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Banker
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 9/30/2008 10:29 PM (GMT -7)   
Doctor told me today that my recent prostate biospy is positive for prostate cancer.  Now he wants me to get additional tests (bone scan and MRI), and then have discussion about treatment options.  Am trying to be strong and steadfast with this news. And am looking for support/information sites.  Found this one which appears to be active. Is this so, or do you recommend other sites.
 
By the way, I thought the biopsy experience was one of worst things i ever experienced...but i suspect there will be more things i can add to that list pretty soon.
   

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 9/30/2008 10:56 PM (GMT -7)   
Hi Banker,
Sorry that you have to be here, but welcome! I don't think that you could find a better site than this one. We have a lot of helpful, experienced and passionate members here. We will do all we can to help and re-assure you. If you could give us some idea about your situation via the signature feature, we would be better able to advise/help you. Sorry you had such a bad time with your biopsy, but at least you have that part behind you. Other members will chime in soon to talk and and try to help you getting over the initial shock.
All the best to you for now,
Magaboo
Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08
Next step: RT?


Banker
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 9/30/2008 11:30 PM (GMT -7)   
Thanks Magaboo, i'll provide more info in the signature. Here's my story in brief. I am 56, diagnosed with HIV in 2001, and have been asymptomatic. Started taking HIV meds this year because my t-cells decreased. The prostate diagnosis is hard, and sort of knocked me on my ass today, but after the shock of HIV, everything else seem to pale. So far all i know about prostate is that my Gleason is 3+4=7. Am not completely sure i understand what this means.
born 1952
diagnosed with HIV 2001
PSA--ranged from 2-7
2 previous biopsies-all negative
diagnosed with prostate cancer:Sept 30, 2008
Gleason Score 3+4=7
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 10/1/2008 12:13 AM (GMT -7)   
The way I understand it, the Gleason score is a measure of how aggressive the cancer is. The first number is the stage of the majority of the cells and the second number is stage of the minority of cells. ie. 3+4=7 (most cells are 3; some cells are 4). The numbers are then added to give the Gleason score. Note that 3+4=7 is better than 4+3=7. I'm sure more knowledgeable people will chime in soon with more accurate and detailed explanation.
All the best to you.
Magaboo
Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08
Next step: RT?


Banker
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 10/1/2008 4:36 AM (GMT -7)   
Am glad to get reference on HIV and prostate cancer. I don;t know the connection. Frankly i don't know too much about anything right now. As for the Gleason, I need to hear again whether is was 3+4 or 4+3. The doctor told me all of this rather quickly on phone and I was trying to write at the same time I was shaking my head in disbelief. This has been a very complicated year for me so far. Many problems during this year. And now this.

I am scheduled to go to China at end of Oct. Is there any reason why i should cancel this trip?
born 1952
diagnosed with HIV 2001
PSA--ranged from 2-7
2 previous biopsies-all negative
diagnosed with prostate cancer:Sept 30, 2008
Gleason Score 3+4=7
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4813
   Posted 10/1/2008 4:57 AM (GMT -7)   
There's no reason related to PC to not travel.
Age 53   - 5'11'   205lbs
Overall Heath Condition - Good
PSA - July 07 & Jan 08 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 10/1/2008 7:30 AM (GMT -7)   
Welcome to the forum.  I suspect that dealing with HIV was and is more difficult than what you'll be dealing with regarding the prostate cancer.  For many of us, the cancer can be removed completely and the problem is, essentially, resolved.  Period. 
 
I found it helpful, when I located this website, to spend some time reading through the many prior and archived discussions.  The information is real time and first hand from people dealing with this same challenge.  My Urologist/surgeon and the hospital provided me with a lot of printed information explaining what would be happening and that, too, was very helpful.  And, in your community there may be a prostate cancer support group - if talking with others face to face is something you think will be beneficial. 
 
Before my surgery I went to Rio de Janeiro for a week - to use my vacation time and to take advantage of a free frequent flier ticket I'd earned.  I was uncertain about what I'd be able to do, and when I'd be able to do it, post-surgery . . . and I'm glad I took that trip. 
 
My own reaction to my diagnosis and the prostate removal (I chose removal via the da Vinci robotic method) was relaxed because at the end of the day there's nothing I can do about this:  I had the cancer, it was diagnosed early, I located an excellent specialist experienced in such a removal procedure, and nothing I could do was going to affect the outcome.  I was very relaxed.
 
