Thank you and Good Luck

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hopemylove
Regular Member


Date Joined Apr 2008
Total Posts : 65
   Posted 11/4/2008 6:41 PM (GMT -7)   
I have not posted much lately, but I have been checking in to follow all the old and new zeros. It is wonderful to read so many positive stories.
This week-end my husband Larry ended his battle and passed on to a better place. He was home with his children and I and we all held him as he left this world and its struggles and moved on. It was one of the most difficult and rewarding experiences I have ever had.
I would like to thank all of you who have helped me during Larry's journey and I will continue to pray (or keep good thoughts) for each of you.
May the zeros win and your lives be filled with love and hope.
Love,
Karen cry
Karen--New York
Husbands Info:
Age of diagnosis--62
2/28/08--PSA 279   DRE--positive/rock hard
Flomax and Casadex started
Biopsy--3/7/08--187cc--Gleason 10--12 of 12 positive--Perineural and LV invasion identified
T4 bone met.--hydroureteronephrosis/right kidney
3/28/08--Lupron Inj. started
4/7/08--Zometa IV started
5/15/08--PSA 12
5/20/08--Tubes placed in kidneys (through back)
5/21/08--diagnosed Neuro Endocrine Prostate carcinoma
5/28-30/08--1st round Chemo
6/18-20/08--2nd round Chemo
7/2/08--blood clot--Coumadin started
7/10/08--Stop chemo--cancer not responding
7/20-24--hospitalized for some type of seizure
7/24--New chemo given-no response
8/20/08--Start Hospice
 
 
 


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3196
   Posted 11/4/2008 6:44 PM (GMT -7)   
May God bless you and your family. I feel as though I speak for us all when I say we are sorry for your loss.

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2268
   Posted 11/4/2008 6:47 PM (GMT -7)   

Karen--I am saddened to read the news about Larry's death.  He was well-loved to the end by his beloved spouse and family.

May wonderful memories of Larry continue to bring you joy.  May God comfort you and sustain you in your grief.  You and your family are in my prayers....Tim

 

 


Post Edited (TimG) : 11/4/2008 10:35:53 PM (GMT-7)


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 11/4/2008 7:06 PM (GMT -7)   
Karen-
Thank you for keeping us close in Larry's journey and his passing. I am so sorry for your loss and will keep you and your family close in prayer. Larry's passing really hits home at HW. We really are a family of fighters, and losing one life, is one too many. I hope your days are filled with strength and peace. You will ALWAYS be a part of our community here and I hope you stop in whenever you need a friend. We will be here to listen.

Chayna
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/4/2008 7:13 PM (GMT -7)   

Dear Karen,

I am dreadfully sorry to hear of your dear husband's death.  Your heart must be broken, but with your courage and love and family, I expect that you will survive and do well.  I agree with Chayna that losing one life is one too many.  My very best to you and yours.

My Best to You,

Bill


August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 11/4/2008 8:14 PM (GMT -7)   
I too am saddened to hear of your loss. But, he will always live in the hearts of you and his children. What greater gift can a man receive than the love of his family. My sincere condolences.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 11/4/2008 8:20 PM (GMT -7)   
Hi Karen,
 
I just wish to add my name of the list of people that are so sorry for the passing of your beloved husband. Please accept my most heart felt condolences. Non of us know what lies ahead for us, but we all continue to live in hope. You sound like a strong person with a loving family and will take some comfort in the fact the Larry is now in a better place without suffering or pain.
All the best to you and your family.
 
Magaboo

Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08
Next step: Salvage RT


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 11/4/2008 8:39 PM (GMT -7)   
Karen

I am so sorry to hear of the loss of your husband Larry, because we learn so much about those that come and share on this site we feel as we have lost one of our own HW family. May you know that we are here for you, cherrish the memories and know you and your family are in our thoughts.

Norskie
norskie
Current age 50, Age at Dx-48 PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3
March 27th PSA .422 Begin Salvage Radiation April, 14 2008
Radiation Complete June 4, 2008 36 treatments
August 5, 2008 PSA .09 or < .1 again
October 9, 2008 PSA <.06 or as low as my clinic can read.
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/4/2008 8:54 PM (GMT -7)   
Karen,

Our thoughts and prayers remain with you and your family.

