DA ZEROOOOOO CLUB

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seekeroftruth
Regular Member


Date Joined May 2008
Total Posts : 36
   Posted 10/30/2008 3:45 PM (GMT -6)   
hi guys, test yesterday of the psa came back zero im happy to say. wow bad rap. any way im in the club. i have been dry since the day the cath came out i wish you guys having trouble the same thing. now i dont want to upset any body but this last week my 8th since surgery i have had 4 usable erections all came with 50mg of the little blue pill. Now i used 2 of them with my partner and 2 with my self. now the bad news WHAT WAS THAT i didnt know if i had a orgasm or not. leading up to it it felt good, not great but then the moment of truth, nothing im telling you i have nothing to complain about but if this is what its gunna feel like whats the point. spoke to dr he says with time with time. in fact the only things he does say are with time and im not concerned about it, im just trying to post some positive things to give my fellow club members hope. i know when i search the site or ask for help thats what im looking for comfort and hope


all the best

rick
new jersey
age 45 hi im rick
first ever psa 4.5
dre negative
biopsy june 08 1 0f 12 cores positive <5% score 3+3 =6
surgery 9-5-08 philly pa Dr Stephen Boorjian {great guy made me feel so comfortable }
Fox Chase Cancer CTR
home 9-6-08
first 7 days very painfull bladder spasams very tough getting up or down
9-12-08 final path report
still 3+3 6
total confined to prostate
margins negative
seminal vecials negative
lymp nodes negative


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4839
   Posted 10/30/2008 3:49 PM (GMT -6)   
Welcome to the ZERO Club.
Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 10/30/2008 3:52 PM (GMT -6)   
Welcome to the ZERO club, it is a good place to be. The intensity of your orgasms will improve, at first I barely noticed a fleeting sensation, but as your doc said, everything with time. I have noticed a definite improvement, esp since the 1 year mark, at least you have something to use !! Good Luck

Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 10/30/2008 3:59 PM (GMT -6)   
Congrats Rick on being in the big ZERO club...yeah wish I was in your shoes concerning the incontinence. It is still a problem but I am very early in the game being only 5 weeks post op. Funny though..ED isn't a problem for me (no meds at all, ever)....go figure. Usually it is the other way around.
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1,2008
Gleason 7 (4+3) Staged pT2c NO MX
Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA Oct 08 <.05


seekeroftruth
Regular Member


Date Joined May 2008
Total Posts : 36
   Posted 10/30/2008 4:02 PM (GMT -6)   
hi randy,

your right no complaints. you described it so much better then me FLEETING SENSATION is spot on




rick
new jersey
age 45 hi im rick
first ever psa 4.5
dre negative
biopsy june 08 1 0f 12 cores positive <5% score 3+3 =6
surgery 9-5-08 philly pa Dr Stephen Boorjian {great guy made me feel so comfortable }
Fox Chase Cancer CTR
home 9-6-08
first 7 days very painful bladder spasms very tough getting up or down
9-12-08 final path report
still 3+3 6
total confined to prostate
margins negative
seminal vesicles negative
lymph nodes negative
dry from day one not one leak
usable erections week 8 with 50mg Viagra although the orgasms are nothing to write home about

1st psa 10-29-08 at 8 weeks post op <0.1 undetectable


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 10/30/2008 4:19 PM (GMT -6)   
Well done with the PSA result. Sure makes you feel somewhat better doesn't it? The old saying "patience is a virtue" comes into play now. You are well on the road to a great recovery.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 10/30/2008 7:04 PM (GMT -6)   

 

..welcome to the club of zero's! It is a good feeling.......and as Randy said the intensity will improve....mine to the point of being better than pre-surg and I've never had a bad one! You're on your way....enjoy and congrats!


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
        9.15.08 pad free at night, one thin (light) pad during the daytime
        hours. Just because I'm chicken..!
         9.18.08 1st post-0p-PSA-Undetectable...Zero's!  Yes!
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 10/31/2008 6:43 AM (GMT -6)   
Great News!! Welcome to the Zero Club!!!! LIVESTRONG!!!!
Age Dx 37, 7/2008
First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008
Biopsy : 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008
Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008
PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
First PostOp PSA 9/2008: <0.01
2nd PSA 12/2008: Praying for <0.01
 


hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 10/31/2008 11:33 AM (GMT -6)   
Congrats... Zeros for one and all!!

Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 12 core 4 Positive 15%,15%,8%,3%
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Pathology report stage T2c organ confined with positive apical margin Gleason 3+3 = 6 (with tertiary grade 4)
Catheter removed 8/26 - reinserted 8/29 - removed 9/2
No continence or potency problems from the get-go.
First post op PSA 10/2/08 < 0.05


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/31/2008 7:12 PM (GMT -6)   
Rick...Give yourself some time, man. You will do it again fine. You are young and the cells come back...Don"t worry, and just rest awhile...Don't even try to do anything . Just rest..... Remember that...Just rest awhile.......It will all come back....Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 10/31/2008 8:53 PM (GMT -6)   

Wow.  Nothing like a good zero.  Hope you have many more

 

Mika


age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
first year PSA less than zero
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/31/2008 10:44 PM (GMT -6)   
Great on the oooo's. YES....count your blessings on the incontinance. ED I am doing good enough in that department. The O's are as good or better than before.
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2332
   Posted 10/31/2008 11:49 PM (GMT -6)   
Woohoo, Rick!!
PSA quadrupled in 1 yr (0.6 to 2.5)  
DRE neg  1 of 12 biopsies pos (< 5%) 
Open surgery June 06 at age 57
Organ confined to one small area Gleason 5   
PSA's undetectable  < 0.1  


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/1/2008 12:02 AM (GMT -6)   
Hi Rick,
Time is on your side. First the good news needs to soak in. I am very pleased to login in tonight and see so many zeroes. No spooks on Halloween and I have no problem with it.

Great job, Rick!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 

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