Just diagnosed and frightened

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Ivory63
New Member


Date Joined Nov 2008
Total Posts : 13
   Posted 11/15/2008 5:55 PM (GMT -6)   

I was just diagnosed with PC on 11-11-08 which proved to be the most frightening day of my life.  I am 64 years old with my father having had prostate cancer.  My PSA was 3.3 and was just done last month.  There were 14 cores taken on my biopsy resulting in 7 samples with a Gleason score of 7, two with a 6, and 5 benign.  There was also one mid core sample with a focal perineaural invasion noted.

 

I am visiting a surgeon on Monday 11/15/08 that does what I believe is called a Divinci laparoscopic procedure.  My doctor says that my low PSA, and the small size of the tumors is a positive, and he thinks it is contained within the prostate wall with the possible exception of the one core mentioned earlier.

 

What are your experiences out their as I am very new to this disease.


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 11/15/2008 7:11 PM (GMT -6)   
I tell everyone new here to take your time and learn the treatment options available, their side effects and the impact of all this on your lifestyle and family. There is no need to rush and remember there are no do overs. Knowledge is empowerment. Urologists will near always recommend surgery, that's what they do. While radiologists will near always recommend radiation. Please take that into account. Do get other opinions from other doctors. There's much to take into account. For example I first was leaning towards robotic surgery, then brachytherapy radiation. Finally I rejected both and went with a new clinical research study I'm very happy with and it had minimal effect on me and my life. But first and foremost DON"T RUSH TO CHOOSE A TREATMENT!!!!

When everything you soon will learn becomes overwhelming I suggest you take a week off away from all of it. Later when you decide take a few days off to reflect before making the final decision. Then once you do don't look back.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32
 
11/10/08
Psa.62
 
April, 2009
Final Biopsy scheduled to
complete clinical research study 
 
 
 


Ivory63
New Member


Date Joined Nov 2008
Total Posts : 13
   Posted 11/15/2008 7:32 PM (GMT -6)   
Thanks for the advice realziggy. As you can imagine I've been walking around in a daze for the past 5 days

Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 11/15/2008 7:46 PM (GMT -6)   
Ivory63 said...
Thanks for the advice realziggy. As you can imagine I've been walking around in a daze for the past 5 days


We've all been there. In fact I was where you are now 13 months ago. Drinking helps for a few days. Do what you must and soon you'll need to learn what you can of the options you have. Take your time, there's no rush, really.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32
 
11/10/08
Psa.62
 
April, 2009
Final Biopsy scheduled to
complete clinical research study 
 
 
 


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 11/15/2008 8:45 PM (GMT -6)   
Three months ago I was standing where you are today. There's a lot of information out there and you can find yourself in information overload. Learn as much as you can. Listen to your doctor. Ask, "why do you recommend that" as many times as you need. If you opt for surgery, find a surgon that has the most current technology available and experiance to use it. The more procedures the surgon has successfully completed the better. I had a very successful outcome with The da Vinci robot so I have a bias toward that procedure.
Age 50
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
Da Vinci Prostatectomy 8/1/08
No issues with incontinence or ED since day 1 after catheter removal


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 11/15/2008 8:46 PM (GMT -6)   
Hello Ivory, You have low scores which is very good. Take your time and learn..You will get good advice here. We have all been there. Stay tuned and listen to what everyone says... For us, my husband had radiation and seeds,,,.If you have radiation and the cancer returns in a few years, salvage surgery is very difficult with many side effects..That is what we are dealing with now....so be aware of ALL of your options at the outset.....Good luck to you...Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008


cvc
Regular Member


Date Joined Jun 2008
Total Posts : 440
   Posted 11/15/2008 9:09 PM (GMT -6)   

What makes a Dr do a biopsy when psa levels are somewhat normal for a 64 yr old man ?? Is it due to rapid rise or DRE ?

 

Ivory hope all works out well with you as it will im sure. It seems as though most worry like crazy and it all works out in the end.

 

Good luck we will pray for you again with the low everything it will probably all go fine smilewinkgrin

 


califguy
Regular Member


Date Joined Sep 2008
Total Posts : 72
   Posted 11/15/2008 9:31 PM (GMT -6)   

Welcome to our special Club! This is a special place because none of us want to be members here!!!! But we are here because we care! I can say that Feb 2, 2008 was the day my life changed. And was I in a daze. WOW. I know just how you feel.

