One year update since open RRP surgery

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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 11/8/2008 10:17 AM (GMT -6)   
It's been 13 months now since my surgery and I just this week got my 1 year PSA results- .02 (if you can believe that). The other tests til now has been .04. Anyway, it's statistically undetectable.

Continence has not been an issue since 3 days after catheter removal. Even that ugly purple red scar has faded into something more normal in color and appearance. ED recovery is still a complete failure. I've been on a regular course of daily pump use, daily 50mg of Viagra with 2000mg l-Arginine, and twice weekly bimix or trimix injections. Results? Zero.... cry wink

I find that I don't worry about the future, as far as having cancer is concerned, it's been a long enough period of recovery that the whole ordeal is sliding back into my foggy memory. Until it recurs I am considering myself cured, and won't dwell on it's possible future actions. I am thankful that I have my health, my life and an almost back-to-normal body again. The ED is frustrating and will continue to get aggressive treatment. I admit I am disappointed that I have had absolutely no response after a year, after nerve-sparing surgery, but that's the hand life dealt, so I play it. I'll continue working on it though.

In summary, I guess you could say I am content with the results after a year. Zero's and normal recovery of the other things makes for good nights sleep now, especially since I don't have to have that sleep disturbed by sleeping on the occasional rock......

devil tongue smilewinkgrin
James C.
Co-Moderator- Prostate Cancer Forum
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 11/8/2008 11:21 AM (GMT -6)   
Hey James,

Good for you! We have to inventory the good things left in our lives once in a while. Treatment and recovery from cancer is a long and tedious ordeal that, to be successful, requires patience and a positive attitude. Anything we can do to promote these essential ingredients is time well spent and concentrating on the good times certainly helps.

Here on the HW Prostate Cancer forum this message comes through loud and clear. Working together and supporting each other, we can all get well together...

Jim


Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Finished 4 cycles of chemo on 11/7/08.
First CT scan on 12/2/08.
"Patience is essential, attitude is everything."


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/8/2008 3:36 PM (GMT -6)   
James C,
Thank you for the post, the great attitude is contageous. Moving forward with a good attitude is essential to good healing. May your "anniversaries" last a lifetime!

Thank you do much for all you do here!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 11/8/2008 4:39 PM (GMT -6)   
Good on you James and congratulations on the continuing zeros. Let's hope time and healing overcome the ED issues. yeah I've got to say I admire your attitude.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 11/8/2008 5:34 PM (GMT -6)   
James, congratulations on the 1 yr PSA, I couldn't be happier for you. You are always there for new and old alike, not age mind you, but those of us with pc. It is people like yourself that make this board what it is. I hope you continue on your road to complete recovery including improvement with the ED. I am 14 mos out and still have issues in that respect, but I take one day at a time, and I believe that despite our individual maladies, we are all better people because of our illness. I know I am, and I attribute a lot of that to the peace I find here, my loving wife and family, and a renewed appreciation for lots of things I had taken for granted. Thank You for all you do for the board in your capacity as moderator and contributor.

Randy
46 you when diagnosed, now 47
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Cialis 5 mg every night.
Success with BiMix


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 11/8/2008 7:09 PM (GMT -6)   
Cheers!! Thank you for the inspiration you provide, the friendship and the peace making. Congrats on your PSA and may your life be filled with undetectables! Thanks for being you and all you do!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 11/8/2008 7:24 PM (GMT -6)   
Congratulations! I am six months behind you and hope I maintain your great attitude! Keep up the good work.
 
Age 48
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
decision - surgery (robotic)
surgery may 9, 2008 - houston, tx
pathology report -gleason 8
margins clear
4 week and 6 week PSA >.04 (undetectible)
12 week PSA <.04
continent at 10 weeks (no pads!)
kegel's twice a day 20 reps


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 11/8/2008 8:10 PM (GMT -6)   
good for you  brother you deserve this the zeros i mean everything else willl work itself out  congrats

Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 11/9/2008 12:09 AM (GMT -6)   

James,

Congrats to you.  you are double my time and definetly in my role model club.  I only hope to emulate you in my next 6 months. 

Frank

 


Diagnosed @ 53 years old now54
DRE normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
PSA @ surgery 6 
Bone and Ct scans negative
clinicaly Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,Hospital stay 30 hours -
Catheter out in 7 days 
normaly expected leakage
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate
Seminal vessels clear, fat tissue clear
single positve margin measureing less than 1/2mm 
Six week PSA < 0.1 , 4 month PSA <.05 Gen II test. 6 month PSA  <0.01
Urologist recomends to hold off on Radiation and watch PSA closely. Oncologist and Radiation Oncologist seem to lean to doing pre-emptive radiation.Uroligist says 50/50 chance of PSA re-occurence.  
I have decided to hold off and see in 3 months lets see in 9 months.
Next PSA January 2009.
11-08-08 (7months) starting to go without day pads, 100 mg Viagra seeing good results
 
 
 
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 11/9/2008 7:44 PM (GMT -6)   
Wonderful James, and thanks for being here for all of us! You are a strong guy..... Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK


KrisP
Regular Member


Date Joined Mar 2008
Total Posts : 162
   Posted 11/9/2008 7:57 PM (GMT -6)   
Great news James!! Hope you continue to get undetectable PSA result and hopefully you can recover from the ED stuff also
Good Luck
Kris
Age: 54
Occupation: Mechanical Engineer
Home: Dallas/Fort Worth Area
Biopsy: 3/5/2008; Pre surgery: Gleason 6 (3+3), involving left lobe
Clinical stage: t2b. DaVinci Surgery on 4/21/2008 in Austin by Dr Randy Fagin.
Pathologist report upgraded to a Gleason 7 (3+4); Clinical stage upgraded also to a T3a; Margins: Clear
First post surgery PSA = < 0.04 (Undetectable)
Second PSA (10/27/08) = < 0.1 Undetectable


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2331
   Posted 11/9/2008 8:16 PM (GMT -6)   
Congrats on your excellent one-year PSA, James!  And thanks for all you do for the forum as moderator...Tim
PSA quadrupled in 1 yr (0.6 to 2.5)  
DRE neg  1 of 12 biopsies pos (< 5%) 
Open surgery June 06 at age 57
Organ confined to one small area Gleason 5   
PSA's undetectable  < 0.1  


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 11/9/2008 8:59 PM (GMT -6)   

Great to hear things are going well.

KW


    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     

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