still dealing with pain 7 weeks after surgery

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kreplerfp
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 11/3/2008 5:00 PM (GMT -7)   
 
 It is 7 weeks after my surgery and I am still dealing with alot of pain when standing and sitting. I have been treated with cypro for a bladder infection twice,(and some constipation) so I don`t know if thats the problem. A couple guys told me they experienced rectal and scrotum pain for a longer period after ther surgery if you have any nerves removed when you have surgery. Does anyone have the same problem and is 7 weeks still to early to be rid of the pain and discomfort.  Also does anyone have anything that you can use to soothe this area. ie bath salts or rubs
  I have an appointment Nov 12 with my DR. to go over my first PSA since the surgery. So I will have some questions for him as well
Diagnosed Feb 08
 
PSA 6.3
gleason 3+3
T2C
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
possible radiation depending on first  PSA  Nov 12
kept left side bundle of nerves but lost some of the right side bundle


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4813
   Posted 11/4/2008 4:37 AM (GMT -7)   

On a scale of 1 to 10, how would you rate your pain and discomfort?

"Some" discomfort is normal. How long has your catheter been out?

 


Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


kreplerfp
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 11/4/2008 4:47 AM (GMT -7)   

 

 My catheter was taken out the first time 2 and a half weeks ago. But a week ago I have to go into the emerg as I was in pain and not able to pass urine or have a bowell movement, (they gave me an enema) some due to a blatter infection, so the catheter was put in for another 5 days. The pain level can be as high as an 8, if I do any standing or sitting to long. Normally its about a 5 all the time. Tylenol will help a little with the pain


Diagnosed Feb 08
 
PSA 6.3
gleason 3+3
T2C
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
possible radiation depending on first  PSA  Nov 12
kept left side bundle of nerves but lost some of the right side bundle


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4813
   Posted 11/4/2008 5:31 AM (GMT -7)   
Sounds like something isn't right and you're in more pain then you should be. Try and move the Nov 12th appointment up.

Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 11/4/2008 8:23 AM (GMT -7)   

What type of surgery? open? Robotic?

I too was in pain after my catheter was taken out and it had to be put in again but much earlier. I don't think you should be in pain at this time. I would encourage you to move up your appt and have things checked out.

 


Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 12 core 4 Positive 15%,15%,8%,3%
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Pathology report stage T2c organ confined with positive apical margin Gleason 3+3 = 6 (with tertiary grade 4)
Catheter removed 8/26 - reinserted 8/29 - removed 9/2
No continence or potency problems from the get-go.
First post op PSA 10/2/08 < 0.05


kreplerfp
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 11/4/2008 10:10 AM (GMT -7)   

my surgery was RP

 The earliest appointment I can get is nov 12 unless a cancelation


Diagnosed Feb 08
 
PSA 6.3
gleason 3+3
T2C
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
possible radiation depending on first  PSA  Nov 12
kept left side bundle of nerves but lost some of the right side bundle


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 11/4/2008 11:13 AM (GMT -7)   
Today marks eight-weeks since I had my prostate removed.  Any pain/discomfort I experienced ended when the catheter was removed - 12-days after surgery.  I sit on a chair for 8 hours a day/5 days a week at work, and a few more hours daily at home - and am experiencing no pain or discomfort.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0

 


kreplerfp
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 11/4/2008 2:51 PM (GMT -7)   

 

I guess you are very fortunate and healed quickly as I am not so fortunate. Are you able to have intercourse or get an erection or orgasm


Diagnosed Feb 08
 
PSA 6.3
gleason 3+3
T2C
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
possible radiation depending on first  PSA  Nov 12
kept left side bundle of nerves but lost some of the right side bundle


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 11/4/2008 8:19 PM (GMT -7)   
i had perenial discomfort till about week 8 i wouldnt describe it as pain though,just dis comfortcouldnt get back on my harley till about 9 weeks the perrenial was the last of th discomfort,,,,,,,dirt

Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 11/4/2008 11:27 PM (GMT -7)   
Erection?  Not yet.  Orgasm?  Yes.  Intercourse - haven't tried.  Sex and ED hasn't been a primary concern of mine. When you read through the discussions you see that few of us share similar experiences - particularly so when it comes to after-effects of the varous forms of treatment.  I believe I'm much more healthy, now - since the cancer was removed . . . and I have my fingers crossed that I remain that way.  Best wishes for better results.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0

 

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