Prostate Cancer Awareness Month is over ~ but is it?

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/2/2008 9:06 AM (GMT -7)   
September is prostate cancer awareness month, but for me, I am in prostate cancer awareness era! I believe that the onus of telling others about this disease, how to be screened, and lending advice and support is on us ~ and does not end. Through blogs and groups like this one, I feel an obligation to continue to spread the word. For what good is it to have learned as much about this disease and keep it to myself? I challenge all of us to do the same.

One thing I have learned as I "celebrate" my 2nd anniversary of a PSA near 20, is that men have not stepped up to publicize their afflictions like the ladies have with breast cancer, yet this disease is more common. But I have noticed, that while we don't bring it up in discussion often, once it is then the discussions seem to open us up. For me it's not a problem. Be embarrassed? Why? ED? So what. I will stay open and informed, and if I have to, do the informing.

Here is what I will continue to do:
Blog ~ My story might not be the most exciting, but it is what it is.
Share ~ "What is it you would like to know?" is a great way to communicate once someone knows what I deal with daily.
Mentor ~ I am not a doctor, and that's why my experience can be valuable. Sorry Docs! You do a great job finding and treating the disease, we patients are better equipped to talk about the experience.
Care ~ If it is only another patient one will talk to, I will continue to make myself available and I want to help.
Inform ~ Advocacy is one way, The wrist band stays on. (for over a year now). Knowing the facts about this disease will help others understand, too.

Am I doing enough? Are you?
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4813
   Posted 10/2/2008 12:05 PM (GMT -7)   
I've talked a few buddies into getting  PSA test. Even talked the 40 year old postal carrier into going. We always chit chat on Saturday monrings. As he was handing me some bills from the hospital the subject came up..
 
My journey started when I read what I thought was junk mail from a local hospital. They were advertising FREE Mens Health Screening....Since I hadn't had a physical in several years I went and checked it out...Glad I did and apparently cause my PC pretty early.
Age 53   - 5'11'   205lbs
Overall Heath Condition - Good
PSA - July 07 & Jan 08 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 10/2/2008 1:23 PM (GMT -7)   

 

....I'm with ya' Tony....nothing to be embarressed about. Like I said before, none of us stood in line and asked for this...I'm talking, telling...I still cannot believe so many guys are so ignorant concerning their prostate, PSA, etc etc.....I continue to wear my bracelet and jump at the chance to share my story, your story, so many others on this site....I feel we have to do this and I will continue....


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
        9.15.08 pad free at night, one thin (light) pad during the daytime
        hours. Just because I'm chicken..!
         9.18.08 1st post-0p-PSA-Undetectable...Zero's!  Yes!
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       

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