FAQ's & A's About Penile Implants...

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Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/29/2008 9:22 AM (GMT -6)   
HW Friends,
 
leucadiabeach began a post about Penile Implants and concluded his first post by asking some questions about the implant.  He expressed a desire for other Q & A's.  I attempted to answer his questions he in that first post but as I went back and re-read his questions and my attempt at answering, I realized that although I could answer some of his questions from my personal experience, since I had not yet been activated where I could actually experience an inflated erection, my experience was limited. leucadiabeach recently asked if there was anywhere which was more detailed (not his exact words) about information.  Art, a seasoned pro with implants, stated this site was the most detailed. 
 
Therefore I begin a new thread, hoping questions will be asked so that those of us who have received the implant can give at least, our own experiences (good and bad).  I acknowedge at the beginning that my personal experiences are not the same as, for example, Art's.  None of us who have received the implant would claim to have all the answers or that our answers would be exactly clinically correct. 
 
Below are leucadiabeach's questions and my responses at that time.  I will try to do an update to his questions, since now I have been activated for some time and do have more experience.  I hope those of you who have been lingering and reading and who subsequently have questions will post them.  Someone has said that knowledge is power.  So fire away.  So, leucadiabeaach, in response to your desire to learn more, and in the interest of prostate cancer survivors (and others) who have not regained potence following surgery, even though you've tried everything else, fire away, if you have questions.  Here are leucadiabeach's original questions and my answers:
 

How good is the implant erection? 

I will be activated in one week.  I perhaps could answer yor question after that time.  From what I read of others who have had the implant, the general consensus is that the implant erection is good.

Now that I have been activated for six weeks, I can answer a little more detailed.  The implant erections is much, much better than the days of ED following surgery.  In my opinion, mine is not quite as good as before, due mainly to the 3/4 of an inch shortening I experienced.  But it certainly beats no erection.  The wife and I are now experiencing very, very good intamacy again, with good orgasms.  It is different... but good.


Do you still feel the same sensations?

Yes. 

More:  I was not as sensitive as pre-prostate removal, but have now gained back full sensitivity.


Is it obvious that there is something artificial in there to you and your partner?

It's obvious to me because I know it as a fact.  But I am told others do not notice unless informed.  There is some extra "hardware" in the scrotum, but it is not readily noticable.


Can you ride a bicycle with one of these implants.

Yes; after the doctor releases you to do so.


Do you feel it when its not inflated?

I have not yet been inflated.  Will know in a week.

More:  When the doc first inflated, it hurt.  He grabbed it, bent it around, and attempted to explain some things.  Now that I am six weeks post activation and have inflated and deflated tens and tens of times since then, and have regained intamacy with my wife, the pain is almost... almost gone.  I have been told by others who have experienced the implant, that after more time, I will not notice any difference.  I am close to that point now and I am enjoying my new erections.


What do you look like in the locker room when its not inflated? 

I have not been to the locker room and only my surgeon, his nurse, the uro nurse at the hospital, the class of medical student (Next day after surgery...boy, was that an experience), and a PA has seen it.  But I can tell you in the mirror I look good.  I mean, in my opinion, I've never looked better.  I think my wife agrees.

More:  Flacid, I look larger than my former flacid state.  This is due to the fact that implants do not normally recede up into the body as before implant.  Neither does the penis shrink as much as it did pre-surgery flacid.  This means the "look" is noticably larger.  This bothered me at first because I did not like the idea of showing a bigger "package" through my slacks.  Now I am used to it and don't really care.  It is now who I am.  In my opinion, I still look better down there than ever in the mirror.  Of course, looks mean nothing if it does not work.

Nother question and answer:

Is it true that you will lose some length in the penis after implant?

I did.  I lost about 3/4's of an inch.  It seems that most do lose some.  But I gained in girth.  That does make sex with the wife a little different.  But the important thing is that although it is different, it is still good... very good.  It works. 

Any more questions?  Those of us with experience will attempt to answer.

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 

Post Edited (Gene214) : 9/29/2008 5:32:22 PM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/29/2008 11:38 AM (GMT -6)   
Excellent post Gene,
If you can modify it and add the Arrow Icon to it like on my informational posts, and I will bump it with mine once in a while.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 9/29/2008 11:55 AM (GMT -6)   
Gene -

This is a good thread -

I will second Gene's thoughts - from conversations I have had with other implant patients over the years, Gene's responses are pretty typical with the first implant. Of course, everyone will react differently to the procedure, and as Gene said - these are our personal impressions and experiences.

