Another newbie

New Topic Post Reply Printable Version
31 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Golf and Cycling
New Member


Date Joined Oct 2008
Total Posts : 9
   Posted 10/6/2008 12:15 PM (GMT -6)   
Hello all. I was just diagnosed last week. Bummer, but I'm told by my urologist that robotic laproscopic removal of the prostate is a "cure." I stumbled on this site this morning with a Google search and look forward to checking in as time goes by. I'm scheduled for surgery in one month. I feel like I'm on an emotional rollercoaster ride. Sometimes all is well and I know it'll be fine; other times I feel scared. I am married and have three teenage kids. I lost both parents to cancer in their late 70's/early 80's(my dad had prostate cancer as well as lung cancer by the time he died, and my mom had breast cancer which they thought they successfully removed but 25 years later they found it had mestaticized throught her bones and body), and have personally been chasing squamous cells off (from my scalp) and out of my body (from one of my vocal chords) for the past few years.
 
Just wanted to say hi and check in as I'm currently in one of those mental places where focusing on work (which is where I am) is not that easy. Also, I got a little scared this weekend doing on line research and seeing some sites that are critical of surgery given the potential complications with nerve damage and incontinence, but my urologist says I have three choices for success: surgery, surgery and surgery. He says he's done as many as 60 in the last year, and he plans to do it with his partner. Both doctors apparently are well known for their robotic surgery expertise and teach the procedure as well as practice it.
 
Thanks for being there.
 
I'm not sure how to set up the "signature" but here is what I know as of now:
52 years old
PSA 4.6 (up from 2.0 at last test about a year or two ago - lucky we did another test, this time for new life insurance)
Needle biopsy (that was fun - NOT! I compare it to using a staple gun where no one was ever meant to go tongue !) 2 of 16 samples were positive.
Gleason scores: (3+3=6) and (3+4=7)

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 10/6/2008 12:51 PM (GMT -6)   
Hey Golf,

Welcome to HealingWell and sorry you have to be here.

Please read the experiences of guys who have had various treatments, not just surgery. There are many options for radiation and some new techniques represented here. Your decision is irreversible and needs to be made with all the facts. Things to consider are, as you know, kill the cancer, continence and ED and the various treatments have different consequences in each area.

Most doctors push their own practice as the best way to go so talk to some radiologists and get second opinions. It will be confusing at first but stay with us and ask questions. There's lots of experience here...

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Start chemo in September 08
"Patience is essential, attitude is everything."


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 10/6/2008 1:19 PM (GMT -6)   

 

...wow, Golf take a step back and take a breath.....you've come to the right place, the best site on the net with the best folks and loads of experience and knowledge. We're all in this together, research and learn, there's your power and strength.....ask the questions, you'll get answers...

 Good luck and welcome to the site....all the best to you my brother..


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
        9.15.08 pad free at night, one thin (light) pad during the daytime
        hours. Just because I'm chicken..!
         9.18.08 1st post-0p-PSA-Undetectable...Zero's!  Yes!
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 10/6/2008 1:36 PM (GMT -6)   
Welcome, the hardest part for me was the time I was diagnosed to the time the wheelede me into the OR. Did they do any othe tests yet? CAT Scan, Bone Scan, MRI, Cystoscope?

In the meantime to pass the time I suggest you exercise as much as you can. I jogged alot helps with anxiety and gets you prepared for th surgery route.

Good Luck, and LIVESTRONG!
Age Dx 37, 7/2008
First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008
Biopsy : 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008
Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008
PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
First PostOp PSA 9/2008: <0.01
2nd PSA 12/2008: Praying for <0.01
 


hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 10/6/2008 1:45 PM (GMT -6)   

Welcome to the club but sorry for the reason. What you're feeling now is something we all went through.

I wonder if you can find a surgeon that has done more than 60. Although it is a lot of surgeries, I've read that there is a high learning curve and it usually takes about 300 before they are real experts.

You have a lot to find out but you do not have to rush in to make a decision. They will not do surgery at least until 6 weeks after the biopsy. Find out as much as you can. Go for the best doctor available. The skill of the surgeon makes a BIG difference.

All the best. Stay positive. Keep posting if you have any questions.

Peace.


Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 Positive
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Pathology report shows organ confined with positive apical margin Gleason = 6 1/2
Catheter removed 8/26 - reinserted 8/29 - removed 9/2
No continence or potency problems.
First post op PSA 10/2/08 < 0.05


Smokie
Regular Member


Date Joined Oct 2008
Total Posts : 46
   Posted 10/6/2008 1:57 PM (GMT -6)   
Hey Golf,
I'm new to the site also, but 2 years past surgery. There is nothing like being told you have cancer. For me, hearing it was the worst part of the whole ordeal. I was also told, because of my age (41), that surgery was my only option. I sought two opinions, both the same. In retrospect, I don't know if I would have done anything different knowing then what I know now.
As for the cancer, I know this sounds easy-to-say, try not to worry to much. The vast majority of the time it is completely curable (or treatable, given what option you take). I was 5.1, Gleason 7.
Try reading 'The Prostate Book' (I think that's the title?) It was written by the head of urology at Memorial Sloan Kettering, the number one cancer hospital. It is very informative, and information is comforting.
You should know that incontinence is rare (other than minor problems after surgery). ED is more common, but not at all a definite, and I think you'll discover through research that most guys recover full sexual function.
Point is, gather all the info you can about all your options. This site is a great start.
Good Luck
Age: 43
RP: 9/06
Robotic, nerves spared
PSA: good (less than .05)
Currently dealing with RSD (nerve damage) in right arm, caused from breaking my wrist in spring 08 while trout fishing with son. Not related to ED, just general info about the year I'm having so far.


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 10/6/2008 3:09 PM (GMT -6)   
I too would encourage you that this too shall pass. All of us have sympathy as we can remember where you are coming from when first being told you have PC. It is a tough time, but this too shall pass.

There are indeed so many things to read on this site, and the places this site will point you! I agree with Biker that you should check everything out - not that I am against surgery because I would still do the same thing in my case, but it appears from your biopsy that you have caught it early and you have more options that many do. I would encourage you to go to at least one other doctor for an opinion, do lots & lots of reading, carefully map out your decision and then make it.

I am confident that at your age, and biopsy you will come through this fine.

RB

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 10/6/2008 3:34 PM (GMT -6)   

Hey Golf and Bike,

Sorry you came but glad your here. This is a great site for a man in your current position.  Ask questions of everyone that knows anything.  I was a blabber mouth for months.  Look for people in your area,  support groups.  I dont know why but people in our situation are the greatest fellows I have met.

Slow Down.  Consider all your options.  Your family and doctor wants you better right now but you have to take your time and make your decision. There are brothers here who have experienced all options and are a wealth of information. 

All the best,

Frank

 


Diagnosed 01-08-08 @ 53 years old 
DRE normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
PSA @ surgery 6 
Bone and Ct scans negative
clinicaly Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage Erectile function better with Viagra
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on top of prostate. 1 positve margin measureing less than .5 ml at urethra and bladder..
Six week PSA < 0.1 , 4 month PSA <.05 Gen II test.  Urologist recomends to hold off on Radiation and watch PSA closely. Oncologist and Radiation Oncologist seem to lean to doing pre-emptive radiation.Uroligist says 50/50 chance of PSA re-occurence.  
I have decided to hold off and see for 3 months.
Next PSA October...
Six Month PSA 0.010,  undetectable per Urologist
Next PSA Six months or at one year (March)
 
 
 
 


Golf and Cycling
New Member


Date Joined Oct 2008
Total Posts : 9
   Posted 10/6/2008 5:19 PM (GMT -6)   
Wow! Thanks for all the support. I know I'm not alone, which is why I pretty much punted on the first 1/2 of my work day and looked for you all. I'm glad I found you.
 
Regarding other tests, I have not had any. I guess my urologist thought that direct confirmation through a needle biopsy was enough, particularly given the relatively low PSA of 4.6. Is there really any reason to do more tests since we now know the little F'er is in my prostate?
 
Regarding my doctor's experience, the number of 60 surgeries that I reported was only what he's performed in the last year. He's been doing these for a number of years and is the guy who got our local hospital started with robotic surgery for PC.
 
Regarding exercise...I couldn't agree more. I use my spincycle at home and notwithstanding my early work punt today, I still went to the gym for the lunchtime spin class. I'm feeling better (although I'm still not getting too much done at work).
 
Regarding second opinions, a friend of mine in town is an oncologist and he is calling UCSF for Dr. Peter Caroll or Dr. Peter Small to see if they will do a phone consult with me (I can fax or email them my records). I also contacted a local doctor who does radiation therapy at our local hospital and set up an appointment with him for my wife and me to attend next week. His nurse told me to plan on 1 1/2 hours (!) and said he will discuss all options with me. As you can imagine, my wife prefers that I get this cut out now, particularly given my family history.
 
