thanks for the support. glass guy's wife here.
you know what is so disconcerting? glass guy probably looks better and feels better than he has in a long time. we thought he was coming along swimmingly - the extra weight and bloat from the lupron was gone, the indigestion was gone, everything working good. heck, we even started having mexican food again. and then the lousy psa. then, all the gloom and doom i read just makes me want to cry and i didn't even cry the first time. we just forged ahead and tackled the beast.
looking back, we should have acted when he got the .7 psa in april. what did we know? it was still below 1. we both thought it was a rise and wondered about it but the dr. had no comment so what did we know? maybe it was one of those kicks.
we are anxiously anticipating the scan results. the pelvic cat scan is tomorrow and guy just had a berry smoothie barium drink. the nuclear body/bone scan is friday and we do not get results until next week. then we'll make our plans. i told guy, what the heck we'll go bankrupt. whatever it takes. first time we packed up and went to california to loma linda. whether we go to south carolina or michigan, we'll check out our options. hey debbi, maybe our plans will cross! don, thanks for the contact info.
glad to have the encouragement and sage advice of this group.
guy's better half :)
first psa ever 11/05 - 12.1, age 67
what a dummy! now a big advocate for early PSA's
gleason 7 (3&4)
Proton beam therapy - LLUMC -79.2 Gy to prostate
Photon - 45 Gy to pelvis
Stage T3b NX M0
bilateral seminal vesicles and extracapsular extension
PSA's on Lupron - .02 range
off Lupron - .7 (4/08), now 12.8 (10/08)
testing currently (10/08)
researching salvage and options