Some will lose more length, but others like Gene have better results.
The flaccid state will not be the same - you will have adjustments there - but it is a minimal inconvenience.

My main contribution will be when someone is facing a revision or replacement of the implant.
Mind you, many will never need to have additional implants, due to the advancements in the device.

So far, it looks like most people here have experience with the 3 piece inflatable implant, which I think has the best and most natural looking of the available implants. But then, I have only had the 3 piece implant. Others might find the 2 piece more to their liking.
I know of no one with the malleable prosthesis, so have no first hand knowledge of that type.

I just want to be able to use my experience to help in any way I can - just like the rest of the poster here on the board.
We are here for support - for each other as well as those of you who wish not to participate, but are seeking real answers from real people.
Join us.
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/29/2008 3:23 PM (GMT -6)   

Uh... Tony...

I'm turning red right now because I do not know how to do what you asked me to do about adding an arrow and modifying, etc.  How... where do I do that?  Sorry I'm not very computer literate.  ... Now I feel very, very flushed among all of these computer gurus.

Gene214 


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/29/2008 3:31 PM (GMT -6)   
LOL, don't dispair! We can do anything as a team!

While logged in, click on your post.
Look at the bar where is says "Posted Today...".
All the way to your right you will see what looks like a pencil and an "x".
Click on the pencil, and you are now editing your post.
On the top of your edit window you will see "Post Icons".
You can select any icon. I suggest the Blue Arrow because that's what I look for when I bomp my posts to the top. That would be the second from the left.

When you have selected it, go to the bottom and click submit...

Thank you Gene...

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Smokie
Regular Member


Date Joined Oct 2008
Total Posts : 46
   Posted 10/3/2008 11:52 AM (GMT -6)   
Gentlemen,
This is my first writing. I wanted to say thanks for your open and honest discussions on a difficult subject. I am two years post RP, and finally considering the implant. My wife's all for it (she'd schedule it tomorrow if she could)! I'm in the 'cold feet' stage, although I've exhausted all other options. At 43, I'm not ready to give up.
This must sound like an odd question (but it seems I've lost all dignity over the last two years). I understand AMS has a video on their implants, showing one being inflated/deflated. Anyone know where I could find this, or something else like this? I want to know what it looks like post-op, how awkward is it, etc...
Thanks

Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 10/3/2008 12:12 PM (GMT -6)   
Hi Smokie -
You will find old implant veterans like myself, as well as new implant patients who will gladly answer any questions you might have, either here on the board (which helps many who would otherwise not participate in this forum). Or via our email contacts.
There is nothing to be bashful about. You have a medical condition that you are doing your best to live with and improve if possible. I personally don’t give a flip-flop about who knows of my condition. I hope others see me as a man greater than the sum of his body parts. But—it is nice when things work as nature intended them to function.

There are several places to view the AMS produced video.
http://www.phoenix5.org/menuvideos.html has a couple links to videos -

The link below is the procedure video. This might make you a little squeamish - but it's not that bad.
http://technorati.com/videos/youtube.com%2Fwatch%3Fv%3DuCIf4Pw6gck

Ask away Smokie - contact any of the fine people on the board. They are here only to help and support you in your journey to better health and life.
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/3/2008 1:56 PM (GMT -6)   

Smokie,

I will be glad to share with you the most helpful site regarding penile implants (in my opinion).  The site contains both pre and post implant photographs of some of the guys who have posted there.  The photos also include both flacid and erect implanted penises.  It is not intended to be a **** site, but the pictures are explicit.  Voyers are not welcome there.  The guys who posted there are very candid about the results.  This site was a very big help to me.

If you, or anyone else, want the site, please email me.  It is against the rules, as I understand it, to post another web site on this forum. 

The best to you.  Sorry such a young man must investigate this possible solution. 

If you plan on posting here often, it would be good to include your profile, or signature, which will appear with each future post.  This sometimes helps others to know how to respond to questions you have. 

Gene214 

P.S  I did not think about the word I used above being censored.  It's just the word used for explicit pictures, which begins with a "p" and the rest of the spelling is "orn".

PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 

Post Edited (Gene214) : 10/3/2008 2:01:31 PM (GMT-6)


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 10/3/2008 5:52 PM (GMT -6)   
Smokie, welcome to the forum. What options have you tried for ED? At your young age, I imagine all your equipment would have been working before surgery, so you have some plus factors working for you.

I was fully functional before surgery, but now have total ED (no nerves spared). After some practice I found that injections (bimix) and the VED work for me. There is a learning curve associated with both those aids, so it's important not to give up after just a few failures.

Also, I have heard of guys recovering natural function after 3 or 4 years, so there is still some hope yet!

I don't see an implant in my future, but have heard only good about them from those guys who have had them.
Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0 


Smokie
Regular Member


Date Joined Oct 2008
Total Posts : 46
   Posted 10/6/2008 6:04 AM (GMT -6)   

Hey guys,

I will put some info on my profile, but till then, here is my situation. I'm 43, two years removed from RP. Gleason was 7 pre-op, 6 post-op. All PSA's have been good since. I functioned normally before surgery. Had robotic performed, nerves spared.

Since surgery, I've tried pills of course. I get some reaction, but side effects are pretty rough on me. Headaches last throughout the following day.

I tried the pellets and the shots, but with painful results. Since, I've learned that a certain percentage of men have adverse reaction to the drug used. For me, I received partial erection, but laid in the floor holding myself praying it would go away the whole time. It was very painful.

Finally tried the pump. Dr. suggested it early on, but I guess I had a stigma about it. It will bring some results (about half what it was), but it won't maintain. I haven't tried the bands, but Dr. told me not to until I got more favorable results. I'm still pumping, as I was told I should keep trying even if I elect to go with implant.

Gene214, thanks for the info on the website. I will send you an email today. To everyone else, I sincerely appreciate the responses.


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 672
   Posted 10/6/2008 9:46 AM (GMT -6)   

Smokie

Just to add one thing regarding injections.  It sounds like your painful experience was from "Caverject".  If that is the case, there is another option.  The Caverject is 100% alprostadil.  Some of us have changed to a "bi-mix" injection.  It does not have alprostadil, the ingredient contained in Caverject.  I no longer have pain when injecting, and my results while not perfect are good enough.

My doctor prescibed Caverject because it was a fully prepared kit.  I needed to insist that we try bi-mix.  The bi-mix must be prepared by a compounding pharmacist, so it requires a little more effort.

If you haven't tried the bi-mix, you should before pursuing the possibility of an implant.


PSA up to 4.7 July 2006 , bump noted during DRE
Biopsy 10/16/06
T2A, Psa 4.7
Gleason  4+4=8  right side
DaVinci Surgery  January 2007
Post op confirms gleason 4+4=8
No extension or invasion found
No continence problems
PSA 90 day -.01  , 6 month -.01 , 9 month +.02 , 1 year +.02
Using Bi-Mix or VED 
 
 
 


Smokie
Regular Member


Date Joined Oct 2008
Total Posts : 46
   Posted 10/6/2008 9:52 AM (GMT -6)   
Thanks. I had not heard of the bi-mix, but I'll ask about it my next visit.

Age: 43
RP: 9/06
Robotic, nerves spared
PSA: good (less than .05)
Currently dealing with RSD (nerve damage) in right arm, caused from breaking my wrist in spring 08 while trout fishing with son. Not related to ED, just general info about the year I'm having so far.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 10/6/2008 10:49 AM (GMT -6)   
Smokie, there's numerous threads on injections and ED here. Here's a few to get you started. Bimix or Caverject isn't the only solutions, there a few others, but bimix seems to be the painless choice for most of us.

http://www.healingwell.com/community/default.aspx?f=35&m=1062508
http://www.healingwell.com/community/default.aspx?f=35&m=1066477
http://www.healingwell.com/community/default.aspx?f=35&p=4&m=767571
http://www.healingwell.com/community/default.aspx?f=35&m=897291
http://www.healingwell.com/community/default.aspx?f=35&m=1022627&p=1&ord=d

If you have some response now, and haven't tried longterm and aggressive approach using injections, the various pills, pumps and such, then it's premature to think about implants now, in my opinion. Sorry for saying it.... tongue
James C.
Co-Moderator- Prostate Cancer Forum
Help support the Forum so it can continue helping you- donate at www.healingwell.com/donate
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-0, 6 mts.-0, 9 mts.-0.


