Catheter removed!

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Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 10/30/2008 1:10 PM (GMT -7)   
 
thank you everyone for your comments on my previous post.  The doctor said the leak showing in the cysogram was so slight that he would remove the cath.  We left for Orlando yesterday morning around 6:30 a 3 hour drive.  When we arrived I met with Dr. Patel and he explained he would remove the catheter but wanted me to to stay in Orlando for at least 3 hours after to be sure I was able to urinate then he would then do a bladder scan to be sure my bladder was empty.  Well as soon as he took out the catheter a lot of blood and uriine came out with it and I was leaking pretty good had to change the pads three times in three hours but what a relief to have it out.  Last night I got up about every 1 1/2 hours needing to urinate and went everytime quite a bit, and had some slight leaking.  Today I am a lot drier but still going about every two hours and have some burning and some blood not sure if this is normal because the Cath was in for 12 days or maybe a bladder infection so waiting to hear from the doctor.  Not sure if I should be drinking a lot of water also had some coffee or not drinking.  I walked on the treadmill this morning for a mile and have started my Kegel excercises.  Doctor said to work up to 300 per day. 
 
I guess this is the next hurdle trying to get dry.
 
Jerry
Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive for Prostate Cancer 12% of sample, Second option of biopsy from Methodist Hospital Houston same DX
Gleason Score 4+4 =8
Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Tumor size 2.9 x0.8 x 0.8 cm
Location: single focus, left posterior peripheral zone (pt2a)
Post Gleason report  3+3= 6
Lymph nodes on both sides negative
Angiolymphatic invasion: Positive
Perineural invasion: Positive
Extraprostativ extension: Negative for periprostatic or seminal vesile invasion
Surical margins Negative 
Stage II (pt2a) 
Cath out on October 29th. 


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 10/30/2008 1:49 PM (GMT -7)   
Well I hope he meant 300 Kegals and not miles...Congrats on the cath removal, I know that is a very big relief. I would expect that the dribbles and leaks will be around for awhile with some days better than others. I really had to cut back on my coffee (dang it) otherwise I would leak all the time. I am hoping as the muscles get stronger I can have that extra cup of java in the morning.

Best of luck to you.
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1,2008
Gleason 7 (4+3) Staged pT2c NO MX
Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA Oct 08 <.05


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4813
   Posted 10/30/2008 1:52 PM (GMT -7)   
Good for you Jerry.
You should be on a normal diet and drink what you want...Just keep in mind that what goes in has to come out.
Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 10/31/2008 10:09 PM (GMT -7)   
Congratulations on the catheter removal. I, too, leaked badly right after the removal - and for the week afterwards. My leaking has subsided, a bit and I have no problems overnight. I love Diet Pepsi and try to drink the caffiene free stuff - but when I run-out (at the office) I drink the regular stuff and I think that's contributed to some leaking. I'm down to 5 pads a day from 10+ (I probably change them more often than I need to - but I'm more comfortable doing that and they're not expensive).

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0

 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 11/1/2008 5:51 AM (GMT -7)   
I had an x-ray of the bladder before the catheter was removed. the doctor wanted to make sure there was no leakage in the bladder. I kept it in for 14 days. I know you are happy to have it removed. I initially avoided coffee due to the fact that it makes me pee a lot. i drank lots of water and cranberry juice for about 2 weeks and then started back on the caffeine after I was more contitnent and in control. I stopped drinking at 6:00 p.m. because i was getting up about every 2 hours to pee. it eventually got better each day and i only get up once or not at all now.

As for your kegels, 300 seems a lot (at least it is better than 300 miles - lv-tx - you gave me my laugh for the day). I never did over 20 - 25 at a time. doctor said not to tire out the muscle.

any way, congratulations on the removal. You are on the road to recovery!
 
Age 48
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
surgery may 9, 2008 - houston, tx
pathology report -gleason 8
margins clear
4 week and 6 week PSA >.04 (undetectible)
12 week PSA <.04
continent at 10 weeks (no pads!)
kegel's twice a day 20 reps


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 11/1/2008 11:46 AM (GMT -7)   

 

Well third day since Cath removed and seem to be improving a little.  Last night I actually slept for 3 hours straight without having to get up.  Night before it was every hour.  Last night for the first time I had half a glass of red wine with dinner.  First time I got up to go the bathroom it was all red I almost died I thought it was blood but appartently it was the wine because next time it was clear anyone ever hear of this? I guess wine is not the best but after the last three months I thought maybe it would be ok.  During the day I am going about every 1.5 hours with some minor leaking which is a lot better then the first day when it just ran out of me when I stood or walked.  However I seem to leak more at night I guess it is the getting up and down so often and half asleep.  Other then that I feel good and the big thing is they think they got all the cancer the rest of this stuff I can deal with.

