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Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 10/28/2008 7:59 AM (GMT -6)   
 
Well I went for my second cystogram yesterday here in my town and bladder connection still leaking.  I send the files by Fed Ex to the doctor but at this point not sure what to do because of the bleeding they said no walking or excerise.  I am to call the doctor today after 12 PM to see what he wants to do I am afraid the longer they leave in the catheter the harder it will be for me to regain continence.  This time however, they were able to fill the entire bladder before it started to leak the other time it leaked right away and they did not even continue.  I do not know how many of these cystograms I can have since I need to pre-medicate since I am allergic to Idoine.
Has anyone had this problem did he final heal on its own.  Any info would be appreciated.
 
Jerry     
 
Age 69
DX 8/13/08
PSA 4.0
Biopsy 14 samples 1 positive for Prostate Cancer 12% of sample
Second option of biopsy from Methodist Hospital Houston same DX
Gleason Score 4+4 =8
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Bone Scan and MRI negative
Post Gleason report  3+3= 6
Lynph nodes on both sides clear
all margins clear
Cath still in due to small leak try again on the 29th


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 10/28/2008 11:18 AM (GMT -6)   
Jerry...just for my education. Are you talking about a leak of urine or blood internally? I am thinking that you are talking about the bladder connection with the uretha, but this is where my limited knowledge is at. Would you mind elaborating some more for me?
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1,2008
Gleason 7 (4+3) Staged pT2c NO MX
Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA Oct 08 <.05


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 10/28/2008 11:38 AM (GMT -6)   
I had four cystograms done....Finally got the Cath out on week five. Became dry at the end of three months after surgery. Your mileage may vary but hang in there.
Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 10/28/2008 1:49 PM (GMT -6)   

 

Les,

It is where the urthea was connected to the bladder I appartently broke a stich and when they inject the dye during the cystogram to test the bladder they see a leak.  I am waiting for the doctor to call to see if the leak is small enough for him to take out the catheter.  Otherwise I am no leaking urine or blood.

Jerry


 
Age 69
DX 8/13/08
PSA 4.0
Biopsy 14 samples 1 positive for Prostate Cancer 12% of sample
Second option of biopsy from Methodist Hospital Houston same DX
Gleason Score 4+4 =8
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Bone Scan and MRI negative
Post Gleason report  3+3= 6
Lynph nodes on both sides clear
all margins clear
Cath still in due to small leak try again on the 29th


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 10/28/2008 2:51 PM (GMT -6)   

The leak has to be  non existent before you can take the catheter out. Otherwise, you get MAJOR abdominal pain – a trip to the ER and the catheter re-inserted while you’re awake.


Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/28/2008 9:18 PM (GMT -6)   
Not to scare you....but mine was in 24 days before I healed up enough to take the cath out. I do not think cath time has that much to do with regaining control. It is all a function of muscle and nerves working toghether. I think..... But what do I know....
Good Luck with it
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Little Jem
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 10/29/2008 2:09 AM (GMT -6)   
Hi Jerry,
 
Just thought I'd add my Hubby's experience following his open RRP surgery.  My Hubby had a haematoma (sp?) at the incision site after the staples were removed and the wound opened up about half an inch, and the first catheter he had fitted allowed urine to leak out of the bladder - urethra join and then out through the haematoma - not very pleasant at all and he ended up using stoma bags over the hole just to keep dry.  Most of his urine never made it as far as the catheter bag!   So he had to have a larger diameter catheter fitted which cured that problem.
 
Then, from surgery to final removal of catheter was 12 (yes twelve!!) weeks.  He had numerous cystoscopies, first every 2 weeks and then later each week for about the last 3-4 weeks the catheter was fitted to determine the extent of the leakage which gradually lessened and finally  stopped altogether.
 
Anyway, once the catheter was finally, finally removed, he was totally dry straight away and has never, to this day, used even one pad and his surgery was now over 2 years ago.  So, whilst it wasn't pleasant for him and seemed never ending at the time, he did heal eventually and despite the length of time he had to suffer the catheter it doesn't appear to have affected the final continence outcome so don't be too disheartened at this stage.
 
PSA tests have so far been big fat 0's and he had some blood taken yesterday for the most recent test so we're hoping for another big 0.
 
ED is another story and he's still battling with that but seems to have gotten somewhat disheartened with the results of anything we've tried up to now (and we've tried them all except the implant) and given up trying.
 
Anyway, take care and I hope this helps.
 
Little Jem

Post Edited (Little Jem) : 10/29/2008 7:50:48 AM (GMT-6)

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