Welcome PCADVOCATE ~ Chuck Maack.

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/13/2008 11:01 PM (GMT -6)   
A very warm welcome to PCADVOCATE to our great site.  Chuck is a 16 year survivor, and a highly experienced outspoken advocate of our cause.  I have read his works many times, at first I felt a bit intimidated because he has extensive knowledge of the treatment options available.  Chuck has always offered some great suggestions and can be of assistance to any one here when you get to that fork in the road.  I have met him at another site and together we are moving forward on an advocacy project.  I will announce that when I know it is launched.  While he is here I am certain I will draw more from him than he will from me. 
 
Great to have you, Chuck!
 
Tony

Post Edited (TC-LasVegas) : 10/15/2008 1:27:32 AM (GMT-6)


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2285
   Posted 10/14/2008 12:11 AM (GMT -6)   
Welcome, Chuck! It's great to have a long-term survivor and PC advocate here.
 
It was interesting to see the number of low PSA prostate cancers on the YANANOW statistical charts.  Mine is similar and I am thankful it was caught early and removed. PSA velocity was the key that triggered my family physician to refer me to a urologist for follow-up, which included a biopsy.


Age 59  PSA quadrupled in 1 yr (0.6 to 2.5) 
DRE neg  1 of 12 biopsies pos (< 5%) 
Open surgery June 06 Organ confined pT2a  Gleason 5   
Cancer-free for 2 years  PSA's undetectable No incontinence
ED: Success with Quad-Mix injection. Now using TriMix gel (not injected) with good results.
"Patience and time, time and patience" 
 

Post Edited (TimG) : 10/14/2008 9:06:13 AM (GMT-6)


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 10/14/2008 12:44 AM (GMT -6)   
Welcome! Welcome! It is always great to get an advocate who is also a long term survivor on board.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 149
   Posted 10/14/2008 6:47 AM (GMT -6)   
Welcome Chuck! You will be a great asset to the site. I believe knowledge is power in this journey . Again welcome Chuck.

David
Age 53
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....


Navy corpsman
Regular Member


Date Joined Aug 2008
Total Posts : 61
   Posted 10/14/2008 9:13 AM (GMT -6)   

Chuck -

Welcome and congratulations on surviving for so long.  Keep up the good fight.  I'm sure everyone at this excellent site, self included, is looking forward to your knowledgable posts.  Personally speaking, this site has helped me immensely in learning about and dealing with pca.

- John
Age:  44
We have a family history of PCa.  My Dad and uncle died from it at 65 and 53. My PSA velocity increased in the last 2 years and I had to talk my GP into refering me to a urologist.
Biopsy results:  5 of 11 cores positive, all 30%. Gleason 6. T1c. PSA 2.53  Date of biopsy 15MAY08.
Open RRP at Johns Hopkins with Dr. Partin on 09JUL08.
Pathology report:  Gleason 6, pT2, neg. margins, 0 lymph node and seminal vessical, organ confined, I lost 1 nerve bundle and 22 lymph nodes.
As of today, about a month after surgery, I feel at about 80%. Urinary control seems to be improving. Little Elvis has taken a nap and has not awakened yet. I hope when he wakes up he is well rested because he is going to get one heck of a workout.
 
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/14/2008 6:40 PM (GMT -6)   
Welcome Chuck....as a wife, I am trying to be as supportive and as informed as I can be to help my husband who has been in this battle now for seven years...I look foward to your posts....Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 28 2008


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 10/14/2008 7:00 PM (GMT -6)   
Welcome Chuck! Hope you will stick around and share!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 10/14/2008 7:54 PM (GMT -6)   
Welcome Chuck


You are such an inspiration to us all

Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
first year PSA less than zero
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 10/15/2008 6:01 PM (GMT -6)   
I to would like to welcome Chuck, I have spoken to him via email on many occasions and yes he does have a wealth of knowledge. Another great assett to HW.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 

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