that my PSA stays at 0 forever.
 
9/17/08 One year past surgery and doing well.  PSA less than .1 and ED continues to get better and showing reasonably good results using Levitra which for a long time did nothing. 


dutchy
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 9/23/2008 8:18 AM (GMT -6)   
Thank you all for your warm replies. I will try to drop a line from time to time.

My husband was able to go to his daughter's wedding this weekend. That meant a lot to him. We're taking it one day at a time, and Im simply hoping for as many good days as possible. I am very happy that we can take care of him at home. I am blessed with my brother in law who has always been extremely helpful, and now has started working from home (we're staying with him).

Karen, our husbands seem so much alike in terms of their illness. I am wishing you a lot of strength.

Love,
Erlien
Dutchy's husband
Diagnosis: 7/6 2007: PSA 1,946, multiple bone metastases in thoracic, lumbar spine, pelvis, bilateral ribs and proximal left tibia

Treatment: 3 monthly Lupron injection (22.5 mg) + Zometa (4 mg IV). Added daily Casodex (50 mg) in September 2007.

07/06: PSA 1946
25/06: PSA 407
20/08: PSA 3,7
29/09: PSA 0.7
14/10: PSA 0.17
18/12: PSA < 0.003 and continues to be undetectable!

May 2008: diagnosed with advanced colon cancer
May - September: chemo treatment
22/09: start hospice care


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 9/23/2008 10:36 AM (GMT -6)   

I have been here (but lurking) for some time.  I, too, am heartbroken at your latest news - when one of us hurts, we all seem to hurt.

Our wishes are with you and your husband - please know you are not alone.

JustJulie


DanielleS
Regular Member


Date Joined Jul 2007
Total Posts : 57
   Posted 9/23/2008 10:49 AM (GMT -6)   
You have faced so many challenges. You are right, all we can do sometimes is take life one day at a time. That is wonderful your husband was able to attend his daughter's wedding. Please check in when you can and know many good thoughts and prayers are being sent your way.

lvdgs
Regular Member


Date Joined May 2008
Total Posts : 70
   Posted 9/23/2008 2:41 PM (GMT -6)   

I'm at a loss for words. Please know that you are both in my thoughts and prayers.

Gail

 


hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 9/23/2008 3:21 PM (GMT -6)   

Dutchy,

I am wishing you the same.

Love, Karen eyes


Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st round Chemo
6/18-20/08--2nd round Chemo
7/2/08--blood clot--Coumadin started
7/10/08--Stop chemo--cancer not responding
7/20-24--hospitalized for some type of seizure
7/24--New chemo given-no response
8/20/08--Start Hospice
 
 
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 9/23/2008 4:22 PM (GMT -6)   
Dutchy-

You and your husband are in my thoughts. I wish you both peace.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 9/23/2008 8:13 PM (GMT -6)   
Dutchy, I am so sad for you...I found this quote from Helen Keller. It may or may not help..."Believe, when you are most unhappy, there is something for you to do in the world. So long as you can sweeten another's pain, life is not in vain. (Helen Keller)"

God Bless you both. Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 21 2008


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 9/23/2008 8:55 PM (GMT -6)   

Dear dutchy,

My sorrow at your trial is . . .  I don't know what it is.  I have been following this message from you and have been unable to reply.  I hope that you somehow find peace and even contentment knowing that you and your husband loved each other well.  My best to you.

Bill


August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
 

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