September is prostate cancer awareness month, but for me, I am in prostate cancer awareness era! I believe that the onus of telling others about
this disease, how to be screened, and lending advice and support is on us ~ and does not end. Through blogs and groups like this one, I feel an obligation to continue to spread the word. For what good is it to have learned as much about
this disease and keep it to myself? I challenge all of us to do the same.
One thing I have learned as I "celebrate" my 2nd anniversary of a PSA near 20, is that men have not stepped up to publicize their afflictions like the ladies have with breast cancer, yet this disease is more common. But I have noticed, that while we don't bring it up in discussion often, once it is then the discussions seem to
open us up. For me it's not a problem. Be embarrassed? Why? ED? So what. I will stay
open and informed, and if I have to, do the informing.Here is what I will continue to do:Blog
~ My story might not be the most exciting, but it is what it is.Share
~ "What is it you would like to know?" is a great way to communicate once someone knows what I deal with daily.Mentor
~ I am not a doctor, and that's why my experience can be valuable. Sorry Docs! You do a great job finding and treating the disease, we patients are better equipped to talk about
~ If it is only another patient one will talk to, I will continue to make myself available and I want to help.Inform
~ Advocacy is one way, The wrist band stays on. (for over a year now). Knowing the facts about
this disease will help others understand, too.
Am I doing enough? Are you?
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
You can visit my Journey at:
Tony's Prostate Cancer InfoLink Page