Smokie
Regular Member


Date Joined Oct 2008
Total Posts : 46
   Posted 10/6/2008 1:36 PM (GMT -6)   

James,

Please don't feel sorry about saying anything. Believe me, although my Doc is putting the hard sell on the implant, I'm personally in no hurry. In fact, it scares me to death. I've informed the wife that I won't make a decision on it until the first of the year.

To offer a little more detail, I've been 'on the pump' since March. I occasionally mix in half a Viagra. It still makes me feel bad, but I guess it's worth it 1-2 days a week of feeling bad, given the alternative. I missed several weeks in the spring when I broke my arm. I tried the Caverject 2 times and the Muse once, same results. I thought at the time that it hurt because I had not been enlarged for a long time. The second Caverject injection was at the Doctor's office, when he told me what the problem was.

I must admit, I'm growing tired of no results. The depression is weighing pretty heavy too. My wife is supportive, wants me to have the pump because she thinks it will make me feel better. I'm sure she misses the intimacy, but she's classy enough not to say it.

It ticks me off a bit that my Doctor hasn't mentioned  bi-mix. By the way, I'm actually dealing with two doctors. One is my local urologist, the other is in Nashville (he performed the robotic on me). They both are suggesting the implant.

Thanks


Age: 43
RP: 9/06
Robotic, nerves spared
PSA: good (less than .05)
Currently dealing with RSD (nerve damage) in right arm, caused from breaking my wrist in spring 08 while trout fishing with son. Not related to ED, just general info about the year I'm having so far.


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 10/6/2008 3:38 PM (GMT -6)   

I agree with James that it's premature to think about implants yet. You could still regain natural function. You might find that injections or the pump do actually work for you. If you still have a good blood flow (seems likely) one or both of those should work. But both do need persistence and practice.

I have recorded my injection experiences here: http://prostatecancerinfolink.ning.com/group/edandincontinenceposttreatment/forum/topic/show?id=2034917%3ATopic%3A15752

I would skip the Viagra, if it makes you feel bad. Instead, take up Kegels again if you have given them up -- some sources say they are as good as Viagra.

Keep up the pumping as you are doing. Why are you getting only so-so results? It may be that you don't have a good enough vacuum, perhaps because of leaks. Or if it is uncomfortable, just try to get to the limit of your comfort zone each day -- hopefully that will tend to be a little more each time. I find I can comfortably pump to about half an inch beyond my natural length.

Like you, I quickly collapse as soon as the vacuum comes off. Here is where the constriction comes into play. Add that too, a little at a time -- I use ordinary rubber bands. I found that a little uncomfortable at first, but now it is quite comfortable.


Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 10/6/2008 3:44 PM (GMT -6)   
Gene214, it's not wrong to post a link to a helpful website that concerns the subject of a thread and fits within the area of Prostate Cancer and its treatments, etc and is helpful to the discussion at hand with information , other resources or such. The no links rule does apply to people posting links to a website that they have an interest (as in ownership, money earned, or such) in trying to promote their site here, or if they are posting the link to draw people from here to other (usually their) forums, etc. During normal posting and participation in threads, pertinent links to the subject at hand is welcome and encouraged. I usually post several, depending on the subject, so if you have any to share, feel free to do so. turn
James C.
Co-Moderator- Prostate Cancer Forum
Help support the Forum so it can continue helping you- donate at www.healingwell.com/donate
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-0, 6 mts.-0, 9 mts.-0.


Smokie
Regular Member


Date Joined Oct 2008
Total Posts : 46
   Posted 10/7/2008 5:49 AM (GMT -6)   
Don't know why the pump isn't getting more results. I'm using the $700 medical model. It appears to be sealing OK, although it takes a couple of trys. It will hold it until I release pressure. Also, I try to think of it as more of a sexual, rather than a medical device. That helps some, but as some others may have discovered, its easier said than done.
The Viagra does help, although as I stated before, it leaves me feeling poorly for usually about 16 hours. Therefore, I try to choose days when I know I have no meetings, etc the following day.
Also, I generally pump more than the directions imply. Maybe its out of frustration, but I will pump till it hurts, then go one or two more.
One other thing, I was getting better results back in the spring. I broke my arm and unfortunately had two miss 6-8 weeks of pumping. The arm still isn't functioning, but I've learned how to do some things left-handed. That is why I keep pumping now, as I am hoping that in time I can at least get back to where I was.
Age: 43
RP: 9/06
Robotic, nerves spared
PSA: good (less than .05)
Currently dealing with RSD (nerve damage) in right arm, caused from breaking my wrist in spring 08 while trout fishing with son. Not related to ED, just general info about the year I'm having so far.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/7/2008 6:32 AM (GMT -6)   

