THE AMAZING AUS 800!!!

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divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/28/2008 1:40 PM (GMT -6)   
Well, today the AUS (artificial Sphincter) was activated for Pete. You can"t believe how happy and thrilled he is that it really does work! I have to thank Gene, Berb, and KW for their wonderful posts and the information that we learned from them....Thanks Guys! Pete has been totally wet for two years....one year before that with the catheter in, and several cystocopys and a fistula operation....all because of the radiation damage, and the subsequent salvage surgery. He went through literally thousands of pads and diapers.... We had one doctor tell us last year to just go ahead and get a bag....but thanks to this site, we learned about the AUS... Anyone that is suffering from incontinence should really be aware of how great the AUS is... I don't think many people know about it.. .It will be a celebration tonight with several glasses of vino!!! Diane yeah
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 28 2008


Berb
Regular Member


Date Joined Mar 2007
Total Posts : 93
   Posted 10/28/2008 4:05 PM (GMT -6)   
That's really great Divo, and quite remarkable that it works so well, given Peter's history.  Congratulations on perservering.
Berb

59 when diagnosed, now 60 years old
Da Vinci surgery Jan 10, 2007, nerves spared, no cancer detected outside prostate
Pre surgery PSA 8, Gleeson 3+4=7, T1C, 3 out of 12 biopsies had cancer
Complication 1: urine favoured drain tube over catheter, extra time in hospital, catheter in for 2 weeks
Complication 2 - urinary tract infection - Citrobacter (hospital bug), 6 weeks antibiotics cleared up
Complication 3 - fungal growth on genitals (candida albicans) probably from antibiotics
Aug'07 Urodynamic study for continuing incontinence 8 pads per day; diagnosed bladder neck stenosis
Oct'07 CT scan indicated nothing abnormal; cystoscopy showed narrowing at anastimosis - dialated
Dec'07 averaging 9 pads a day, started acupuncture (no benefit after 10 treatments)
Jun'08 AUS fitted
Aug'08 AUS activated - highly effective
Post surgery PSA tests: all undetectable


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/28/2008 8:37 PM (GMT -6)   

Divo, WELCOME to the 800 Club!!!!!!  I am so glad it is working well for you also.  I know at first Pete will still be nervous about leaking.  After dealing with it as long as WE have it is a hard habit to break.  I am at three weeks post activation and I am just now getting where I do not worry about "leaking out" but I do wear a light womens panty liner.  You two will be able to enjoy getting on with your live without carrying around a supply of pads, spare cloths and always worrying about where you can find bathrooms.  Now comes the fun part of re-learning how to pee agian.  A couple of times I have actually forgot to "push the button" before trying to go.....heheheh  I wish you well with your AUS. 

    KW

 


    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/29/2008 5:30 AM (GMT -6)   
Thanks KW....It has only been one day for Pete....He was up five times last night, and he seems to have a little squirting at the beginning, but I think it will take a few days for him to get used to it. He may need to talk to you about getting used to it. May he? Thanks very much. It hs been a long road....Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 28 2008


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/29/2008 7:26 AM (GMT -6)   

Wonderful!

As time goes on Pete will learn a little more about what he can and cannot do.  Like the rest of us, he probably will have to wear a little emergency panti-liner.  KW says he's about 95% dry.  I suppose that's about right for me too since a few little drips per day happen and, depending how I sit, sometimes a little squirt will happen.  It's nothing that a little liner cannot contain.  Happy Days are here again!

If Pete or you wish to talk to me, find my email address on the side bar and I'll give you my phone number.  I'm sure KW won't mind either.

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices are working very good and surgeon was very pleased that I am very pleased.
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/29/2008 6:50 PM (GMT -6)   
Thanks so much Gene and Kw.. It is a new day here....I hope it works out as well for Pete as for you....Today, there were a few problems, and some leaking...I dont know what that is about....we called , and the nurse said that it takes a few days to get used to it....Ill keep you informed, and thank you for the offer of talking with Pete. ...I think that may help.... Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 28 2008


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/29/2008 6:51 PM (GMT -6)   
and Berb, thank you too!! d
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 28 2008

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