I do have one question for the group about radiation: My friend the oncologist tells me that once you do radiation, the resulting internal scar tissue makes surgery a less viable option later in the event the cancer is not fully eradicated. Is that true? My friend seemed to think that the surgery was the best option, particularly robotic. As noted earlier, so does my urologist (his list of treatment choices was surgery, surgery or surgery).
 
Thanks again.

52 yrs old
PSA 4.6
2 of 16 needle biopsy samples positive
(3+3=6); (3+4=7)
11-6-08 LPRS scheduled at local hospital


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4157
   Posted 10/6/2008 6:09 PM (GMT -6)   

Hi Golf and Bike:

Well, I'm just a little ahead of you.  I was diagnosed about 3 weeks ago, so understand your mental state in real time.

My wife and I have spent a LOT of time on the internet and talking with various docs to get their opinions.  My urologist was great...did my biopsy under anesthesia so it was literally painless.  No post procedure problems but...in case you haven't had your first orgasm yet, be prepared for some blood!  Fortunately my doc told me to expect that, but it was still pretty gross...

Anyway, my urologist was very complete in discussing options but told me that I was a good candidate for either of two....surgery or brachytherapy.  He then referred me to docs who did those procedures respectively.  Of course the surgeon thought surgery was best and suggested robotic.  The radiation oncologist was less pushy but naturally favored radiation and said that brachytherapy was best for my cancer.  Fortunately, both docs were honest enough to agree that either treatment would most likely cure my cancer - which is what the internet research bears out. 

I further research proton beam, HIFU, "ice balls", etc, etc, but have come back to the original two options of surgery or brachy.

The first surgeon I went to said I was the poster boy for robotic but, after I pushed him a bit, admitted he and his partner (it takes 2 docs for this procedure) had only done 15-20 robotics though they had done over 1000 radicals.  So...I went to the DaVinci web site and used their doctor finder to find another doc in my area who did these.  I found one who had done 1000 and teachs other docs to do this.  All of the research I did suggested that 300 is the minimum to really get good at this, this I would strongly recommend you make sure of the total numbers.

The radiation guy had done over 500 brachys and he gave me a list of several of his patients to call who had volunteered to discuss the procedure with potential victims (actually the second surgeon made the same offer).

Anyway, where I am now is this:  I have decided on one of two procedures and have selected docs in either case.  Both options have side effects but somewhat different.  For my particular situation, I think the ED is less problamatic with the brachy and the urinary deal is early incontinence with surgery and early frequent urges with brachy.  There is also a low probabilty of bowel stuff with brachy but not with surgery.

So...I'm gonna pull the trigger on a decision this week.  I'm leaning toward brachy right now and will probably do "volume study" in early November, seed planting in early December and follow up MRI a month later.

By the way, all of the docs told me that surgery after brachy is not likely to be an option.  SOME very few docs will do this but not that many.  So, if I go for brachy the remaining options are probably freezing and hormones.  Hopefully, if I go for brachy, the odds are right and this will be a cure....but this is still something to think about....

Please drop back to this thread and let me know how you progress.


Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
Pre-procedure stage


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 10/6/2008 6:09 PM (GMT -6)   

I have heard the same thing regarding salvage surgery after radiation but many brothers have chosen radiation and been happy with it.  In my case the only thing I would have done differently was not get three opinions from surgeons but mix it up with radiation oncologists and such.  It would not have changed my mind I dont think but I would have been better informed as I went through the decision making process. Now with a bad surgical margin I went and talked to them in case I need to salvage radiate.

This is your decision,  this will effect your life dont be pushed into anything you are not comfortable with. 

Frank


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2301
   Posted 10/6/2008 6:14 PM (GMT -6)   
Golf and Cycling said...
Wow! Thanks for all the support. I know I'm not alone, which is why I pretty much punted on the first 1/2 of my work day and looked for you all. I'm glad I found you.
 
Regarding other tests, I have not had any. I guess my urologist thought that direct confirmation through a needle biopsy was enough, particularly given the relatively low PSA of 4.6. Is there really any reason to do more tests since we now know the little F'er is in my prostate?
 
Regarding my doctor's experience, the number of 60 surgeries that I reported was only what he's performed in the last year. He's been doing these for a number of years and is the guy who got our local hospital started with robotic surgery for PC.
 
