How do you not worry about your next PSA results?

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rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 10/20/2008 6:24 AM (GMT -6)   
I am coming up on my 6 month PSA and I think and worry about it more each day.  I received good news after the 3 month test but now my mind is focused on the 6 month.  Does it get better over time? 
 
Age 48
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
surgery may 9, 2008 - houston, tx
pathology report -gleason 8
margins clear
4 week and 6 week PSA >.04 (undetectible)
12 week PSA <.04
continent at 10 weeks (no pads!)
kegel's twice a day 20 reps


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4840
   Posted 10/20/2008 6:55 AM (GMT -6)   

Mind over matter...Think positive.

In other words - just assume you're on the road to success untill you hear otherwise smilewinkgrin


Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 10/20/2008 8:58 AM (GMT -6)   
rob2, I was the same as you, the three month didn't cause me a great deal of worry, I guess because with all the business of recovering from surgery and getting back to work did not leave me a lot of time to stress about it, but the six month was different. It allowed me a lot of time to read, look at recurrence rates, etc. But it turned out OK, since then I have had a good 9 and 12 month PSA, and now have tests at 18 and 24 months. All I can tell you is time will make the dread go away, after all it is just fear, which you are entitled, but the stats are on our side, and worrying about will not accomplish anything but stress. Now if I find myself fretting over numbers, I take stock in the fact that I am alive and well, surgery is behind me, and there is an abundance of lifes greatest things at my feet, reach down and enjoy, and remember that for everything that is taken away, life will give you something else, if you let it happen. Worrying about something you cannot control only steals more of your time, which now is more precious than ever. Good Luck, everything will be OK.

Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 10/20/2008 9:17 AM (GMT -6)   
Rob,

What you are experiencing is normal. It gets easier (honest it does) albiet, doesn't quite leave you. Find new ways to use the anxious energy to complete those meant-to chores or volunteer a little time to the church or other community activity. Men want to know what women do? This is what we do! At least it's what "I" (Paul too) do. We can't fix everything but we can do good somewhere, for someone.

Swim
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/20/2008 9:45 AM (GMT -6)   
Rob,
I fully understand. But Swim and the others are right. It does lighten up. But I don't really look forward to any of them. Mine are done every 4 months, and will stay that way until next summer when we reduce them to every 3 months post hormone therapy. That will be for a year or more.

I have, however, managed the emotions well. I like some of the suggestions. I do work in the church/community, and also play in the mountains a lot, and generally do things I enjoy. Doing productive things keeps my mind off of it. I don't think anybody here does not get the jitters as a test looms. I guess the key message is don't let it consume you. It is what it is. And stay positive!

Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 10/20/2008 9:55 AM (GMT -6)   
I can identify since I'm near 6 months. Although with my greater than expected drop at 3 months I'm assuming they got it all. Stay tuned.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimmons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32 
 


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 10/20/2008 11:13 AM (GMT -6)   
Rob,
 
On Thursday I get the results of my 12 month PSA test.  I found the 6 week, 3 month and 6 month check-up the worst.  I hardly slept for a week leading up to the doctors appointment. smhair   I was mildly apprehensive for the 9 month check-up confused   and not overly worried about the upcoming one. rolleyes  
 
Will the worry always be their... YES... but it's getting smaller all the time.
 
Hang in there it only gets better. turn

Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
08/2007: Bone Scan found something on my skull. PCa surgery on hold
             Had piece of skull removed to test for PCa.
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
             Both nerve bundles spared
             Pathology Report: Tumour confined w/in prostate
             T2c, Gleason is 3+3=6
             Went home with JP drain
10/2007: Made return trip to hospital.  All urine was coming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003.  Started Viagra for ED, no response yet.
             Having some issue with Vertigo from skull operation.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :) ED: next to no response.
             Vertigo is subsiding.
04/2008: 3nd PSA <.003 :) ED: Changed the Viagra prescription.
07/2008: 4nd PSA <.003 :) ED: Still NADA.  Changing to Cialis.
             Dizzy spells are occurring more often
09/2008: Trying Levitra 


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 10/20/2008 11:30 AM (GMT -6)   

 

   I for one am not going to worry about tomorrow until today....and then, what will be will be...I'd hate to be worrying about something and not see the bus that runs me over in the road!! 

