AUS : A little trouble here

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divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 11/12/2008 7:11 PM (GMT -6)   
Well, Pete had the AUS activated on October 28, and at first it seemed to be working albeit leaking a little....now, after almost three weeks it is leaking more and more, and he is using fully three pads plus getting up four or five times a night. He is keeping a record of urine ccs each time, and it is getting more and more. He has an appointment on Dec 11....but will call the doctor tomorrow....It is a great disappointment after being incontinent for two years...He may have to have it redone with another cuff....Has anyone had this problem? Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 11/12/2008 9:15 PM (GMT -6)   
I have heard of guys that had early failiers. I'm so sorry it appears not to be working for him. I know exactly where you are comming from. I can only imagine how I would have felt if mine did not take so well. I do not know how often your Doctor does these. But it may be worht having someone else take a look! Feel free to holler at me if you want.
Good Luck to you from a AUS Brother!
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


fogball
Regular Member


Date Joined Mar 2006
Total Posts : 31
   Posted 11/13/2008 12:50 AM (GMT -6)   

Sorry to read about Pete's disappointing AUS situation. I totally empathize with him.

Sometimes you got to wonder how to go about catching a break with this business!

I had the AUS implanted two years ago this past month. The results were a dramatic

improvement over the total incon situation I was left with following the DaVinci gig.

I was left with excessive leakage but considering were I came from I was willing to

accept this as  "as good as it gets". The silver tongued urology team indicated it could

make an acceptable improvement in my "quality of life" (and enhance their egos).

To make a short story longer; I agreed and what I think they did was remove a 5cm

cuff and install a 4cm cuff in its place. I will find out Oct 20 when I have a follow up

appointment with the Doc. I hate to say this, but I think they may have installed a

cuff that is now too snug! It seems like deja vu(?) like when I owned an enlarged

prostate with BPH issues - urinary frequency, urgency and low quantity voiding. It 

could also be a couple of other things that I'm not going to be too happy about as well.

To get to your question (finally) - It is an out patient procedure but you still have to

go through the same hoops & wickets that you did for the original surgery (Pre op

testing, paperwork, etc.) about a week prior. Fasting the night prior to the event

and report for duty, take a nap - wake up, answer some dumb questions (like who

 are you, where are you & when were you born). You have get a good urine

sample, pass gas, sign some papers and they let you go. Wife gets the car and meets 

you out front - you have fight with wife as to who is going to drive (she wins) - make

her pull into the first In & Out hamburger stand you come across. Order a Double-Double

cheeseburgher - pick up you order- get out of Dodge --- Life is Good Again !!!  

I really can't think of any thing out of the ordinary-- Oh by the way, they activate

the system in some obscure room they wheel you into after the Recovery Room. That

is where you have to pass gas  etc. to get your ticket to escape. You go home with no

catheter and a full working system. If you have questions - shoot I will try to answer

or ask my Doctor (but what the heck does he know)!      I Kid because I Care

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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