Jerry


Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive for Prostate Cancer 12% of sample, Second option of biopsy from Methodist Hospital Houston same DX
Gleason Score 4+4 =8
Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Tumor size 2.9 x0.8 x 0.8 cm
Location: single focus, left posterior peripheral zone (pt2a)
Post Gleason report  3+3= 6
Lymph nodes on both sides negative
Angiolymphatic invasion: Positive
Perineural invasion: Positive
Extraprostativ extension: Negative for periprostatic or seminal vesile invasion
Surical margins Negative 
Stage II (pt2a) 
Cath out on October 29th. 


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 11/1/2008 3:05 PM (GMT -7)   
I am an occasional red wine drinker and have never heard of it (or seen it!) affecting urine color. By the time anything gets into your urine it is well processed, having passed through your digestive system, bloodstream and kidneys.
 
Chances are what you saw was blood, but still nothing to worry about, especially only two weeks out from surgery.
Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week and 7-month PSAs: 0
Bimix injections working well 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 11/2/2008 10:38 PM (GMT -7)   
I suspect the drinking of the red wine and the redness in the urine are unrelated (I drink red wine and have not experienced the same thing as you 've seen, because of doing that).  I had some blood in my urine after my catheter was removed, and my Urologist and his Physicians' Assistant advised me that I'd see that from time to time as "old blood" dislodged and passed through me.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0

 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/2/2008 10:52 PM (GMT -7)   
Hi Jerry,
Mavica and Piano are right, the redness isn't wine. I am a wine drinker too, and I never had an issue with wine ~ Tony's opinion. But you are not an unusual case either. I had a little redness after the catheter came out, too. It cleared up in a few days, and yours should too. Keep a monitor on it, and if it sticks around tell your doctor.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 11/3/2008 6:56 AM (GMT -7)   
I too doubt the wine caused the discoloration of your urine, perhaps the alcohol, being an irritant, produced some minor bleeding, it only takes a very small (droplet) of blood to cause noticeable discoloration to the urine. You still have unhealed tissue where the urethra and bladder were reconnected, that is why any straining or over-exertion can cause transient bleeding, and the alcohol, even though it was a small amount, could have irritated this area. As long as it cleared, no problem. I had some small clots and occasional bleeding occur for 3 to 4 weeks following cath removal.
Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 11/4/2008 9:27 AM (GMT -7)   

 

Well talked to the doctor today and he said I probably have a urinary track infection and the frequent trips to the bathroom are bladder spasms so he called in two prescriptions said they will take about a day to begin to get relief.  The leaking now is a lot less and down to one pad at night because of leaking when I get up to go ever two hours and dry with slight leaking during the day.  It will be a week tomorrow that the catheter was removed so I guess I am doing ok.

Jerry

 

 


Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive for Prostate Cancer 12% of sample, Second option of biopsy from Methodist Hospital Houston same DX
Gleason Score 4+4 =8
Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Tumor size 2.9 x0.8 x 0.8 cm
Location: single focus, left posterior peripheral zone (pt2a)
Post Gleason report  3+3= 6
Lymph nodes on both sides negative
Angiolymphatic invasion: Positive
Perineural invasion: Positive
Extraprostativ extension: Negative for periprostatic or seminal vesile invasion
Surical margins Negative 
Stage II (pt2a) 
Cath out on October 29th. 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 11/4/2008 11:16 AM (GMT -7)   
I may have a urinary tract infection - 8 weeks (today) post-op. I was at the hospital early this a.m. to leave a urine sample for analysis. I've been seeing evidence of blood in my urine for the past four days. I've also had more leakage the past four days. When I spoke with my Physicians' Assistant last night and described the condition she suspected it was a urinary tract infection. Sounds as if you've got the incontenence issue on the way to being controlled - something I wish would happen with me. ;-)

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0

 


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 11/6/2008 9:40 AM (GMT -7)   
 
Hi All,
 
Well it has been over a week since the cathater was removed and now things seem to be getting worse instead of better.  I am still urinating about every 1 1/2 hours day and night not getting much sleep.  Burning is servere when stopping urinating not during last a couple of minutes, still also have some blood in urine. Call the doctor spoke with the nurse and she  said probably a UTI and sent out two prescriptions on Monday Ciprofloxacin for the infection and Phenazopyridine for the burnig.
Well after three days no better called again today and they said could not do anymore over the phone I am over three hours away.  They scheduled a Cat scan for Monday to see if I had a stone or blood clot and then will go from there.  I know that probably someone on this forum has had something similar and would appreciate any advice.  Not sure at this point if I should go to my local doctor or stay with the surgeon.
 
