Descride your honest feelings

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Regular Member

Date Joined Oct 2008
Total Posts : 56
   Posted 11/11/2008 6:29 PM (GMT -6)   
I just received my results of my first PSA after surgery, and its non-detectable!What a relief that is. I would like to hear back, about their feelings, from the quys when the received their first non-detectable score.
Describe your first reaction!!!
Diagnosed Feb 08
PSA 6.3
gleason 3+3
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
possible radiation depending on first  PSA  Nov 12
kept left side bundle of nerves but lost some of the right side bundle

Tim G
Veteran Member

Date Joined Jul 2006
Total Posts : 2358
   Posted 11/11/2008 10:03 PM (GMT -6)   
Words cannot describe the sense of relief and exhiliration I felt to get my first goose egg!  Score:  Tim 1, Cancer 0
PSA quadrupled in 1 yr (0.6 to 2.5)  
DRE neg  1 of 12 biopsies pos (< 5%) 
Open surgery June 06 at age 57
Organ confined to one small area Gleason 5   
PSA's undetectable  < 0.1  

Veteran Member

Date Joined Nov 2006
Total Posts : 883
   Posted 11/11/2008 11:01 PM (GMT -6)   
I may be one of the few, but other than the first few days after diagnosis I never really worried about "the cancer" part of this disease and treatment. I guess because I figured it was caught so early and I was going to have the prostate removed I had this idea it was gone for good. Also after getting th labs after surgery showing it was organ confined I have not thought much of it since. I could be that my mind was on my constant leaking.
I do not say this do minimize anyones concern for their own health. It is just how I looked at it.
Good Luck to you all,
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey

Veteran Member

Date Joined Oct 2006
Total Posts : 621
   Posted 11/12/2008 12:25 AM (GMT -6)   
We were exhilarated with the first ZERO . .. . thanked the doctor . . . walked into hallway and both had tears on our cheeks.
;o) Linda & Bob
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May and November 2008.  WHOOO HOOOO! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.

Veteran Member

Date Joined Apr 2008
Total Posts : 1382
   Posted 11/12/2008 6:04 AM (GMT -6)   
I will admit my first zero was a huge relief, oddly enough I am always anxious about the next test fearing that it will rise. I think my next zero (hopefully Dec 15th) will be more exciting than the first.

peace to you
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores

Veteran Member

Date Joined Jul 2008
Total Posts : 966
   Posted 11/12/2008 9:17 AM (GMT -6)   
I think I am with kw...I really don't think about it least as far as the PSA goes. I expected the first couple to be zero...unfortunately I think that it will rise later on, but I don't worry much about that. Right now just concentrating on the the ED and incontinence.
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1,2008
Gleason 7 (4+3) Staged pT2c NO MX
Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA Oct 08 <.05

Roger G
Regular Member

Date Joined Apr 2008
Total Posts : 150
   Posted 11/12/2008 9:28 AM (GMT -6)   
Absolutely Ecstatic!!

I just past the one year mark with an undetectable PSA, and I also finally close the books on hemmirod/bleeding problem. I finally got in and saw a doctor about my rectal bleeding and was scoped yesterday. Looks like I tore things (anal fissure) after the surgery, but it's healing on it's own. Time to close the book on this issue. Even the ED issue is starting to come around a little.

I think I'm the happiest I've been in a long time. What a good day!!!

Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
08/2007: Bone Scan found something on my skull. PCa surgery on hold
             Had piece of skull removed to test for PCa.
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
             Both nerve bundles spared
             Pathology Report: Tumour confined w/in prostate
             T2c, Gleason is 3+3=6
             Went home with JP drain
10/2007: Made return trip to hospital.  All urine was coming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003.  Started Viagra for ED, no response yet.
             Having some issue with Vertigo from skull operation.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :) ED: next to no response.
             Vertigo is subsiding.
04/2008: 3nd PSA <.003 :) ED: Changed the Viagra prescription.
07/2008: 4nd PSA <.003 :) ED: Still NADA.  Changing to Cialis.
             Dizzy spells are occurring more often
09/2008: Trying Levitra
11/2008: One year mark and PSA <0.03.  Turns out I had a small annal fissure and was causing all my problems.  Problem Solved :)

Post Edited (Roger G) : 11/12/2008 7:33:11 AM (GMT-7)

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