God Bless,

Paul and Vickie P.
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 11/4/2008 10:54 PM (GMT -7)   
Dear Karen,

Sorry about Larry's passing. He is done with the pain and truly in a better place. You courage and love have come through to us in each of your posts. You have lighted a pathway for those that will follow and an inspiration to us all.

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Started chemo in September 08
"Patience is essential, attitude is everything."


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 11/4/2008 10:59 PM (GMT -7)   
Dear Karen,

I would like to offer my sincerest sympathy and condolences to you and your family on the loss of your husband, Larry. May you all find peace and comfort in the days ahead.

Sincerely,
Don
Diagnosed 04/10/08
Age 58
PSA 21.5 (first and only test resulted from follow up visit to emergency room for kidney stone. first time for kidney stone too)
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear
Chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
PSA test on July 14, 08 after 8 weeks hormone .82
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
Second Lupron shot 09/11/08
Next PSA test by oncologist 03/09
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 11/5/2008 7:16 AM (GMT -7)   
Karen,

My heart and emotions go out to you and your family with the passing of Larry. I am thankful that his suffering and battle has ended, and he is now in the next world in peace. May God strengthen and protect you, and heal your broken heart. PC is such an evil blight in men, striking when and how it will, I appreciate his courageous fight. Bless you all.

David in SC
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 7-2008 12.3
PSA 9-2008 14.9
Biopsy 2007 Negative
Biopsy 8-2008 Neg, some PIN, 4 "Suspicious Areas"
Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
Periunual Invasion noted
Additonal PIN noted
 
Open RP surgery scheduled for Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/5/2008 7:36 AM (GMT -7)   
Karen . . .add Bob's and my condolences in the loss of Larry. Knowing that he is in a better, pain free place will comfort you after his pain of the last months. He was lucky to have his family at his side.

Bob & Linda
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May 2008.  WHOOO HOOOO! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 11/5/2008 7:37 AM (GMT -7)   
May God bless you and your family. We are sorry for your loss.
James C.
Co-Moderator- Prostate Cancer Forum
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- begin 50mg Viagra and Vacurect pump nightly, Fully continent
1/14/08 Caverject started/stopped, aching. 2/24/08 .5ml Bimix started-success
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-0, 6 mts.-0, 9 mts.-0.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/5/2008 8:13 AM (GMT -7)   
I am deeply saddened by your loss, Karen. You are a wonderful lady and I am certain you will surround yourself with love and I pray for peace for you and your family.

May God bless you and hold you in His hands.

Tony


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 11/5/2008 9:31 AM (GMT -7)   
 
My wife and I both want to offer our deepest sympathy on the lose of your husband.
 
Jerry & MJ 
Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive for Prostate Cancer 12% of sample, Second option of biopsy from Methodist Hospital Houston same DX
Gleason Score 4+4 =8
Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Tumor size 2.9 x0.8 x 0.8 cm
Location: single focus, left posterior peripheral zone (pt2a)
Post Gleason report  3+3= 6
Lymph nodes on both sides negative
Angiolymphatic invasion: Positive
Perineural invasion: Positive
Extraprostativ extension: Negative for periprostatic or seminal vesile invasion
Surical margins Negative 
Stage II (pt2a) 
Cath out on October 29th. 


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 11/5/2008 11:10 AM (GMT -7)   

Karen,

I am so sorry to hear of Larry's passing. You two have been in my thoughts and prayers since I read your first post. It amazes me how this forum connects us, and how powerful the emotions are when we get news such as yours. I shed some tears for you and Larry. Keep us informed on how you are doing. We care about you.