Regarding exercise...I couldn't agree more. I use my spincycle at home and notwithstanding my early work punt today, I still went to the gym for the lunchtime spin class. I'm feeling better (although I'm still not getting too much done at work).
 
Regarding second opinions, a friend of mine in town is an oncologist and he is calling UCSF for Dr. Peter Caroll or Dr. Peter Small to see if they will do a phone consult with me (I can fax or email them my records). I also contacted a local doctor who does radiation therapy at our local hospital and set up an appointment with him for my wife and me to attend next week. His nurse told me to plan on 1 1/2 hours (!) and said he will discuss all options with me. As you can imagine, my wife prefers that I get this cut out now, particularly given my family history.
 
I do have one question for the group about radiation: My friend the oncologist tells me that once you do radiation, the resulting internal scar tissue makes surgery a less viable option later in the event the cancer is not fully eradicated. Is that true? My friend seemed to think that the surgery was the best option, particularly robotic. As noted earlier, so does my urologist (his list of treatment choices was surgery, surgery or surgery).
 
Thanks again.

Welcome to the forum! The emotional roller coaster goes with the territory and we've all been on it since being diagnosed with prostate cancer.
You're on the right track.  Taking your time to gather information, research options and get 2nd or more opinions is important.  You want to be confident in your decision and the physician who treats you.
I have read that the radiation, whether brachytherapy or other methods makes surgery a less-than-viable option in the future if the cancer remains or returns.  Something to consider when making your decision.
You've come to the right place. The men and women at this forum are knowledgeable, empathetic and responsive.  We're here to help in the same way that we have been helped early in our own prostate cancer journey.
Take care and hang in there...Tim
 
 


Age 59  PSA quadrupled in 1 yr (0.6 to 2.5) 
DRE neg  1 of 12 biopsies pos (< 5%) 
Open surgery June 2006 
Organ confined pT2a  Gleason 5   
Cancer-free for 2 years  PSA's undetectable 


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 10/6/2008 7:01 PM (GMT -6)   
Whoa slow down and cancel your surgery for next month. There is no rush PCa is a SLOW growing cancer. First learn all you can of your treatment options. Knowledge is empowerment. You should never rush into a treatment, for there are no do overs. You may well choose surgery but do so when you know more of what you are deciding against. Just because your dad had PCa later in life is no reason to panic. Hell if truth be told near all men may have PCa in their 80s.

To show you what I mean. Is I first was leaning towards robotic surgery and then learning off all the possible side effects and not knowing their duration if any I began to lean towards brachytherapy. Then later I became more convinced this disease is somewhat over treated due to early detection in this era. That said I later learned of a local clinical research far less invasive treatment with maybe temporary to no side effects. That's listed below but it's only an option here for those who qualify, but I digress. The main point of this post is to advise you to wait a few months to learn and then when better prepared, more relaxed and less emotional then pick a treatment and a doctor. After that go ahead full speed with it and have no regrets..
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 


Bob & Wife
Regular Member


Date Joined Apr 2008
Total Posts : 100
   Posted 10/6/2008 8:19 PM (GMT -6)   
I am glad you found this site but sorry you are here.  As you can see the members here are amazing and will provide you with lots of information and personal experiences.  I wish I had found this site prior to my surgery and had more information than I did before my surgery.  The emotional support is priceless.  After my annual psa level in December of 2006 the doctor felt a nodule and felt we should do a biopsy.  Needless to say with a psa level of 1.7 we were shocked that it came back cancer!  My doctor has been my urologist for the past 20 years so I had a lot of confindence in him and his experience with open RP.  I recovered with no ED problems etc.  Basically I felt blessed after my surgery that I did not have the problems some of the guys have had.  Unfortunatly I had a nodule return in the prostrate bed so I had to continue on with treatments after my surgery (see signature below).  Take some time and gather as much information as you can.  Keep us posted and take care
 
Bob

Age 59 at diagnosis
PSA 1.7  Nodule felt. Biopsy 4+4 T2B
1-30-06 Surgery, Infiltrating adenocarcinoma.Nodes & margins clear, some prostrate cells found on bladder neck.
Post op Gleason 7  T2c 4+3 PSA .04
12-07 PSA jump .14  (11 Months)
12-07 Nodule felt,  biopsy negative
PSA .16
PSA .17
4-3-08 PSA .32 ouch
4-15-08  Nodule size increased.
5-8-08 PSA still .32
5-15-08 Bone scan clean, nodule size increased. Biopsy scheduled for 5-22-08
5-30-08 Biopsy came back cancerous. Next step consultation with oncology 6-5-08 for further scans & test.
6-19-08 Starting Radiation, treatment facility two hours from home.
8-14-08 Completed Tomotherapy, still tired and some bowel issues.  ED no problem at this point but doctor warned me this could change. Waiting for zero's. Next psa test 9-15-08
9-23-08  1 month post radiation psa from .32 to .14.
11-12-08 Post follow up with oncologist.
Next psa in 60 days hoping for all zero's