James C. and Smokie,

James, you first.  The site which was/is so helpful to me has explicit pictures, as well as very, very good information regarding penile implants.  I am perhaps too cautious, but I do not want to give someone, especially the under-aged, access to a site which explicitly shows penises, both flacid and erect and black and bruised (as a result of surgery).  As I remember a few months ago, the administration was concerned with children who may be lurking here.   I will, however send the site to you and Tony to view and discuss it with the administration.  Would that be ok? 

Smokie, I hope you received the email regarding the above mentioned blog site.  Also, I found the pump, especially the "rubber band", very, very uncomfortable... even painful.  Moreover, the erection produced was just not that good.  I know some have had good success with it.

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 


Smokie
Regular Member


Date Joined Oct 2008
Total Posts : 46
   Posted 10/7/2008 7:09 AM (GMT -6)   

Gene214,

Email received, thanks. Also, thanks for letting us know what we're going to be seeing. I'm one of those that gets a little woosy at the sight of blood, much less bruised up personal parts. However, I realize that may be in my future and I realize that I need to know what to expect.

After two years of having very limited communications with others concerning PC/ED, its nice to have others, such as yourself, to both listen to my whining as well as providing postive feedback and useful information.

Smokie


Age: 43
RP: 9/06
Robotic, nerves spared
PSA: good (less than .05)
Currently dealing with RSD (nerve damage) in right arm, caused from breaking my wrist in spring 08 while trout fishing with son. Not related to ED, just general info about the year I'm having so far.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 10/7/2008 9:14 AM (GMT -6)   
gene, thanks for your concern about the referral of the site. I have seen it before, maybe from a link posted here. To my mind, it's no different than other links and site we send people to that shows the same thing, but in a medical or commercial setting (ie, pump manufacturers, medical research, hospitals, and doctors academic publishing, etc.) The difference between your site is it is a private one, with men sharing their stories and photos with others of similar situations- penile implants and it's results. To me it doesn't make it any less creditable or expose those who shouldn't see it anymore than what can be found with any search engine. The owner of HW and other moderators may feel differently, so I will wait their review. Send me the link by email and I'll get it reviewed.

One work around, if you are uncomfortable about posting it here, or it is decided that posting it isn't appropriate, would be to tell guys who come here asking about implants that you have the link and will be glad to share it with them by email, after warning them that it is explicit and graphic. That'd do, wouldn't it? Thanks again for your concern beforehand about it's appropriateness and any problems it could cause.
James C.
Co-Moderator- Prostate Cancer Forum
Help support the Forum so it can continue helping you- donate at www.healingwell.com/donate
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-0, 6 mts.-0, 9 mts.-0.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/7/2008 1:28 PM (GMT -6)   
The link is on topic. You can post it with a "warning" I would think. But JamesC. has covered and we'll await the response from Admin.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9747
   Posted 10/8/2008 1:41 PM (GMT -6)   
I think the topic is okay since it is within the realm of the medical discussions here, but I am reluctant to approve a link to with graphic images, but since a warning is given first and it is presented in a medical context I think it would be okay.
Peter Waite, Founder/Editor
HealingWell.com - Community, Information, Resources
www.healingwell.com


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 10/8/2008 2:57 PM (GMT -6)   
So there ya go, gene. It's your call as to how you wish to handle it, with a link and warning or email.....
James C.
Co-Moderator- Prostate Cancer Forum
www.healingwell.com/donate</A>
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-0, 6 mts.-0, 9 mts.-0.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/8/2008 8:20 PM (GMT -6)   

Ok.  Here goes. 

Warning:  The link below contains graphic language and pictures.  It is posted to offer practical experiences from those who have received a penile implant as a result of erectile dysfunction.  It is not offered as medical advice.

Here is the link:  penileimplant.blogspot.com

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/11/2008 12:00 PM (GMT -6)   
Bump!
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 

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