0 again and thoughts for everyone

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Regular Member

Date Joined Mar 2008
Total Posts : 203
   Posted 11/13/2008 7:53 AM (GMT -6)   
Kent had his third PSA yesterday and it came back undetectable. All is good.
Incontinence was never really an issue and ED is still an ongoing condition. We, of course, miss the pre surgery life but continue to have hope and have grown even closer (if that is possible) than we were before.
I read everyones posts almost everyday and wish all the best for all. I don't post alot here anymore because I don't know if I can really contribute to what is needed. I just want you all to know that we both think of all of you often and how much this forum has done for us. If not for the wonderful people here, I'm not sure we could have made it through. All of you, no matter what your situation, have helped us in one way or the other.
Thank you for always being there.
Cindy and Kent
Age 51 Kent Cindy 49
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 another round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th. Only took 1 1/2 hours. In recovery 1 hour.  Both nerves were spared.
Home 4-11. Cath out 4-22. Incision looks completly healed on the outside by 4-25.  Incontinence "a thing of the past" as of 5-28
lst PSA 0.04 June 3. YAY!!!
July 08 (3mths post op) Cialis 10 mg every other day. Right now, things are not looking so good in that department. 
Aug 08 PSA 0.04 Yay Again!!

Veteran Member

Date Joined Feb 2008
Total Posts : 655
   Posted 11/13/2008 8:18 AM (GMT -6)   
Hi Cindy and Kent.  As I approach one year post diagnosis I, too, am more of a lurker and less of a commenter.  I am glad you all are doing well - it was a privilege to have an opportunity to talk with both of you both on the phone as well as this website this past year.  Keep up the good reports.  Best wishes.  David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4462
   Posted 11/13/2008 8:25 AM (GMT -6)   
Congrats Kent and Cindy on the zero. Welcome to the zero club. Continued recovery and zeros are wished for you tw0.
James C.
Co-Moderator- Prostate Cancer Forum
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.

Veteran Member

Date Joined Jul 2008
Total Posts : 637
   Posted 11/13/2008 8:28 AM (GMT -6)   
Very happy for you both!...Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008

Regular Member

Date Joined Jan 2008
Total Posts : 276
   Posted 11/13/2008 8:33 AM (GMT -6)   
Congrats on the 0's, I hope they continue to happen for you. The ED will diminish with time hopefully.
46 you when diagnosed, now 48
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Occasional Success with Oral Meds
Success with BiMix

Veteran Member

Date Joined Oct 2006
Total Posts : 621
   Posted 11/13/2008 8:56 AM (GMT -6)   
ZERO is such a welcome number . . way to go! Here's to a lifetime of the same!
;o) Linda & Bob
Bob (62) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May and November 2008.  WHOOO HOOOO! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.

Regular Member

Date Joined Feb 2008
Total Posts : 308
   Posted 11/13/2008 8:57 AM (GMT -6)   
Cindy and Kent,
Congrats on the zeros.  It seems there are quite a few of us post surgical folks that still hang out and listen on this site.  I expect less involvement is natural and most likely will wane as time goes by. 
I am so glad to hear of Kents continuing progress.
All the best,
Diagnosed @ 53 years old now54
DRE normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
PSA @ surgery 6 
Bone and Ct scans negative
clinicaly Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,Hospital stay 30 hours -
Catheter out in 7 days 
normaly expected leakage
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate
Seminal vessels clear, fat tissue clear
single positve margin measureing less than 1/2mm 
Six week PSA < 0.1 , 4 month PSA <.05 Gen II test. 6 month PSA  <0.01
Urologist recomends to hold off on Radiation and watch PSA closely. Oncologist and Radiation Oncologist seem to lean to doing pre-emptive radiation.Uroligist says 50/50 chance of PSA re-occurence.  
I have decided to hold off and see in 3 months lets see in 9 months.
Next PSA January 2009.
11-08-08 (7months) starting to go without day pads, 100 mg Viagra seeing good results

Veteran Member

Date Joined Apr 2007
Total Posts : 823
   Posted 11/13/2008 9:33 PM (GMT -6)   
Hi Cindy and Kent. Great news with the zero. Hope you have many more.

age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
first year PSA less than zero

Tim G
Veteran Member

Date Joined Jul 2006
Total Posts : 2338
   Posted 11/14/2008 12:26 AM (GMT -6)   
Let me add my name to the list of those who are very happy to read about your undetectable PSA...tim
PSA quadrupled in 1 yr (0.6 to 2.5)  
DRE neg  1 of 12 biopsies pos (< 5%) 
Open surgery June 06 at age 57
Organ confined to one small area Gleason 5   
PSA's undetectable  < 0.1  

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