 Deal with it as it comes, enjoy the good things around you, family, friends, the good earth.......don't waste the next three months being all anxious and stuff, enjoy life and all it brings.... that worrying will just sorta' slip away....good luck

    ..ps, it's a absolutely glorious day in this part of the midwest....

 

 

 


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
        9.15.08 pad free at night, one thin (light) pad during the daytime
        hours. Just because I'm chicken..!
         9.18.08 1st post-0p-PSA-Undetectable...Zero's!  Yes!
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2338
   Posted 10/20/2008 11:34 AM (GMT -6)   
It's perfectly normal to feel anxious, but the important thing is to not let worry control your life.  Life goes on, no matter what our emotions, so it helps to fully engage in life around us so our thoughts and emotions don't derail us.  Hard work can be an antidote to excessive anxiety.
 
In my own experience, the anxiety has lessened over time, but never goes away entirely, especially as PSA test time nears twice a year. It also helps to say it out loud ('I'm worried') or write it down or share it with understanding friends (There are plenty of understanding friends here at this forum)
 
Take care and hang in there...Tim
 
Age 59  PSA quadrupled in 1 yr (0.6 to 2.5) 
DRE neg  1 of 12 biopsies pos (< 5%) 
Open surgery June 06 Organ confined pT2a  Gleason 5   
Cancer-free for 2 years  PSA's undetectable  


beachbum50
Regular Member


Date Joined Sep 2007
Total Posts : 293
   Posted 10/20/2008 12:28 PM (GMT -6)   

 

Rob2, I go for my 12 month PSA in two weeks, and although there is a little worry in the back of my mind, I focus on the positive, My operation got all the cancer, clean margins and the other three PSA's have all been zero, so I am continue to expect them to be zero unless proven otherwise!

 

Beachbum


Beachbum
 
PSA 10 June 2007
Biopsy July 2, 15 of 16 samples positive
T2C
3+3=6
prostate weighed 40 grams
Di Vinci 10/09/07, four hours on table, 3 in recovery
Total time in Hospital: 29 hours
Record for Dr. Lance, 70% of prostate had cancer, but NO spread, clean margins,Clean nodes,
First PSA at 5 weeks, UNDETECTABLE!
Catheter out at seven days, dry from hour one!
Second PSA 19 weeks post op, UNDETECTABLE 2/11/2008
Third PSA 5/12/08, six months post op, UNDETECTABLE
Fourth PSA 8/21/08, nine months post op, UNDETECTABLE
The Lord has truly Blessed me.


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 10/20/2008 4:06 PM (GMT -6)   

I had blood drawn two weeks ago for my 7-month PSA test and haven't worried about it at all. I go to see my Uro later today, so should find out the result then.

Obviously I am hoping for a good result, but if it isn't, it is still not a death sentence -- radiation and HT may feature in my future. Statistically without PCa, I have only 17 years to live. If the worst happens, and my PCa spreads, I will still have another 5 to 10 years left -- so it simply means I will be leaving this earth a bit sooner than I thought.

Don't know whether those thoughts help anyone else to stop worrying, but they work for me.


Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week PSA: 0 


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 10/20/2008 4:51 PM (GMT -6)   
Well I get my first 4 week post surgery PSA tomorrow...worried...meh

Guess if I thought worring would lower or keep my PSA low, then I would worry like the dickens. But because it won't...why worry.
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1,2008
Gleason 7 (4+3) Staged pT2c NO MX
Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
14 tumors in prostate - largest being 6 cm 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 10/20/2008 6:22 PM (GMT -6)   
I want to thank you all for replying. It means a lot to me getting all of your input. I will keep a positive attitude and do the things you have recommended!
 
