Dealing with urinary incontinence

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olslyfox
New Member


Date Joined Oct 2007
Total Posts : 11
   Posted 10/30/2008 3:00 PM (GMT -6)   
I had my prostatectomy on 8-22-08 and have had no control ever since.

I have experimented with diapers (didn't like that wet feeling), male guards folded and taped in a sheath (very comfortable, most of body stayed dry), Texas catheters with tube and bag (effective but cumbersome), the AlphaDry system (external cath with expandable bag attached) (not bad, all fits inside briefs),and penile clamps.

With various daily combinations of the above, i led an active lifestyle ..... just needed to empty/change every couple hours.

The most comfortable clamp was the the Squeezerklip and also the most expensive (if you choose to buy new). I used it off and on for 6 weeks (it's almost new) , alternating with the Alphadry, and folded male guard sheath.

Then I had an artificial sphincter implanted and haven't needed those 'toys' since.

If you would like any more details on my experiences, please just ask.

In addition to posting here, i can be reached at olslyfox@yahoo.com

LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 10/30/2008 3:32 PM (GMT -6)   
Curious...is the date of the prostectomy correct...just this last August and roughly 9 weeks later had the implant? Would you mind clarifing a bit.

Thanks
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1,2008
Gleason 7 (4+3) Staged pT2c NO MX
Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA Oct 08 <.05


olslyfox
New Member


Date Joined Oct 2007
Total Posts : 11
   Posted 10/30/2008 3:54 PM (GMT -6)   
sorry .. .......... 8-22-2007

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4840
   Posted 10/30/2008 3:59 PM (GMT -6)   
Olslyfox - you should edit your first post and remove your email address....There are "bots" that can harvest the address and spam you to death.

You can enable your email within your user profile so others here can mail you.
Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/30/2008 10:01 PM (GMT -6)   
Yeah,,,,,I thought it was rather quick myself! I second his opinion on the AUS. For those of us that suffer from the long term incontinance I would highly recomend the AUS. Anyone can feel free to contact me if they would like.

KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/31/2008 3:25 PM (GMT -6)   

I third his opinion on the AUS!

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices are working very good and surgeon was very pleased that I am very pleased.
 


Berb
Regular Member


Date Joined Mar 2007
Total Posts : 93
   Posted 10/31/2008 4:53 PM (GMT -6)   
And I'll fourth it.

Berb
59 when diagnosed, now 60 years old
Da Vinci surgery Jan 10, 2007, nerves spared, no cancer detected outside prostate
Pre surgery PSA 8, Gleeson 3+4=7, T1C, 3 out of 12 biopsies had cancer
Complication 1: urine favoured drain tube over catheter, extra time in hospital, catheter in for 2 weeks
Complication 2 - urinary tract infection - Citrobacter (hospital bug), 6 weeks antibiotics cleared up
Complication 3 - fungal growth on genitals (candida albicans) probably from antibiotics
Aug'07 Urodynamic study for continuing incontinence 8 pads per day; diagnosed bladder neck stenosis
Oct'07 CT scan indicated nothing abnormal; cystoscopy showed narrowing at anastimosis - dialated
Dec'07 averaging 9 pads a day, started acupuncture (no benefit after 10 treatments)
Jun'08 AUS fitted
Aug'08 AUS activated - highly effective
Post surgery PSA tests: all undetectable

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