Yes, get opinions from several docs. Read Read Read. Get all the info. There may be several types of treatment for your particular case. If you are knowledgeable when you make a decision, it will be the very best and you will never regret the decision.

Do make sure you get success rates from the physicians about nerve sparring, rate of success, etc. The doc should be able to provide you those numbers without feeling threatened.

My local urologist gave me the radiation or removal choices. He made me decide which way. Then due to previous surgery scarring, he declined to do it. The doc at UCSF was exactly the same. He said I could have either removal or radiation.

I chose the daVinci Robot method since he was an expert in that area. Even tho I had a minor bump in the road and wound up hospitalized again over last weekend, I am still 100 percent convinced I made the correct choice for me.

As a side note: I had very little trouble with incontinence and no ED that a Viagra wouldn't over power.

Many of us have "crossed the bridge" and are on the other side. So ask away and don't be shy. And try not to get to discouraged. That does not help. If you need someone to talk to, email me (Click on envelope to the left of posting) and I will gladly talk to you.
 
Keep in contact! We are here to help!
 
Bill

Don't get discouraged!!
CalifGuy
 
Diagnosed Feb 2008  54 years old
3+4=7 gleason
7.5 PSA
4 out of 20 biopsies were cancerous
daVinci Robotic surgery July 24, 2008
Univ of Calif San Francisco Med Center  Dr Peter Carroll
In hospital 2 nights altho I had option of leaving the next day but stayed due to distance home.
Contained in prostate, not spread
Six weeks post surgery PSA less than .01


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2335
   Posted 11/16/2008 12:44 AM (GMT -6)   
Hearing the news that you have prostate cancer is emotionally difficult.  I will never forget the day I got the unexpected news that I had prostate cancer.  I felt devastated.  But as time goes by, your emotions will settle some and you can do the work of researching the best treatment for you.
 

All three of the well-established treatments--radioactive seed implants, surgery  and external-beam radiation--have excellent cure rates and long-term survival.  The newer treatments look very promising but don't yet have an established track record.  It's your choice, so do the research (this web site is an excellent place for information and support) and make your decision.

 

After extensive research, my wife and I decided on surgery for reasons that were important to us:  (1) pathological staging where the extent of the tumor and margins can be accurately determined  (2) The PSA goes immediately to zero  (3) The availability of options like salvage radiation if the cancer recurs  (4) Incontinence and impotence tend to get better with time  (5) Less likely to get diarrhea and painful urination.

 

Best to you as you face this difficult diagnosis.  We're here to support you....Tim

 

 


PSA quadrupled in 1 yr (0.6 to 2.5)  
DRE neg  1 of 12 biopsies pos (< 5%) 
Open surgery June 06 at age 57
Organ confined to one small area Gleason 5   
PSA's undetectable  < 0.1  


cowboy bob
Regular Member


Date Joined Sep 2007
Total Posts : 116
   Posted 11/16/2008 6:30 AM (GMT -6)   
Ivory- Try not to be worried. Although I was not found to have anything going on outside the prostate when I got my diagnosis a year and a half ago, my situation was similar to yours. I had a PSA of 4.6 and a Gleason of 7. I had my prostate removed, and while I am still battling a bit of incontinence, everything else is good. I am cancer free now and feeling great. As for that one core, I'll bet they can knock it out. When my urologist gave me the news of the cancer, I remember sitting there and being pretty frightened. But then, about 15 minutes later, after hearing about my options, I asked the doctor, "So, if you remove my prostate, that should theoretically get rid of the cancer, right?" And he said yes. My worry level then went way down, and I thought to myself, well, let's just "git-er done!" Now, a year and a half later, my problem of back then is an afterthought. I am not worried one bit. I have read that guys with prostate cancer, when caught early, have a 99% survival rate after 5 years. Cool! You will be fine.

don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 11/16/2008 10:26 AM (GMT -6)   
Hi Ivory,

A bit of shock to the system to here those words. I think we all react with the same dread upon hearing the diagnosis. The best thing to calm the mind is to do the research on PCa and to talk with others who have been there. This is a good place for the later. There are many sites on the web that provide information about treatments and results. The good news is you appear to have caught it early and there is curative treatment available. Take your time, investigate options, talk with more than one provider (urologist and oncologist), talk with current and former patients, then make a decision on the basis of your case.

