Meeting in the Cause!

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/2/2008 8:22 PM (GMT -6)   
I met Livinadream ~ Dale this weekend in Miami and what a great guy.  I have met quite a few of you in person, and it has been a blessing everytime.  No different with Dale as he is a true gentleman.  As many of you know I started using free time to work in prostate cancer advocacy and part of that requires that I be involved in projects like the one we were on.  In addition to Dale and I meeting, we also met Angela Jenkins and Dr. Arnon Krongrad at his office.  They are, along with Mike Scott co-founders of Prostate Cancer International, the parent of The "New" Prostate Cancer InforLink.  Our project is being part of a committee to raise funds, awareness, and whatever we can for the success of that effort.  Success is bridging the communications gap between doctors and patients, between different advocacy groups, and bringing awareness that prostate cancer is a global issue not just a US issue.  I found all these folks to now be good friends.  Friends I would never have met without having first been diagnosed.  I guess you can call it the silver lining.  This makes it twice I have crossed the country to do things that were made possible by HealingWell.  I don't come here it's likely none of this happens.  Keep the posts, Emails, phone calls coming.  I love them all.  When I watch you all help each other, my spirits are lifted.  You are all wonderful people.  I would pass no opportunity to meet any of you!
 
Tony
 
 
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 11/2/2008 9:58 PM (GMT -6)   
Tony,
 
Let me know if you ever make it to Detroit.  I'd love to meet you..  we can go watch the Lions loose.

Roger
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
08/2007: Bone Scan found something on my skull. PCa surgery on hold
             Had piece of skull removed to test for PCa.
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
             Both nerve bundles spared
             Pathology Report: Tumour confined w/in prostate
             T2c, Gleason is 3+3=6
             Went home with JP drain
10/2007: Made return trip to hospital.  All urine was coming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003.  Started Viagra for ED, no response yet.
             Having some issue with Vertigo from skull operation.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :) ED: next to no response.
             Vertigo is subsiding.
04/2008: 3nd PSA <.003 :) ED: Changed the Viagra prescription.
07/2008: 4nd PSA <.003 :) ED: Still NADA.  Changing to Cialis.
             Dizzy spells are occurring more often
09/2008: Trying Levitra 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/2/2008 11:37 PM (GMT -6)   
Thank you Roger, it would be great to hit every city and meet everybody, so I will just say, that I will circle the dates should they come up, and announce them here. Right now it looks like I will be in Chicago in late April for the American Urological Association conference, not because of the conference but for my job. But I will arrange to take a few extra days on that trip for two reasons, the AUA meeting, and I was born there and have family in the region...LOL and it's not winter.

I have a video link on Arnon ~ TV appearance with Pat Robertson!

Another link ~ A Pitch to the Ladies!

Tony

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 11/3/2008 7:45 PM (GMT -6)   
I concur with Tony, it was a pleasure to make the trip to Miami and share ideas and thoughts with Angela and the wonderful Dr Krongrad. I look forward to bringing prostate cancer front and center in america. This disease deserves attention and it deserves good useful information for early detection and with through the efforts of people like Angela, Tony and Dr Krongrad it will happen. God blesses us Saturday in more ways than I have space to list.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 11/5/2008 7:48 AM (GMT -6)   
Thanks Tony, We watched the interview with Dr Krongrad. Thanks very much. Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK

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