Golf and Cycling
New Member


Date Joined Oct 2008
Total Posts : 9
   Posted 10/6/2008 9:22 PM (GMT -6)   
Thanks everyone. I intend to continue looking at all of my options, but truth be told, I really want to deal with this sooner rather than later for a number of reasons, not the least of which is that I have already maxed out my insurance co-pay and out of pocket maximums for this year and I am now 100% covered for the remainder of the year. I know that's not a reason to make an uninformed choice, but it is a reason to do my research now and make an informed choice sooner rather than later.

One thing I am still curious about is the claim that needle biopsies can help spread cancer through the disturbance they cause. A similar claim was made on at least one website about surgery. No one at my MD's office told me anything about that before I agreed to undergo a needle biopsy. Do any of you know of any credible information on that topic - either or both as to needle biopsies and/or surgery?

Thanks again for the outpouring of support and for all of the sharing. As you already know, it really does help.
52 yrs old
PSA 4.6
2 of 16 needle biopsy samples positive
(3+3=6); (3+4=7)
11-6-08 LPRS scheduled at local hospital


califguy
Regular Member


Date Joined Sep 2008
Total Posts : 72
   Posted 10/6/2008 10:50 PM (GMT -6)   
Please do look at options. They did an excellent job at UCSF. So value Dr Carrolls opinon. I do not know where you live but the Nevada Cancer Institue in Las Vegas is excellent also. Also several Los Angeles area locations. Not that your docs are not good. Just I found things to be so much more clear and reassuring after I got more info and opinions. And certain other treatments work well for some types as other posters have mentioned.
 
Re: Biospy Spreading
I was at a Prostate Cancer Research Institute seminar in Los Angeles and one doctor make a statement that he felt it might be possible, but a reasonably healthy person should be able to fight off those cells. Like a dropped cell is not going to cause colon cancer since that is a different type.
 
Just read lots and try to keep the middle of the road. Some of these unknowns can cause undo stress. And you don't need any more stress in your life right now.
 
Keep in touch. No question is dumb.
 
We'll rooty toot toot to help you along!

Don't get discouraged!!
CalifGuy
 
Diagnosed Feb 2008  54 years old
3+4=7 gleason
7.5 PSA
4 out of 20 biopsies were cancerous
daVinci Robotic surgery July 24, 2008
Univ of Calif San Francisco Med Center  Dr Peter Carroll
In hospital 2 nights altho I had option of leaving the next day but stayed due to distance home.
Contained in prostate, not spread
Six weeks post surgery PSA less than .01


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2301
   Posted 10/6/2008 11:48 PM (GMT -6)   

I hear what you're saying about the insurance, out-of-pocket expenses, etc., but........that still gives you until the end of the year to begin treatment. 

Personally, I waited 4 months, which for an early-stage cancer is ok.  I could have waited longer. The extra time allowed me to do more research and feel comfortable and confident about my choice.  I didn't have any choice about the cancer, but I did have a choice of treatments.

 


Smokie
Regular Member


Date Joined Oct 2008
Total Posts : 46
   Posted 10/7/2008 6:17 AM (GMT -6)   

I know you have insurance issues that are rushing your decision. However, I'm guessing that psychologically you have a voice telling you that something is inside and you want it gone NOW! At least that is how I felt. To be honest, I was a huge relief just getting the surgery scheduled. Looking back, I may have made the same decision, but I should have taken a little more time to explore options. As your hearing from everyone else, you don't need to feel rushed.

Should you decide to go ahead with surgery, you're smart to shop around. The DaVinci site pointed me to a local Dr., who I discovered had only done a handful of robotics. I wound up traveling out of town for more experience. I believe that choosing the right Doc will be your most important decision whatever treatment option you go for.


Age: 43
RP: 9/06
Robotic, nerves spared
PSA: good (less than .05)
Currently dealing with RSD (nerve damage) in right arm, caused from breaking my wrist in spring 08 while trout fishing with son. Not related to ED, just general info about the year I'm having so far.


