Well wishes for David ~ dsm c

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/7/2008 2:19 PM (GMT -6)   
dsm c said...
Hi Paul,
You and I will be on this journey together! I think I will ask my radiation guy about the whole pelvic region as Tony spoke of also, that may be what he is planning. I understand the scary side like you do. My appointment was a week ago today and I have settled down pretty good. I am planning on a week at the beach for some fishing before all this begins which I think will help.....lol. Good luck and be of good cheer.


David


Age 53
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....
 
David,
We are all cheering for good results.  You can keep us updated here if you like.  Stay well, and Stay Positive!
 
Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!

SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 10/7/2008 3:11 PM (GMT -6)   
Yes, I will be praying for you David!!!! Please keep us informed on how you are doing!!!

Is it me or based on David's pathology results and the length of undetectables I am shocked that his PSA has risen. Or am I sorely mistaken that this is a common occurrence to prepare for?

LIVESTRONG!!
Age Dx 37, 7/2008
First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008
Biopsy : 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008
Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008
PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
First PostOp PSA 9/2008: <0.01
2nd PSA 12/2008: Praying for <0.01
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/7/2008 3:49 PM (GMT -6)   
SHU,
It's not you. Unfortunately, this disease can be deceiving. For one, when you hear on TV that "when caught early PCa is nearly 100% curable" it is that statement that is deceiving as well. True when caught in stage 1 or 2 it is very curable, about 98%. But that leaves 2% and unfortunately David has more work to do. Now a person like David can still achieve a durable remission and he did not have an aggressive Gleason. So while he needs more work, he can still beat this thing.

Also about the use of the word "cure". I prefer remission. When ads or statements like above are stated, keep in mind the average age at diagnosis is 68. There many who die with prostate cancer and not because of it. There should be a special catagory for these guys as they surely go in the "cured" catagory when they die of something else.

But we do have a duty to remain positive and hopeful, if for no other reason, ourselves. This is cancer and it can come back on anyone.

This is about the fifth time I have posted that information. I hate it every time because I don't want to discourage anyone.

Instead, I'd rather just give my very best wishes to David to get back to remission.

Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 

Post Edited (TC-LasVegas) : 10/7/2008 4:23:07 PM (GMT-6)


dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 149
   Posted 10/7/2008 5:02 PM (GMT -6)   
Hi Guys,
I appreciate the well wishes! SHU, with all the nanograms and tables out there one would think that I would be in excellent shape but I have done a lot of research on the web and it was always in the back of my mind even with a 2% to 4% chance of recurrence. I had a dear friend call me 5 years ago with a diagnosis of bladder cancer, a week later he called back with news that it was Pca that had spread. His first PSA was 450. He was in LasVegas at the time waiting for snow melt in the mountains as he was a heavy equipment operator. That is how I became as well versed in this horrible disease as well as finding my own problems. I got to spend a couple of weeks with he and his wife in the mountains of Utah and saw him several times before he passed 2 1/2 years ago. This is what I really love about this site, you can get down to some real discussions! I will keep the board informed as I make my journey. Many thanks

David
Age 53
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 10/7/2008 5:08 PM (GMT -6)   
David thanks for sharing with us, and I do agree with Tony it is our duty to encourage each other as well as inform each other. PC is cancer and I am not sure any cancer ever goes away. For me I feel like a ticking time bomb, yet I stay so busy it keeps it off my mind some. Please keep us posted as to how things are going emotionally, physically, and spiritually.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 10/7/2008 7:06 PM (GMT -6)   
Hi David,
 
Just wanted to wish you the best of luck with your forthcoming procedure. I hear from Tony that you'll have the best of equipment available to you to give you the best chance possible. I have my Simulation on 14 Oct., 08. Being scared has become a chronic situation for me ever since I've came down with this darn disease.
All the best to you, David.
 
Paul

Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08
Next step: Salvage RT


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 10/8/2008 9:54 AM (GMT -6)   
David,

I'm wishing you all the best. Keep a stiff upper lip and have faith that the doctor will get this thing. Being a little scare only proves that we are still alive and kicking.

Tony, us 40 year olds will just have to extend those nonagrams with 10, 20 or even 40 years of remission.

“Worry is like a rocking chair. It gives you something to do, but it doesn't really get you anywhere.”
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
08/2007: Bone Scan found something on my skull. PCa surgery on hold
             Had piece of skull removed to test for PCa.
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
             Both nerve bundles spared
             Pathology Report: Tumour confined w/in prostate
             T2c, Gleason is 3+3=6
             Went home with JP drain
10/2007: Made return trip to hospital.  All urine was coming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003.  Started Viagra for ED, no response yet.
             Having some issue with Vertigo from skull operation.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :) ED: next to no response.
             Vertigo is subsiding.
04/2008: 3nd PSA <.003 :) ED: Changed the Viagra prescription.
07/2008: 4nd PSA <.003 :) ED: Still NADA.  Changing to Cialis.
             Dizzy spells are occurring more often
09/2008: Trying Levitra 


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 10/8/2008 1:04 PM (GMT -6)   
Tony & Dave thanks, thats what I love about this site I can ask real questions and get real answers!

Am I the only one here under 40? havent seen anyone posting in thier 30's. My doc said I was the youngest for him in doing the robotic surgery and he has done close to 2000 of them...

LIVESTRONG!
Age Dx 37, 7/2008
First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008
Biopsy : 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008
Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008
PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
First PostOp PSA 9/2008: <0.01
2nd PSA 12/2008: Praying for <0.01
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/8/2008 2:20 PM (GMT -6)   

SHU,
We have had a couple in the thirties here, but you might be the youngest I have met.  I will say that I have crossed cyber paths with under a dozen in the thirties.  One of which was stage 4 and a Gleason 9.  Shows how fair this stuff is.  Sorry to put you at the youngest I have met online but I am very glad you are doing well.  yeah

Funny to say that to someone.  When I got here I was in the top 3 or 4 of youngest here and was the youngest to be advanced.  Now that I am two years older and this site has grown so much, there are probably 20 guys younger than me posting regularly.  So I feel like a country music star fading in the charts.  turn

Tony


Post Edited (TC-LasVegas) : 10/8/2008 1:23:52 PM (GMT-6)

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