Thanks to my friends!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/28/2008 2:21 PM (GMT -6)   
To the members of HealingWell,
Next week will be the 2nd anniversary since my PSA was discovered at near 20.  I wasn't quick to join here but I sure am glad I did.  It was in December, that I learned I had the disease, but I stayed quiet until I knew for sure.  Once I did find out, I also found that I needed the support found here.  I guess I am now a veteran at this point, and I feel the obligation is mine to stay and support others as they come here, and also my friends I have made here, too.  Even as I see new guys and gals, I see friendship and caring like I have never witnessed before. 
 
I was chatting with Biker and KW last night, and it was like I was with my family...that's because I was.  If anybody would like to, my Yahoo Messenger ID is 'tcnec'.  It's enabled in my profile as well.  I don't always have time to, but chatting with y'all is very enjoyable!  Thank you all for being here, though it's unfortunate that we are here.  But it's good to be among friends.
 
Peace!
 
Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 9/28/2008 7:18 PM (GMT -6)   
Thanks Tony I could not imagine HW without you around. You are a great friend and a wonderful advocate of PC.

peace to you brother
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 9/28/2008 9:10 PM (GMT -6)   
The Feeling is mutual here Tony. Your one of the BEST here. Keep hangin in there.
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 9/29/2008 9:29 AM (GMT -6)   

Tony,

Thanks for getting involved and thanks for all your informative posts.


Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 Positive
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Catheter removed 8/26 - reinserted 8/29 - removed 9/2


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 9/29/2008 12:11 PM (GMT -6)   
Tony,
 
Its always good to hear and see you on this site.  You have given me so much solid information.  Let us know when you get your latest Zero for your 2nd anniversary.
 
I am going tomorrow for my 6 month blood draw.  For me every three months is a reality check thats for sure.
 
All the best,
 
Frank

Diagnosed 01-08-08 @ 53 years old 
DRE normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
PSA @ surgery 6 
Bone and Ct scans negative
clinicaly Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage Erectile function better with Viagra
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on top of prostate. 1 positve margin measureing less than .5 ml at urethra and bladder..
Six week PSA < 0.1 , 4 month PSA <.05 Gen II test.  Urologist recomends to hold off on Radiation and watch PSA closely. Oncologist and Radiation Oncologist seem to lean to doing pre-emptive radiation.Uroligist says 50/50 chance of PSA re-occurence.  
I have decided to hold off and see for 3 months.
Next PSA October...
 
 
 
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 10/1/2008 2:10 PM (GMT -6)   
Hi Tony,
It sure feels good to see a friend like you doing so well. This site just wouldn't be the same without you. Thanks for being here for us and congratulations on your great PSA tests.
All the best to you.

Magaboo
Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08
Next step: RT?


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 10/1/2008 3:09 PM (GMT -6)   
Thanks for your postings, and being there!!! LIVESTRONG!!!

Age Dx 37, 7/2008
First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008
Biopsy : 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008
Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008
PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
First PostOp PSA 9/2008: <0.01
2nd PSA 12/2008: Praying for <0.01
 


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 10/1/2008 4:45 PM (GMT -6)   
Tony, you are the one who deserves the THANKS for all you have done both here and elsewhere to support all prostate cancer victims. I have found your posts and site referrals to be a invaluable source of info and inspiration. Your time here as a member and moderator have had positive effects on my outlook, and I'm sure those of others as well. You and those like you have enabled me to pick up the sword and hope to fight along side of my brothers and sisters in this war. It is my wish to make it easier for those who follow us, and disseminating info and knowledge will make it easier for them. When you get back to Trussville, I hope to meet you, it would be my pleasure.

Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 10/1/2008 7:55 PM (GMT -6)   
Can you believe everything you have been through in the past two years? It's amazing isn't it. I wish you didn't have to go through this journey, but I am grateful to have you in our lives. You have really been an angel for so many of us. Cheers to you, the person you are and the person you have become.
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 10/1/2008 8:28 PM (GMT -6)   
TC - like most things surrounding this disease, it's one of those milestones you wish you didn't have to 'celebrate' in the first place.
None the less, I'm glad to know you!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (9-22-08)
PSA: 39.57
Taxotere + Prednisone + Atrasentan
[6th Treatment on September 22]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/1/2008 9:32 PM (GMT -6)   
Thank you all again,
But it is you that makes me hang and participate. Together we can help others and share. That can't be a bad thing. Your love and caring makes this site what it is. I am forever indebted.

Friday is my 2nd year after the detection that proved to be an advanced disease. Really nothing special. No PSA's, no treatments. Just a milestone. I feel good and remain hopeful while still undergoing treatment. While there are a couple more milestones nearing, the tests last month will represent where I am until January ~ undetectable!

I'm OK with that. Bless you all!

Peace!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


MosesChosen1
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/1/2008 9:47 PM (GMT -6)   
Hi Everybody. I am Ron in Los Angeles, California. 60 years strong. I just joined this forum moments ago. Not knowing how to post to "ALL" I just clicked this post to post on. So I will need a tad bit of your help with this message board if you please? Thank you very much
 
I had my prostate removed June 20th this year. W0W! That was 18 days after I had carpal tunnel surgery. Double W0W! From the time I was told I had cancer, things went so fast, I really did not have a chance to figure out how I should feel or in the future what I should expect to feel? I am glad to report I was informed that it was 100% removed, however I will go back to the Dr. Tuesday to get my PSA level results. Keep em crossed for me please. Thanks. I had the best of care in surgery, I had the #2 prostate surgen in the USA and they flew in another surgen from Duke University to assist him. So I had no concerns about who was doing what. I am at the point to where I would like to share and hear from all that would like to share back about the PROSTATE cancer issues and all. I have not yet posted a profile, but will for sure explore this board to find out where to do so. Not wanting to be long winded my first time out I say thanks now and am for sure looking forward to meeting all of you.
 
