Thanks for all this important info. I have been trying for 18 months to understand related things. ie. why my husband's results are always reported as in comparison to his (biological) age, not his post op Pca status at all. I also have great concerns that his pca status is never on the referral form. Although PSA's are (for him) reported as ultrsensitive by the same lab (and acceptable to us so far), we are unclear on what may or may not, be considered a rise for him by any of his doctors, and what the figure might be actually reported to etc (at what point equipment rounding to 2 decimals etc). At the moment, if it rose significantly, it may not even be noted according to the lab report we are currently using (but obviously would be noted by the doctors viewing the report). Still I think this is inaccurate, and that his results should be reported at lab levels, right down to the level at which adjunct might be necessary (whatever that is) in light of his individual treatment for Pca, not just a random standard range report of men without a history of Pca. Sorry about my wording - it is hard to explain clearly. The lab does not report the ultrasensitive ranges even though they do this ultra test. Seems plain stupid to me!
We are at the same (overall) treatment centre as you (or were - they have ditched us now back to GP only, after the yearly post op visit!), so I kind of hang off all your posts!! (Hubby cannot use a computer so I relay relevant info). I will download all your experiences and info, and ask the GP currently organising the referral for the next PSA this week, to read it all - so she has a clearer picture of our concerns, and she may then put the referral details on the request form, as we have just changed doctors for on-going management. We might also be able to get some info from this lab as to their process and change centres if not happy with explanation. Many thanks once again therefore. You have highlighted ALL my questions and concerns too (although my husband's Pca was contained within prostate area), and answered other concerns through your great research. We will start with the GP and go from there. I never thought of writing to the lab, but such a good idea. Thanks for sharing all this re. clarification of the ultra sensitive testing overall and the inconsistencies in reporting. I know it does not matter to some people, and that's fine, but it does matter to us, so thanks again. Yes, Spring is here in Australia, so have a good one. Like you, we are in good health so live it up, but keep on questioning to stay that way!!
cheers to you and yours .