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lemonlime1
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 9/25/2008 12:39 PM (GMT -6)   
  hi all lemon lime here a little help please from u veterin guys 8 weeks out staying pretty dry at nite . but still 5 pads a day . is this normal . my docs pa says it could take up to 8 months . every time i feel im doin better i get a day thrown in there that feels like, day 1 of leaking back 2 7 pads 4 that day and do u guys think all these keegels really do somthing thank you again lemon lime robotic 7- 08 rochester ny dr joseph ... smurf

RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 9/25/2008 1:27 PM (GMT -6)   
Lemon,
I am no poster child for this either. I am happy for the guys who say they were dry from day 1, but my intermittent dribble also goes on at 4 & 1/2 months. Interesting, that I thought when I was about 8 weeks out I would dry up any day. I am still using 1 pad at night & at least 1 during the day. Some days are worse than others and I cannot determine when the worst days will come.

As far as keegels, I have been slack in that and perhaps that can be blamed on my extended continual dribbling. I read from someone that when you are eliminating yourself to stop and hold it several times, and I started doing that about a week back. So far that has not done anything significant either.

Thankfully, I have learned to live with it. But, there are times when it is irritating to say the least. It seems the worst is when I am surprised by something that momentarily takes me off stride when walking or doing anything physical. If someone comes up behind me unexpectedly, I will invariably lose momentary control and a few events of this nature will make a difference during the day. Funny but not funny.

I do think you are a little early on expectation at 8 weeks. I think you will see gradual improvement, but if you end up like me - I have made it so far and it seems like improvement has basically in a holding pattern at almost dry.
RB

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4831
   Posted 9/25/2008 2:35 PM (GMT -6)   
It's only been 13 days since the last time you brought this leaking up...Give it two more MONTHS and then tell us how it's going.

As your doc's pa mentioned, it could take up to 8 months.
Age 53   - 5'11'   205lbs
Overall Heath Condition - Good
PSA - July 07 & Jan 08 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 9/25/2008 2:53 PM (GMT -6)   
I am out 9 weeks out of surgery, 1 pad a day still have the dribbles when raising voice, getting up, passing gas...When I walk and exeercise I think it gets much better, but dont overdue it. I still get up 3 to 4 times a night to goto the bathroom which I wish would slow down for my sleeps sake.
Age Dx 37, 7/2008
First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008
Biopsy : 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008
Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008
PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
First PostOp PSA 9/2008: <0.01
2nd PSA 12/2008: Praying for <0.01
 


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 9/25/2008 4:32 PM (GMT -6)   
I had minor incontinence.  Surgery Sept 17, '07 and threw pads out end of December around Xmas.  And even then, I had my doubts.  A year out and really, it's a barely perceptible issue other than a very occassional drip and I mean 1-3 drops.  I mean, days go by with no issue and then I do something or move in a funny way that I sense a drop.  So be patient.  It's hard, I know.  I was crazed, and wondered if it would ever get better.  But it did.

 
43 yo. now
 
5/07 PSA 4.65 at routine physical
6/07 biopsy Gleason 7 (3+4)...diagnosed at 41 y.o.
6/07-9/07 manic research and interviews with physicians across the country in search of the "right" decision.  I went to Mass General in Boston, Loma Linda, University of Chicago and Northwestern.
9/17/07 - RRP at Northwestern Memorial by Dr. William Catalona.  Thankful the father of the PSA test was right here in Chicago.
Post op path report confirmed Gleason 7 (3+4). negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  
9/27/07 - catheter removal...let the games begin...
12/31/07 - threw out the pads (I only had used 1 pad per day for protection against minor drips)
 
I started Trimix 8 weeks after surgery with success.  I hope someday I won't need injections, but I hope more that my PSA stays at 0 forever.
 
9/17/08 One year past surgery and doing well.  PSA less than .1 and ED continues to get better and showing reasonably good results using Levitra which for a long time did nothing. 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 9/25/2008 10:23 PM (GMT -6)   

    Lemon,  Hang in there and give you body time to readjust to things.  Yeah, some are dry overnight, some take weeks, some months and yet others like myself never got dry without drastic measures.  Only time will tell.  Just keep working on it and see what happens.  I would say after 12 months what you have is what your gonna have.  Then go from there.  We will be pulling for ya.

    KW

   


    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


lemonlime1
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 9/26/2008 7:39 AM (GMT -6)   
 thank you all for your support . steve in dallas semms to me it bothers you that i brought this up after thirteen days , it is concerning for me if it bothers you then dont reply . i dont understand y it would  thanks any way for nothing lol lemon lime have a good day tongue

Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 9/26/2008 8:44 AM (GMT -6)   
lemonlime, even though I am lucky and was continent the day following cath removal, I was prepared to battle it for months, as most/some do. I understand your concern, and you are posting here out of fear that it will never go away, it will, just takes time. Personally, I was hoping my ED would resolve quickly, but no such luck. Meds help and make me functional, but I miss the "old days", but I am hopeful that, over time, I will continue to see gradual improvement. Heck, I may even wake up one day and this will be gone too, just like some here, but in the meantime I will wait. At least we are alive, cancer free, and have a resource like HealingWell that we can lean on. Stay in touch.
Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4831
   Posted 9/26/2008 9:17 AM (GMT -6)   
lemonlime1, I apologize if my post came across as rude…I thought you knew and understood that it could take Months for the leaking to stop.
Age 53   - 5'11'   205lbs
Overall Heath Condition - Good
PSA - July 07 & Jan 08 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy


lemonlime1
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 9/26/2008 10:51 AM (GMT -6)   
ty steve all is good it just gets nerve wracking . have a nice weekend

lemonlime1
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 9/26/2008 10:53 AM (GMT -6)   
chas thank you so much the support makes me feell better thanks to all you guys andyes it is better than the alternative thatswhat my doc says

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4831
   Posted 9/26/2008 12:36 PM (GMT -6)   
Speaking of leaking….I had my catheter removed after five weeks. Got it removed at 9am…..Not sure what I was thinking, but I was wearing boxer shorts to the doc’s office and then went to work….I peeeeeee’d all over myself all day long. Co-workers wouldn’t even go to lunch with me…I ended up calling a pizza delivery…
Age 53   - 5'11'   205lbs
Overall Heath Condition - Good
PSA - July 07 & Jan 08 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy

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