AUS operation on Wednesday Noember 11,2008

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jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 11/8/2008 8:40 PM (GMT -6)   
Hi All
I have not posted recently because there was no change in my health.
I am , for the third time having an AUS implanted, because the first two failed.  I am having the operation at Mayo Clinic in Rochester, Mn by Dr  Dan Elliott.  He is very experienced and so I am hoping it will work this time.  My story is about two pages long and i did not want to bore you with it.  I would ask for your prayers for success because this is the last time I am going to have it done.  I feel great except for the leakage as many of you know what that is.  Will write again in about a week.  Thanks for your help and prayers.
Blessings
Jerryv

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 11/8/2008 10:34 PM (GMT -6)   
I'll make a note fo the date and be sending thoughts to you and prayers above, hoping for a great successful outcome for you.
James C.
Co-Moderator- Prostate Cancer Forum
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 11/9/2008 8:38 AM (GMT -6)   
Jerry, much good luck and thoughts and prayers to you. I can understand your frustration. I think Peter will have to have his AUS redone. It is not working as well as he thought it would..It is leaking quite a bit....So we will be following in your path....Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 11/9/2008 9:12 PM (GMT -6)   
JerryV, I really hope the third time is the charm for you. Dr. Elliott was on my short list of Doctors for my AUS but I decided to stay close to home and just drive 3 hours to Dallas for mine. I do not know about your first two Doctors but I feel that experience is really important in installing these devices. I am also wondering were your first two deviceses the AMS 800? I know there is one or maybe two other companies that make a AUS deivce. The few of us that suffered long term incontance really know where you are comming from and where you are trying to get too.
I wish you the very best,
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 11/9/2008 10:49 PM (GMT -6)   
Jerryv
... Yes, will be lifting you in prayer.  You certainly deserve the very best outcome and I believe you shall have it.
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices are working very good and surgeon was very pleased that I am very pleased.
 


jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 11/14/2008 9:19 AM (GMT -6)   

HI All

Well i went to Mayo Clinic and was supposed to have AUS implanted and it did not happen.

After an examination it was found that the neck of my bladder, which should have a hole the size of a soda straw, was only a pin hole.  They were surprises that i could pee at all.  If they had installed the AUS Dr Elliott said i would have been back in two weeks saying it did not work.  They went up there and carved away the scar tissue obstruction. I was very dissappointed but i got over that in about one hour and am on track again.  I have to go up in about two months to check how things are going and if alll is OK i will come back in about two months.  So it will be six months before i will know if the AUS worked for me  Hope all of you are doing well

Blessings

Jerry


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 11/14/2008 11:16 PM (GMT -6)   
Hope you heal up and can have the AUS soon.
Good Luck,
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 11/15/2008 8:32 AM (GMT -6)   
Oh Jerry, I can understand the frustrations. We have a very similar problem here. The AUS that was activated on Oct 28 is leaking badly. We have to go back next week, and have it checked. Good luck to you. D
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008

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