Jerry 
Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive for Prostate Cancer 12% of sample, Second option of biopsy from Methodist Hospital Houston same DX
Gleason Score 4+4 =8
Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Tumor size 2.9 x0.8 x 0.8 cm
Location: single focus, left posterior peripheral zone (pt2a)
Post Gleason report  3+3= 6
Lymph nodes on both sides negative
Angiolymphatic invasion: Positive
Perineural invasion: Positive
Extraprostativ extension: Negative for periprostatic or seminal vesile invasion
Surical margins Negative 
Stage II (pt2a) 
Cath out on October 29th. 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 11/7/2008 1:54 PM (GMT -7)   
Sorry to hear you continue to have problems.  My own situation - slight bleeding. some burning (in the penis) and increased leakage - is now entering the second week.  I've had a urine test/culture and it was negative for an infection.  The Physicians' Assistant was at a loss to explain what might be happening and asked me to wait to discuss the matter with my Urologist at the next appointment - December 24th.  That's a long wait, if the matter doesn't resolve itself - so I may be seeing my internist next week to review the matter and possible actions to take. I've stopped taking the MUSE medication with the Cialis - because there may be the possibility the MUSE has caused an irritation (or my application/insertion of it has) - and the Physicians' Assistant thought stopping that for now was a good idea. There are so many variables and we expect the doctors and nurses to have all of the answers all of the time - but my prior medical experiences have shown me that through trial and error and exploring one possibility after another - we sometimes figure these things out.  ;-)  Hang in there!


Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0

 


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 11/8/2008 8:07 AM (GMT -7)   

 

 Mavica,

Thanks for the response some of the burning is getting better and the blood is very light.  I am sleeping a little better getting up about every 2 - 3 hours.  Not sure if the medication is working or I am just starting to heal.  The leakage now is only when I laugh, sneeze, or cough which is a big improvement.  I still plan on going for the Cat Scan on Monday to be sure and if all is ok I think I will make an appointment with my local Urologist for follow-up.  Since my surgeon is now in Russia for a couple of weeks teaching the robtic surgery.  So I am out of luck with him.  Hope you are feeling better keep me posted. 

Jerry


Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive for Prostate Cancer 12% of sample, Second option of biopsy from Methodist Hospital Houston same DX
Gleason Score 4+4 =8
Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Tumor size 2.9 x0.8 x 0.8 cm
Location: single focus, left posterior peripheral zone (pt2a)
Post Gleason report  3+3= 6
Lymph nodes on both sides negative
Angiolymphatic invasion: Positive
Perineural invasion: Positive
Extraprostativ extension: Negative for periprostatic or seminal vesile invasion
Surical margins Negative 
Stage II (pt2a) 
Cath out on October 29th. 


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 11/8/2008 1:21 PM (GMT -7)   
Jerry1, good news on the improvement. I hope the CT is ok. Just remember, you just had MAJOR surgery, even though outside it doesn't look like it, you have undergone major work inside, take it easy. As to the stress incontinence, I have instinctively learned to "squeeze before I sneeze", or laugh, cough, etc. It really helps stop those little slip-ups, but that can be expected. One thing I have to pay particular attention to is letting my bladder overfill, which I have gotten better with. I just reach a point sometimes where I just can't hold it anymore, I have learned to see this coming and find a facility!! I do remember that after 2-3 mos, my bladder capacity returned to pre-op volume, I guess the swelling subsided along with my enlarged prostate being gone. Good Luck, and keep us posted.

Mavica, you are so right, the MD's and staff usually have little or no real world experience with this stuff, I find that this site is a much better place to get realistic advice from people who have been there, with a multitude of variables in place.

Remember there is nothing better than time and common sense involved in a recovery from aspects of this cancer and whatever treatment form we choose. This was difficult for me, as I am historically impatient, that too has changed, whether I liked it or not!!!

Good Luck to All,
Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 11/8/2008 3:46 PM (GMT -7)   

 

Thanks Lungman so very good advice.  I just have to realize that although I was he good shape prior to the operation I am 69 years old don't feel like it but I guess I will heal slower then you younger guys.  If all is well with the CT scan I will feel better my wife just keeps telling me it will take time and just relax and let my body heal.  I also agree the best advice is on this site I do not know what my wife and I would do without it.

 

Jerry 


Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive for Prostate Cancer 12% of sample, Second option of biopsy from Methodist Hospital Houston same DX
Gleason Score 4+4 =8
Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Tumor size 2.9 x0.8 x 0.8 cm
Location: single focus, left posterior peripheral zone (pt2a)
Post Gleason report  3+3= 6
Lymph nodes on both sides negative
Angiolymphatic invasion: Positive
Perineural invasion: Positive
Extraprostativ extension: Negative for periprostatic or seminal vesile invasion
Surical margins Negative 
Stage II (pt2a) 
Cath out on October 29th. 

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