Ron

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/1/2008 9:59 PM (GMT -6)   
Ron,
You are most welcome here. Whatever it is that you may need, it's here. I will start a thread for you shortly. Feel free to look around. What you will find is caring people.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


califguy
Regular Member


Date Joined Sep 2008
Total Posts : 72
   Posted 10/1/2008 10:10 PM (GMT -6)   
Congratulations to you TC! yeah
 
When I was at the PCRI seminar in Los Angeles, one of the speakers was a Dr N Vogelzang from NVCI. Is this someone you are familar with? My doctor was one of the speakers also. I was so impressed with the docs who spoke there. It gave me hope that even when things start to go bonkers, these docs have many many options to work from. Before I had PC and researched it, I didn't realize there were so many things to do and to be able to keep up hope!
 
You are doing great in spreading the good news and I am happy your results are good news also!
 
 

Don't get discouraged!!
CalifGuy
 
3+4=7 gleason
7.5 PSA
4 out of 20 biopsies were cancerous
daVinci Robotic surgery July 24, 2008
Univ of Calif San Francisco Med Center  Dr Peter Carroll
In hospital 2 nights altho I had option of leaving the next day but stayed due to distance home.
Contained in prostate, not spread
Six weeks post surgery PSA less than .01


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/1/2008 10:21 PM (GMT -6)   
Bill,
Nick is my oncologist. He is my team member, and he believes we are a team not a doctor/patient relationship. I am blessed to have him as my primary cancer doctor. He is a sharp man. I love your slogan in your signature! Amen!

I knew of Peter Carroll before I had my surgery. I would have had no problem with him doing my surgery, but I chose the City of Hope so I could be close to family, and I felt there was no trade off. Kawachi, Wilson, and Carroll are the gold standard for LRP on the west coast. I knew that soon after Dx.

Thank you so much for the very kind comments on my website!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


califguy
Regular Member


Date Joined Sep 2008
Total Posts : 72
   Posted 10/1/2008 10:31 PM (GMT -6)   

I was so impressed with everyone who was at that meeting. Almost all of the 10 or 12 speakers were so personable and team players. This was not at all what I was expecting from the top doctors. I knew the UCSF team was that way but was amazed that these top notch ones all are. Guess that is why we all think they are the best!!!!

I work in a huge medical facility with 100+ specialists. Not all are so "team" minded.... smilewinkgrin


Don't get discouraged!!
CalifGuy
 
3+4=7 gleason
7.5 PSA
4 out of 20 biopsies were cancerous
daVinci Robotic surgery July 24, 2008
Univ of Calif San Francisco Med Center  Dr Peter Carroll
In hospital 2 nights altho I had option of leaving the next day but stayed due to distance home.
Contained in prostate, not spread
Six weeks post surgery PSA less than .01


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 10/2/2008 8:32 PM (GMT -6)   
Tony - go do something fun tomorrow....have a beer, go for a ride in the mountains, play guitar....
bottom line, enjoy life!

Peace be with you my friend!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (9-22-08)
PSA: 39.57
Taxotere + Prednisone + Atrasentan
[6th Treatment on September 22]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


Jim-N1BRP
Regular Member


Date Joined Jul 2006
Total Posts : 165
   Posted 10/3/2008 5:24 AM (GMT -6)   
Congrats TONY,
It GOOD to have a friend like you here!!!

Jim, 54,~Jim-N1BRP. My Journey
Diagnosed: 12Nov. '07, Age 54

Treatment Started : 31 Jan 08

Completed 31 Mar 08

42 treatments 1.8 Gy M-F for a total of 75.6 Gy.

Prostate Biopsy: 18Sept '06, - 10 sample all negative, Prostate size 36.3 cc

Prostate Biopsy : 12Nov '07, Biopsy - 14 sample 2 positive, one Gleason 6 at 5 %,
other Gleason 6 at 15%- Stage T1C -Prostate size 40.2 cc

Bone Scan: 12Dec '07, - Hot Spot on Brain
Family history: Father and two uncles  die from PCa

Other: GERD, 30% Carotid artery blockage, Kidney Cyst, Asthma

Meds, Hytrin, BusPIRone, Trazodone, Tramadol HCl, Omeprazole, Plavix, Albuterol, Multi Vitamin  Mens

PSA's                   fPSA

1.2    Oct  05

3.61  Jul    06    

2.6    Sept 06          19%  

2.6    Apr 07             3% Oh NO

Post Treatment PSA's

1.16 May 08

0.83 July  08

0.83 Oct  08

 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/4/2008 7:36 AM (GMT -6)   
I think we are all in the exact place we are supposed to be....Tony, you have found your niche! What would this site be without your words of encouragement and wisdom. By the way, the abbreviation list is fabulous!! Thank you very much! Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 21 2008

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 24, 2018 11:11 AM (GMT -6)
There are a total of 2,974,723 posts in 326,202 threads.
View Active Threads


Who's Online
This forum has 161302 registered members. Please welcome our newest member, Rahul40.
381 Guest(s), 6 Registered Member(s) are currently online.  Details
SpecialLady, countess18, Scaredy Cat, Hibee, Old Mike, countrymusic