iCATH .. SELF CATHING..

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rachy
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/22/2008 2:23 PM (GMT -7)   
Forum to help with self cathing..
 

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/22/2008 3:57 PM (GMT -7)   
Hi rachy,
I read your site and extend some very sincere thoughts your way. I only have met two guys who, because of prostate canvcer were doing their own catheters. One was because of poor results with his surgery, and the other was because his cancer had spread to his bladder and spasms were making it impossible to treat his incontenence.

Some of the guys here did have urinary tract infection ~ UTI ~ while they had their catheters installed and may be able to speak how they handled treating it. But they are guys, and treating it varies between man and women.

I cannot imagine ever installing my own catheter ~ call me squeemish! I hear that it's tougher on the guys but I truly don't know. I searched on the web for self catheterization and surprizingly there is quite a bit of information about it. I am sure you have seen much of this.

I do wish you the very best concerning your condition. And as a blogger, I wish you the very best in your effort to bring the disussion to people.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


SebringR
Regular Member


Date Joined Oct 2008
Total Posts : 29
   Posted 10/22/2008 5:55 PM (GMT -7)   
A day after I had the cath removed I was at the urologist office with my bladder totally swollen.  The young PA walked in and told me she was going to teach me to self cath.  It was the most interesting part of the surgery, but as much as I could not see that hose sliding through the opening in my penis, the pain of the swollen bladder was greater.  She watched and instructed as I installed the tubing, kept pushing it in until relief came I had 430 CC and was glad to get rid of it.  I spent the next week in the bathroom with my cath, the swelling went away and I was fine.  The one thing it did do was allow me to comfortably lose my modesty.

Age 51
Father died of prostate cancer at 73
Yearly PSA testing.
Biopsy after PSA went up .75 in one year
6 of 12 in needle biopsy where cancerous
DaVinci surgery 4/15/2008
Last PSA .008
 


caring wife
Regular Member


Date Joined May 2008
Total Posts : 20
   Posted 10/23/2008 11:39 AM (GMT -7)   
My husband did self cathing for 12 years because of a spinal cord injury.  In April 2008, he had prostate cancer surgery.   Since the surgery he has been so incontient that he no longer has to self cath.   He now uses the bioderm catheters for the incontinence which is an external catheter that is covered by Medicare.  These catheters work well for him.   

My husband is 60 years old.
RRP surgery April 14 2008
Gleason score 3 +4
PSA 6.8
Free PSA 6.5
Father and Grandfather had prostate cancer
Father is still alive..diagnosed with lymph node involement in 1993...He has received hormone therapy since then....just this year has bone mets.
Path report for my husband showed negative margines but extra prostatic extension.
First PSA done one month post surgery  results .04


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/23/2008 12:13 PM (GMT -7)   
nono
When I first saw this post, I knew in the back of my mind I was going to get schooled on this.  This is a great thread.  Obviously, there will be folks in the prostate cancer arena who will need to know more about it. 
 
Thanks Rachy and all the members posting.
 
Again, I would have that inner fear at first ever attempting to do this.  I am certain you all know what I mean and been there. 
 
Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


rachy
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/24/2008 9:01 AM (GMT -7)   
Thanks guys for your interest and replies.. i too have to self cath 5-6 times a day as i have complete retention but still no dx or explanation as to why?
Its just not many people really talk about it and it is'nt somthing you r friends want to sit and discuss..

Thanks again

Rachy x
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