Age 48
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
surgery may 9, 2008 - houston, tx
pathology report -gleason 8
margins clear
4 week and 6 week PSA >.04 (undetectible)
12 week PSA <.04
continent at 10 weeks (no pads!)
kegel's twice a day 20 reps


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 10/20/2008 9:32 PM (GMT -6)   
Hi Rob:  I'm nearly two years out and still going for the PSA test every six months.  I find that once I get the negative result, I can relax for the next 5-1/2 months or so.  Then, when the time for the next test test comes, I get the anxiety thing going about two weeks in advance.  If the waiting game drives you nuts (like me) ask your doc to give you the request for the PSA test and get your blood work done at your local lab, rather than at your doc's office  Then. you can request that the lab gives your result to you directly (they're generally ready the next day) and have them copy your doc as well.  That way, you don't have to wait days and days or until your next appointment for the doc to give you your result.  I have found that method to be a great relief for me, havng waited up to 8 days at times for my result.
I've talked to a lot of Pca guys and after about three years or so of negative PSAs, they tend to stop worrying about it.
In the meantime, taking the PSA test still feels like playing Russian Roulette, to me.  It's a game none of us cared to be part of,
but here we are.  With each new Zeeeero though, the anxiety ebbs.
Best to ya,
Tom


D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07

Third post-surgery PSA -- Undetectable, 2/15/08

Surgery for bilateral inguinal hernia repair, 4/4/08 

Fourth post-surgery PSA -- Undetectable, 8/15/08

Post Edited (PianoMan) : 10/20/2008 8:37:43 PM (GMT-6)


sterd82
Regular Member


Date Joined Sep 2006
Total Posts : 187
   Posted 10/21/2008 12:26 PM (GMT -6)   
I'm a lot like PianoMan.....about 2-4 weeks before my next PSA I start to get a little jittery--- its does get a bit better each time, but still nerve racking. I try to review the POSTIVE things about my prognosis, and that helps. Its still like waiting for a verdict from the jury when I go in for the results.

I get my lab work done ahead of time and have it sent to my doc -- but I let him give me the results. I went thru having a post-surg rise in PSA, and was told by the lab tech who really didn't understand my concern. If I have a rise now, I'd rather hear it from the doc and get his immediate thoughts --- we're probably all a bit different.
Sterd82
Age 47 - pre-surgery PSA 39
Open Radical Prostatectomy 6/9/2006
Pathological Stage T3a, Positive Surgical Margin
Gleason 3+4
PSA rose to .24 in November of 2006
6 month hormone therapy initiated December 1. 2006
36 sessions of IMRT Ended Feb 1, 2007
PSA as of May 25, 2007 undetectable
PSA as of November 29, 2007 undetectable
PSA as of May 14, 2008 undetectable
Next PSA November of 2008


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 10/21/2008 2:00 PM (GMT -6)   

 

....guess I'm lucky, when I go in to see Uro, I get my blood drawn, then 15 minutes later he's telling me my PSA #...does it all right there in his office....works for me...heck, maybe I just don't have time to get nervous :-)

 


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
        9.15.08 pad free at night, one thin (light) pad during the daytime
        hours. Just because I'm chicken..!
         9.18.08 1st post-0p-PSA-Undetectable...Zero's!  Yes!
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 10/21/2008 4:41 PM (GMT -6)   
Rob I suppose I could echo what the others have said, it is always on your mind, however it does not have to consume you. Be sure to live each and everyday as if it were last. Life is a precious gift and we deserve to try as best we can to live it stress free. Please let us know how things go.

peace and love
dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 10/21/2008 5:42 PM (GMT -6)   
Hmm, I've never been one of the "live like I'm dying" sort of person's myself. Live as if there is a road yet untraveled and head that direction. What lies ahead is not of our choosing entirely but, it is full of possibilities and fellowship, making the unknowns a lot less scary and the possibilities a lot more fun! I make it a point to do at least one spontaneous kindness every day during my travels. It's a heck of a ride :>) Takes the mind off the ruts and on to other possibilities :>)

God Bless,
Swim
 

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