Post-op I've learned that my Gleason score was a little higher, and the cancer present in a larger quantity, than the biopsy revealed - and I'm very satisfied that I acted quickly to remove the threats from my body.  I felt good pre-diagnosis, felt nothing during surgery, and feel good post-op and have returned to work.  Incontenence is an issue I've not gotten under control (yesterday was a particularly bad day) and the "ED" matter is something which, at this point, is of little concern to me.
 
You've found the spot to come to on the www for solid information about prostate cancer - ask your questions, any questions, and it's likely a chorus of respondents who've faces similar issues will share their/our experiences.
 
Mavica
 
 

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (19 days post-op)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 10/1/2008 7:41 AM (GMT -7)   
Welcome to HW, sorry you had to come... Here's a link to a thread a while back about Staging and the Gleason Scale, to help you. Just ask whatever you need to here and we will be glad to share or to send you to links that will teach and help you.

http://www.healingwell.com/community/default.aspx?f=35&m=1078971
James C.
Co-Moderator- Prostate Cancer Forum
Help support the Forum so it can continue helping you- donate at www.healingwell.com/donate
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-0, 6 mts.-0, 9 mts.-0.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 10/1/2008 8:09 AM (GMT -7)   
Welcome to HW. Like so many others have already said, I am sorry for your dx, but glad you found us. This site is incredible for support. You are the first PC and HIV patient I have seen, but maybe your voice will encourage other's to join. Please stick around as you sort through this. My father was dx in July of 2007 and had the surgery in August of 07. He decided before his surgery he wanted to go on a long motorcycle ride, which he did and loved. It was important for him to clear his head and enjoy life, when everything surrounding him at the time was cancer. Long story long, I imagine if every thing else is fine, you should be able to go to China. You most likely will not be starting treatment then anyways. PC is very curable if caught early. Try to stay positive and please stick around! Welcome!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


califguy
Regular Member


Date Joined Sep 2008
Total Posts : 72
   Posted 10/1/2008 9:42 AM (GMT -7)   
Welcome to a forum where you didn't want to be, but we are all ready to help you keep your head above water!
 
I went on a 15 day Panama Canal Cruise going from San Juan to San Francisco (near my home) before I had surgery. This was planned long before I knew I had PCa. My doc told me it was better to maintain a normal life than to cancel stuff and try to hurry thru things. He said it is important to take action but this type can allow some time to plan and work with.
 
Although I had very little problem with the biospy, the rest has not been bad at all. I had daVinci Robotic Surgery and all has went extremely well. Incontinence basically gone and basically no ED.
 
Let me know if you have any specific questions. I'll be happy to answer.
 
3+4=7 gleason
7.5 PSA
4 out of 20 biopsies were cancerous
daVinci Robotic surgery July 24, 2008
Univ of Calif San Francisco Med Center  Dr Peter Carroll
In hospital 2 nights altho I had option of leaving the next day but stayed due to distance home.
Contained in prostate, not spread
Six weeks post surgery PSA less than .01

Paralleli
Regular Member


Date Joined Jul 2008
Total Posts : 123
   Posted 10/1/2008 10:03 AM (GMT -7)   
Welcome Banker -

Yeah, the news is a shock, isn’t it? I’m sure it threw all of us for a loop for awhile; I know it did me. However, Selmer’s advice concerning taking in all the information slowly is some of the best I’ve advice I’ve heard here or anyplace else. There are a ton of links to information on this site. And take your trip to China!
53 yrs
PSA 4.8
T1c – Gleason 3 + 3
IMRT 1/07 thru 2/07 (42 treatments)
PSA 6/07 – 0.76
PSA 12/07 – 0.36
PSA 6/08 – 0.72


zekor
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/1/2008 10:34 AM (GMT -7)   
Banker, sorry to hear the bad news. I was diagnosed on 4/18/08, had a radical prostatectomy 6/18 at the brady urological institute -Johns Hopkins Baltimore Md. I strongly suggest you go to their web site. I would also  suggest you read the book "Guide to surviving prostate cancer" by Dr. Patrick Walsh. He is the formost authority on the subject. I went for several opinions before I  decided on John Hopkins. After meeting with Dr. Schaffer there and researching their history and results in treating prostate cancer I was convinced that was the right chioce for me. I am happy to say that three months after my surgery I am feeling well and have full sexual function no incontinence problems and my first psa result after surgery was <0.1 which they are calling undetectable. As far as I'm concerned they are the best in the business for prostate cancer treatment. In any event I would definetly suggest you get several opinions before deciding on a course of treatment. I wish you good luck and positive thoughts. 
54yrs
psa 6.8
gleason 3-4 total 7
surgery 6/18 PSA 9/19 <0.1

Banker
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 10/1/2008 4:20 PM (GMT -7)   
I am very grateful for all of these responses. I will indeed ask questions and share my thought with you. I went to see my internist today to tell the news and get his read on the matter. His counsel was similar to all of yours. He reiterated his support for my urologist and suggested that i get other opinions if i feel the need. My internist doc has gotten very accustomed to dealing with me. Perhaps the best advice from him and all of you is to remember to stay positive.