Bless you,

Bill in San Diego


Age 59 at diagnosis (Now 60)
PSA 4.4
05/15/2008 – Biopsy
Gleason 3+3=6
Most cores positive 40% or more, some 100%
Bone scan and pelvic/abdomen CT show no visible metastasis
06/15/2008 – Began two months Casodex 50 mg
07/01/2008 – Trelstar shot (3 month dose)
09/15/2008 – Retropubic Radical Prostatectomy
Pathology: Staging pT2c pN0 MX
Gleason post op: 3+4=7
No discrete tumor mass
Bilateral involvement
No capsular penetration (carcinoma extends into but not through capsule bilaterally)
Perineural tumor invasion (PNI): present
Perineural margin: Free of carcinoma
Bladder neck: Free of carcinoma
Distal (Urethral) Margin: Carcinoma present
Seminal Vesical: None present
Lymph Nodes: 18 nodes free of metastatic carcinoma
10/13/2008 - PSA <0.1 - disclaimer: I had HT, so...
12/01/08 - Begin 35 treatments EBRT (adjuvant radiation because of concern for positive distal margin and PNI)
 
 
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 11/5/2008 4:32 PM (GMT -7)   
Karen-

My deepest condolences.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.
9/2008 Interim bone and CT scans show progress vs. scans done before beginning trial. I'm cautiously optimistic. Next scans 10/30/08.


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 11/5/2008 4:47 PM (GMT -7)   
Karen, words cannot express how feel in hearing this news. I can assure you that Larry's life made an impact on many and he certainly made a difference in this difficult world in which we live, that is evident by the amount of love you and the family showed for him. Please know all of us here at HW will be thinking about you and praying for you as you embark a new journey in life. May God grant you peace in the days ahead.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 11/5/2008 5:55 PM (GMT -7)   
Karen, I am so sorry for your loss.

Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
first year PSA less than zero
 


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 11/5/2008 8:48 PM (GMT -7)   
God bless your family and may he give you strength,we are so sorry for your loss and we hope your family will find some hope in all this ..........dirt

Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 11/5/2008 9:33 PM (GMT -7)   

Karen,

I wish to express my sincere condolences with the lost of your husband and friend.

 

God Bless you and your family

 

Frank


Diagnosed 01-08-08 @ 53 years old 
DRE normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
PSA @ surgery 6 
Bone and Ct scans negative
clinicaly Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,Hospital stay 30 hours - Catheter out in 7 days  normaly expected leakage Erectile function better with Viagra
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate, Seminal vessels clear, fat tissue clear,Tumor on top of prostate. 1 positve margin measureing less than .5 ml at urethra and bladder..
Six week PSA < 0.1 , 4 month PSA <.05 Gen II test.  Urologist recomends to hold off on Radiation and watch PSA closely. Oncologist and Radiation Oncologist seem to lean to doing pre-emptive radiation.Uroligist says 50/50 chance of PSA re-occurence.  
I have decided to hold off and see for 3 months.
Next PSA October...
Six Month PSA 0.010,  undetectable per Urologist
Next PSA Six months or at one year (March)
 
 
 
 


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/6/2008 5:39 AM (GMT -7)   
Karen, my heart is heavy as I think about what you and your family has been through this year. I can hear your sadness but also your positive attitude shines through, too. Thank you for sharing Larry with us and may your memories bring you warmth and comfort until you are together again. God bless you all....kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!
3/08 - 18 mo PSA <0.1
switched to Levitra - works much better than Viagra & Cialis - fewer side affects
summer of 2008 - have had a few erections with no drugs! yeah!!
8/08 - 2 yr PSA <0.1


VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 11/6/2008 6:07 PM (GMT -7)   

We are so sorry for your loss and wish peace to you and your family.

Cindy and Kent


Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
July 08 (3mths post op) Cialis 10 mg every other day. Right now, things are not looking so good in that department. 
Aug 08 PSA 0.04 Yay Again!!


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 11/7/2008 12:05 AM (GMT -7)   
Dear Karen,

Thank you for your message and postings. We are sad to hear about your loss and will keep your children and yourself in our prayers. God bless you and keep you all safe.
Creed_three
 
Husband 50 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable PSA since Surgery (< 0.1) specifically,  
June 2007: 0.01; Oct 2007: 0.02; April 2008: 0.02: October 2008: 0.03.
 

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