Low T - experiences and recommendations?

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Gerbe
Regular Member


Date Joined Sep 2008
Total Posts : 42
   Posted 10/6/2008 5:55 PM (GMT -7)   
A long time ago (10+ yrs) I had low testosterone.  At my lowest testosterone level, I was a neuter and I cried because of my lost sexuality.  All the sexual 'hooks' of TV, of looking, of jokes, conversation, etc., bounced off, like I had lost a sense akin to hearing.  It came back with T supplements.  For awhile, I had injections 1x/mo, then I discovered that 75 mg of DHEA was an acceptable substitute.    
 
Now I'm facing PC.  One Dr. said discontinue DHEA.  Another (my surgeon to be) said he thought there was a risk, but that he could see that if it was low before surgery, it might not be unreasonable to maintain a low side testosterone level post surgery (although he would prefer T-patch to DHEA).  I stopped my DHEA, then started up on 25 mg a day.  That was too low to give me enough 'juice' to maintain my relations with my wife, so I recently stepped back up to 50 mg a day, and that seems like it is working.
 
This is a quality of life issue.  Why are you sparing the nerves if they won't tingle with desire?  What risk am I taking on if I insist on minimal T levels?
 
I read some prior threads here, but I would like to know if Dr's attitudes have changed, or medical advice, or what people's positive and negative experiences have been.  Has anyone with normal T values been advised to receive hormone therapy for an organ confined PC robotic procedure?  Has anyone amped up their T values and regretted it due to a return of PSA or something?
 
Your feedback much appreciated.

The past is gone, the future yet to come.
This moment, here and now, is nothing less than the totality of existence.
 
Age 58
Mild DRE finding (hindsight unrelated) > biopsy
3/08 1st biopsy, 18 core. Path 1, HPIN and ASAP, 0.5mm 1 core.  Path 2, carcinoma
7/08 2nd biopsy, 16 core.  Path 1, 1 core carcinoma.  Path 3, 3 cores carcinoma
Urologist retired.  Referred to another Dr. in same practice, not experienced enough.
Robotic da Vinci sched 12/22/08, Univ of Washington Med Center, Dr. Ellis.


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 10/6/2008 7:36 PM (GMT -7)   
Hey Gerbe,

I was on T shots (200 mg / 2 weeks) for 10 or so years before PCa. My urologist told me I had to completely quit TRT after surgery. I did and my T level dropped to 48 with all the ensuing symptoms (hot flashes, muscle weakness, loss of all libido, and finally deep depression) My uro's refussal to restart TRT led me to find another urologist that was in favor of it so I restarted the shots 4 months after surgery. The symptoms immediately went away and I have been in good shape since.

Now, there is a school of thought (as by my first uro) that testosterone feeds PCa and you need to eliminate it in order to give yourself the best chance to be cancer free. Their idea is that any stray cancer cells will be activated faster in the presence of testosterone. My point was that my quality of life was so bad (suicidal) that I needed to take that chance in order to live at all. Happily, I have had zero PSAs since surgery so apparently the surgeon got all the cancer out of me.

This is just my experience. I in no way recommend that you do TRT or not do it. It is an individual decision that must be made weighing quality of life vs quantity of life. There are dangers and rewards involved in all our medical decisions. Best of luck to you and please stay with us. We can all get well together...

Jim


Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Start chemo in September 08
"Patience is essential, attitude is everything."


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 10/7/2008 7:19 AM (GMT -7)   

Brother Gerbe,

Unlike My Big Brother Jim, I didn't have hypogonadizm untill after my surgery. I've written lots about my problems here in the past so I woun't bore everyone. I had no idea what was going on and either did my brilliant doctors for 31/2 years while having, well you know what it feels like! I too almost bit a bullet thinking I was totally crazy and having shrinks tell me I was. When I finnally found out what I had but none of my doctors would give me TRT because of the old " throwing gasoline on fire" line. After talking to several Uro's and Endo's who also refused I fpound a Uro at an Us Too meeting and put the "quality of life" issue to him and he was open minded enough to realize I did my homework and agreed to help me. This was all done under the tutorage of our dear Swimom who I'm sure you will hear from soon. So Gerbe, I'm now just over 5 years since my surgery, I've been on TRT for almost 2 years and the zeros keep roling in. I feel much better now. I've been using the Androgel but am hoping at my bnext apt. my doc will let me switch to injections! Good luck and let me know if I can help.

Your friend,

Pete   


55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!

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