The most difficult AND best part of today was that I woke up, still with cancer, but I was ok. I was able to get through most of the day without worrying. I know eventually i have to plan for treatment. And i'll have to wonder whether the HIV will kill me before the prostate cancer. This is a fact i have to consider when thinking about treatment. My doc reminded me that HIV is a chronic disease and life expectancy could be about 25 years. We'll see. In general, dealing with HIV has been a challenge...mostly dealing with the stigma and isolation and fear. At this point I have no symptom.

Truth is, most of what i need to do is to talk out loud about stuff. I have rarely ever talked about my illness...and this anonymous forum provides a wonderful opportunity to just let go. And i will. Again, thanks for your notes. Am looking forward to reading and learning from your experiences.

Lastly, I am going to China!
born 1952
diagnosed with HIV 2001
PSA--ranged from 2-7
2 previous biopsies-all negative
diagnosed with prostate cancer:Sept 30, 2008
Gleason Score 3+4=7
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 10/1/2008 5:09 PM (GMT -7)   
Banker I to would like to say that I am sorry you are here, but it is the best place to garner information and support. I to agree with some of the post, be sure to do as much research as you can and please ask your health care team plenty of questions. If I can help in anyway please ask. I suppose my support here at HW is more on the emotional and spiritual. Everyone here cares and loves each other so please do not be bashful about sharing your feelings. Email me anytime
peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/1/2008 7:26 PM (GMT -7)   

    Hey Banker,  Sorry to have to welcome you to the club.  We are here if you need someone to lean on or talk too.  Wish you all the best in your search and treatment options.

    KW


    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/1/2008 8:42 PM (GMT -7)   
Banker,
Enjoy that trip!...Send photos! I did let this disease bother me initially, but not anymore. It is what it is. So go and have a great time, and then beat this beast!. One thing I say to all ~ Stay Positive!

Your new friend,

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Banker
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 10/1/2008 11:43 PM (GMT -7)   
Here's what's giving me the willies as i read other notes:
1. placing a catheter in penis and removing it.
2. any additional prostate probing--I hated the biopsies and was perfectly miserable through the procedures. The third time i had it done, i took pain medication that i had left over prior to the exam. This calmed me down considerably.
3. being in a MRI machine for any length of time. I have to schedule one of these as part of my initial follow up, and i feel anxious just at the thought of it.

I am sure this list will grow. For now, I would be very interested in any ways that you have learned to deal with these issues.
born 1952
diagnosed with HIV 2001
PSA--ranged from 2-7
2 previous biopsies-all negative
diagnosed with prostate cancer:Sept 30, 2008
Gleason Score 3+4=7
 


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 10/2/2008 3:11 AM (GMT -7)   
1. If you have a general anesthetic, chances are they will put the catheter in after you are "under" so you won't know about it. Others here have self-catheterized for blockages, and haven't mentioned any problems putting the catheter in. Catheter removal is straightforward too. If you don't look, there is a strange sensation (not pain) for a second or so, and the job is done. At least those are my experiences.
 
For 2 and 3. Why not explain that you suffer from nerves and ask for some sedation?
 
I'm sure it won't all be as bad as you think. I found the biopsy to be the worst part of the whole experience, so you are over that part.
Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0 


califguy
Regular Member


Date Joined Sep 2008
Total Posts : 72
   Posted 10/2/2008 9:22 PM (GMT -7)   
I worried about the catheter also. It went in while I was out so wasn't an issue... Worrried over that for nothing....   Coming out wouldn't have been bad either if I hadn't worried about it.....
 
I had a drain tube in my side and I worried about removing that also. (Yes you are right... I worry about lots of things...) When the doctor removed it, I wasn't sure why I worried. It was almost funny. Simply a strange feeling as you normally don't feel things inside of you. I kind of enjoyed it in a way.
 
In other words, when a worry wart like me can do it, you can too. In fact, I'll be rooting you on, just let me know when and what to cheer you on for.
 
I never had anymore prostate "probing" after the biospy so wasn't an issue for me. And the way my doc did the biopsy it wasn't bad really either.
 