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 10/7/2008 7:40 AM (GMT -6)   
I do think you are a good candidate for radiation. I would suggest looking at seeds (brachy). The big issue is whether the cancer has spread outside the prostate. Your biopsy would seem to indicate you are statistically in the "not likely" category and it has not spread. In such cases, seeds will do well.

On the other hand, if you want to be sure it has not spread you have to go the surgery route, for only in doing surgery is the prostate removed and examined carefully to see where it has spread.

In whatever kind of treatment you use, you want to go with doctors who have a proven track record. Aside from the treatment you choose, I think this is the most important matter.

Keep reading and studying and you will come to the best decision for you.

RB

Age 61
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA .04

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 10/7/2008 9:01 AM (GMT -6)   
Maybe a better alternative would be to reschedule the planned surgery to as late in the year as possible considering hospital and doctors schedules and continue your study of alternatives. That way you can get your research done, surgery in if you decide that's the route to go, and the insurance issues are taken care of in this calendar year without feeling rushed but still taken care of in a timely manner.
James C.
Co-Moderator- Prostate Cancer Forum
Help support the Forum so it can continue helping you- donate at www.healingwell.com/donate
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-0, 6 mts.-0, 9 mts.-0.


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 10/7/2008 10:01 AM (GMT -6)   

One addition comment I would like to add into the mix of information you are trying to obsorb.

When you meet with a Doc and get an opinion, even if you are unsure of the Doc and procedure choice,  book a date for the procedure.  You can always cancel it at a later date. If you dont book the date you may end up sitting and waiting months to get in to the one you finally choose.

I had three procedures booked.  The Doctors even recomend doing it this way.  Its hard to get an operating room.

 

All the best,

Frank


Golf and Cycling
New Member


Date Joined Oct 2008
Total Posts : 9
   Posted 10/7/2008 10:27 AM (GMT -6)   
Thanks everyone. I intend to make a fully informed choice and will continue my research. In that regard, is it ok to post my doc's name on this site to see if anyone has experience with him?

52 yrs old
PSA 4.6
2 of 16 needle biopsy samples positive
(3+3=6); (3+4=7)
11-6-08 LPRS scheduled at local hospital


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2301
   Posted 10/7/2008 10:38 AM (GMT -6)   
Golf and Cycling said...
Thanks everyone. I intend to make a fully informed choice and will continue my research. In that regard, is it ok to post my doc's name on this site to see if anyone has experience with him?

Absolutely!  It's a good way to get opinions from others here who have used the same doc or know about him/her.


 


Golf and Cycling
New Member


Date Joined Oct 2008
Total Posts : 9
   Posted 10/7/2008 10:47 AM (GMT -6)   
Dr. James Hendricks, Napa, California
52 yrs old
PSA 4.6
2 of 16 needle biopsy samples positive
(3+3=6); (3+4=7)
11-6-08 LPRS scheduled at local hospital


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 10/7/2008 10:56 AM (GMT -6)   
Golf...I am going to disagree with some here on waiting. I understand the insurance part and fully agree with you on that. But waiting until the Holiday season (Thanksgiving & Christmas) is not the best time for the doctors, hospitals or support staff. Secondly...the longer you wait, the more the cancer will grow even if slowly. You need to find out if possible from the biopsy where the cancer is located within the prostate. If it is on the edge (like mine) don't wait as the cancer can grow outside the prostate very easily or if you elect to have surgery you could have positive margin(s) by waiting too long.

As far as the biopsy...for me it did cause some complications for surgery. The healing of the prostate at the needle site caused the rectal wall to adhere (scar tissue grew together) to the prostate making the removal much more difficult for the surgeon without damage to the rectal wall. As far as needle tracking of cancer outside the prostate...it is possible and there have been a few documented cases of such...but it is low on the percentage scale. So I wouldn't worry about that.

Bottom line, if you elect to go the surgery route...make sure you find the best surgeon as there can always be unforeseen complications.
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1,2008
Gleason 7 (4+3) Staged pT2c NO MX
Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
14 tumors in prostate - largest being 6 cm 

New Topic Post Reply Printable Version
31 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, June 24, 2018 1:39 AM (GMT -6)
There are a total of 2,974,662 posts in 326,195 threads.
View Active Threads


Who's Online
This forum has 161295 registered members. Please welcome our newest member, Blake Letras.
269 Guest(s), 1 Registered Member(s) are currently online.  Details
randynoguts