Welcome Greatpersian ~ G'day mate!

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Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 11/3/2008 12:48 AM (GMT -6)   
Greatpersian said...
Another Hi from Downunder!
I had my prostate removed about 9 weeks ago, had catheter removed 9 days after and since then have been improving my leakage problem, following some Pelvic floor muscle exercises that my physiotherapist gave me, also started doing some stretches in the morning before breakfast. My doctor gave me a prescription for 100mg Viagra, to take half a tablet twice wekly, so far I have only used 4 tablets. My incontinence has improved greatly starting from 8 pads a day to less than one a day. My doctor used Davinci robotic assisted surgery and spared the nerves. So far I am getting 50 percent penis extension when somewhat stimulated and that is about it, considering I am only 48 years old, I am hoping I will fully recover withing the next few months, but what worries me and I feel somewhat impatient is lack of full erection; still logic tells me based on my recovery after 9 weeks that I will achieve that too, so it is only a matter time and got to have patience. Easier said that done, but do I have much choice? I guess not. blush
Welcome to the best site on the web I have found for prostate cancer support.  And it;s great to add yet another Aussie.  We have many here.  I have been told that it is my perspective that is off kilter, but I still think I am right and I apologize that you have to live your life upside down.  turn   LOL  I wish I could tip these icons upside down so that you guys can better understand me....
I do fully understand you however.  I am just 46 and I am impotent.   After two years of surgery, radiation, and hormone therapy, there isn't much hope until I stop all treatments.  Luckily there is light at the end of the tunnel, even for me.  We have seen some signs of life down there, and once the hormone therapy is stopped next spring, I remain very hopeful.
Again, welcome!  And stay with us.  Lot's of listeners here...If yo get a chance add a signature with your information ~ like mine below...

Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
You can visit my Journey at:

Veteran Member

Date Joined Feb 2008
Total Posts : 1858
   Posted 11/3/2008 3:29 AM (GMT -6)   
Welcome to you Greatpersian. You have come to the best site on the web for information regarding prostate cancer. The patient to patient information and wisdom here is without par. If it's not to personal where in Oz did you have your op and who was the surgeon. I had robotic in Sydney myself and know it's not all that common here yet.
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)

Veteran Member

Date Joined Jun 2007
Total Posts : 789
   Posted 11/3/2008 8:20 PM (GMT -6)   

G'day and welcome to another member from Oz, where abouts are you? As Tony said if you get a chance post a signature.

Regards Mal.

age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7  right side tumour adenocarcinoma stage T2a
RP on 30th July,
Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck, free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.
Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)

Veteran Member

Date Joined Nov 2006
Total Posts : 883
   Posted 11/3/2008 11:06 PM (GMT -6)   
  Hey Great,  Take your time and let your body heal.  You had major surgery and it will take time for things to start working right agian.  Wish you the best in your recovery.
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey

Veteran Member

Date Joined Jan 2007
Total Posts : 762
   Posted 11/7/2008 2:02 AM (GMT -6)   
Hello there,
We are also living upside down (according to TC!!) too,  but just to let you know that it took quite a while for my husband's  ED recovery, and for us it was exactly 18 months to full recovery. Did not think it would happen naturally, but it did over time. We had many stressful moments in the 18 months however with time (as many others more experienced had advised), there was a return of recovery following nerve sparing. So don't give up or loose hope within 2 years, as this is how long it can take for some people, and it can be very slow as nerves recover from the trauma of surgery. Welcome to the forum. I post on behalf of my husband who is about your age, and we both welcome you here too along with our other upside down, and right side up friends around the world. cheers turn
Husband 50 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable PSA since Surgery (< 0.1) specifically,  
June 2007: 0.01; Oct 2007: 0.02; April 2008: 0.02: October 2008: 0.03.

Veteran Member

Date Joined Apr 2008
Total Posts : 1382
   Posted 11/7/2008 6:16 AM (GMT -6)   
welcome to the club greatpersian, we are selective as to who we let in, but unfortunately you qualify. Do take your time healing, and please do not expect to much from your body to soon.
Please hang around and join in the conversation. I look forward to seeing you around the club.

peace and love
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores

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