I have been in a MRI and CT scanner several times. Was not a problem except I worried about laying real still. (See I worried about that too.) But no one ever had to repeat anything so I must have worried about that for nothing also......
 
If you ever need any help in worrying, let me know. I am excellent in wasting time worrying wink .

Don't get discouraged!!
CalifGuy
 
3+4=7 gleason
7.5 PSA
4 out of 20 biopsies were cancerous
daVinci Robotic surgery July 24, 2008
Univ of Calif San Francisco Med Center  Dr Peter Carroll
In hospital 2 nights altho I had option of leaving the next day but stayed due to distance home.
Contained in prostate, not spread
Six weeks post surgery PSA less than .01


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 10/2/2008 9:42 PM (GMT -7)   
1.  The catheter was a 'non issue' for me.  Not a bother, no problems - in for 12 days.  The catheter was inserted while I was sedated - I felt/remember nothing about it.  It's held in place by an air-filled balloon or some such thing and when it came out I felt very little.  My catheter was held in place by a velcro strip on my thigh and during the day by two additional leg straps (different types bags for day and night).  Emptying the bags was easy, after learning how to do it myself the first time.
 
2. After my biopsy and the diagnosis, I underwent no additional probing. 
 
3.  There was no MRI or CT for me - just the biopsy.  I've had MRI's for other things, previously, and, yes, there's some hesitency because of the close quarters.  However, the technicans talked me through it and if at any time I felt stresssed-out (which I didn't) there was a call button in my hand and the attendant would have stopped the testing and removed me from the machine.  I simply closed my eyes, almost fell asleep and concentrated on other things. 

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (19 days post-op)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

 


Banker
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 10/3/2008 5:02 AM (GMT -7)   
Worrying?? I am a pro at it. In fact, it is just down right fearful thinking about anybody messing with the "family heirloom" (the equipment down there!). It all belongs to me... alone! But this disease requires me to give up all modesty, and I must consider procedures that make my skn crawl. Things like fingers, probes, tubes going in my private places make me crazy.

I guess the next trauma comes from thinking that "the equipment" might not work anymore after some of the treatment procedures. Ok..i am not ready to go there yet. Just not ready! AHHHH...the stress of being a male!! THE STRESS!!!
born 1952
diagnosed with HIV 2001
PSA--ranged from 2-7
2 previous biopsies-all negative
diagnosed with prostate cancer:Sept 30, 2008
Gleason Score 3+4=7
 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 10/3/2008 7:58 AM (GMT -7)   
Once you've completed the diagnosis/further exploration (testing) process you'll have time to make your treatment decision and then to speak with your Urologist/surgeon's office to see if it provides printed material which fully explains this entire process - from the pre to treatment stages. There also may be a local support group your doctor can refer you to with which you can sit in on to discuss these things.  Stress can make things much worse, so you'll want to focus on ways to eliminate that best you can.  about ED, sex, etc. - it's not been a primary or strong concern of mine.  At my age, I've had lots of sex and though I'd enjoy a continuation of those experiences - removing the cancer was and is my #1 priority. Without having made a choice as to what treatment you'll be undergoing - discussing the possible after-effects goes nowhere.  There are guys here who've undergone most if not all of the various procedures to deal with this cancer, so once you've identified how you're going to handle it I've no doubt you'll receive some excellent advice/commentary.  Enjoy the day, and the weekend!


Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (19 days post-op)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

 


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 10/3/2008 5:38 PM (GMT -7)   
Even if the equipment doesn't work immediately after treatment, chances are it will be only temporary. As a longer term sufferer from ED, I find there are aids (injections and pump) that work very effectively. Sex is just as good as before, but different. Oh, and no risk of fathering unwanted children :-)
Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0 


Banker
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 10/3/2008 5:48 PM (GMT -7)   
I guess it's ok to grieve a bit. Still, the good news is that it seems from the various posts that folks adjust...this is good news, indeed.
born 1952
diagnosed with HIV 2001
PSA--ranged from 2-7
2 previous biopsies-all negative
diagnosed with prostate cancer:Sept 30, 2008
Gleason Score 3+4=7
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/4/2008 6:19 AM (GMT -7)   
Banker, You sound strong on your last post. I saw a quote once: "Worrying pretends to be important" My brother has been HIV positive since 1985. He just turned fifty this past August. He is well and happy, he takes his meds faithfully, and lives a good life. You will live well and strong with HIV....and also the prostate cancer. It is amazing what human beings can adjust to...and live strong and happy.... You were lucky to have found this site. It is extremely helpful and even fun at times.....!!Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 21 2008

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