Hi from a newbie with Prostate Cancer

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bikeman55
New Member


Date Joined Oct 2008
Total Posts : 4
   Posted 10/2/2008 1:03 PM (GMT -6)   
Hello everyone,

Have been reading this forum for some time now and decided to join, I was diagnosed with prostate cancer a few months ago and it has been very hard. I am glad there is a forum where we can vent and share our stories, I have read allot here and just finally wanted to say hello.

EM

RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 10/2/2008 1:21 PM (GMT -6)   
Hi bikeman. Is that a bicycle bikeman, or a hog? I am a hog guy myself.

Yes difficult is the issue, but this forum helps because there is a great amount of education, and expression here - that is a huge antidote to the ugly disease none of us ever thought we would have. You are not alone.

RB

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 10/2/2008 2:16 PM (GMT -6)   

 

..Welcome to the club bikeman.....this is quite a group here at HW....like RB told ya', you're not alone.......again welcome!


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
        9.15.08 pad free at night, one thin (light) pad during the daytime
        hours. Just because I'm chicken..!
         9.18.08 1st post-0p-PSA-Undetectable...Zero's!  Yes!
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 10/2/2008 4:54 PM (GMT -6)   
Welcome to HW and I too am sorry that you have to be here. Most of us were "lurkers" before joining and I feel confident in saying that this is an incredible source of support and education. Please feel free to ask away and share your story.

I would encourage you to get your "signature" up when you get a chance. Please feel free to let us know if you have questions.
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Banker
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 10/2/2008 5:57 PM (GMT -6)   
Am glad that you have joined. Am new here too, but have learned in my shrort time that this is a great place for support, and venting, and questioning. Can you talk a bit about what has been hard, and tell us a bit about your journey so far?
born 1952
diagnosed with HIV 2001
PSA--ranged from 2-7
2 previous biopsies-all negative
diagnosed with prostate cancer:Sept 30, 2008
Gleason Score 3+4=7
 


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 10/2/2008 7:05 PM (GMT -6)   
Welcome bikeman, I am sure you will find this site informative and comforting, you are not alone.

Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 149
   Posted 10/2/2008 9:25 PM (GMT -6)   
Welcome to the club bikeman55,
You will find a lot of compassion and a wealth of information on this site! I have just recently joined this site and have been on several others over the last 3 years and you can get a lot of questions resolved, which is very important at this stage of your trek. Good luck with everything......David
Age 53
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....


bikeman55
New Member


Date Joined Oct 2008
Total Posts : 4
   Posted 10/3/2008 9:56 AM (GMT -6)   
Thanks for the warm welcome everyone, I was not expecting it. I am glad I found a community that shares and is concerned about the same issues I am. By the way RB I am a BMW Bike fan, have been riding BMW GS1200 for years.

RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 10/3/2008 10:18 AM (GMT -6)   
That is a class act bike. Great stress reliever! You will find that riding is even better once you get all the decisions and treatments etc. behind you! Keep us advised as to how you are doing.

RB

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/4/2008 7:25 AM (GMT -6)   
Bikeman, We all have benefitted from this site. Keep us informed of your journey. People here care.. Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 21 2008

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