Good luck with your decision and best wishes for a successful treatment.
Don
Diagnosed 04/10/08
Age 58
PSA 21.5 (first and only test resulted from follow up visit to emergency room for kidney stone. first time for kidney stone too)
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear
Chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
PSA test on July 14, 08 after 8 weeks hormone .82
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
Second Lupron shot 09/11/08
Next PSA test by oncologist 03/09
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 11/16/2008 9:17 PM (GMT -6)   
Sorry Ivory!!! I should have read this one first.

KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


mactrain
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 11/17/2008 12:36 AM (GMT -6)   

Ivory-

That initial diagnosis of PC is indeed frightening. I was diagnosed on 12-9-2004 after 3 biopsies with a total of 50 samples.taken.  The urologist who diagnosed me was so eager to perform surgery that he told me that surgery was the only thing that would work for me.  His eagerness scared me more than anything!!  I got a second opinion at UAB in Birmingham, AL on December 23.  The Dr there told me that he would be comfortable with surgery, radiation, seed implant, or watchful waiting.  I was 59 at the time and my initial PSA was 6.3.   Gleason was 3+3 and one of the samples came back 5% involved.  A Radiation oncologist came in and spent some time talking to my wife and I about what was involved in brachytherapy, or radioactive seed implant. After we decided on brachytherapy, we went hime for the Christmas Holidays.

I returned to Birmingham on January 14, 2005 for a volume study.  What fun!!  My prostrate was measured to be approximately 60 cc, too large for the procedure.  I was promptly given an injection of Lupron depot and a prescription for 90 days worth of Casodex,  in order to shrink my prostate to less rhan 50 cc for the procedure.  The nurse administering the injection informed me that I would experience "hot flashes".  She forgot to mention that I would also enjoy being nauseated, depressed and not sleeping at night.  When I returned for snother volume study in April, the plan had worked!  My prostste was now an acceptable 42 cc and the implant procedure was scheduled for early June.

The implant procedure took about 3 hours and I didn't experience any problems of any signifigance with the procedure.  Went back to work the following Monday.  I am self-employed as a consulting forester, so I took it easy for a few days.  I went back for a check up a couple of weeks ago and my PSA was 0.2.  This is my first time to post, so I will close now.  If anyone has any questions I will answer them to the best of my ability.
 
Paul

Ivory63
New Member


Date Joined Nov 2008
Total Posts : 13
   Posted 11/17/2008 12:52 AM (GMT -6)   
Thanks Paul we all appreciate your feelings and comments.

Ivory

RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 11/17/2008 8:39 AM (GMT -6)   
Ivory,
As others have stated, we have all been down this road. Let me encourage you that it is not the end - you are in a good situation still as you caught it, and it is very likely you can be cured!

This is a blessed time to live for two reasons: The great options for cure and control, and the paths of communication. I would suggest you take advantage of the links to the many websites from this site and read, read, read. Secondly, I would read all you can from those who have gone through similar experiences. You have years of conversations to go back on here - there is a ton of information and who knows better than the very people who are experiencing the same things.

You will find a lot of peace knowing that thousands of others have faced the same things and they are doing well, and as you learn from them you will be equipped to make the best decision about your treatment. Blessings.
RB
Age 61 (now 62)
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA <.04
2nd Post PSA <.1 10/30/2008

Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 11/17/2008 3:27 PM (GMT -6)   
Ivory, I can remember my diagnosis like it was yesterday, felt a shock like never before. Time and education will help you deal with it. We are all here to answer questions for you, or just provide an outlet for what you are feeling. You will be OK, just educate yourself, make an informed treatment decision, and never look back. Better days are ahead.
Randy
46 you when diagnosed, now 48
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Occasional Success with Oral Meds
Success with BiMix


anglophile
Regular Member


Date Joined Apr 2008
Total Posts : 82
   Posted 11/17/2008 8:08 PM (GMT -6)   
I was standing where you are 11 months ago and I was also scared -- more shellshocked than anything else. After careful consideration and discussion with my wife, my doctor and a PC survivor I knew at work, I opted to have it removed and hopefully, be done with it. I had it removed 7 months ago, but not before taking a trip to Europe to unwind before the surgery. (I thought I would die on the operating table.)

Today, I am happy to say, was my first pad-free day, 7 months after surgery. I plan to still wear a light pad at work -- just in case -- because work can be very stressful. I did the pad-free thing while at home, by myself.

I can only tell you that everyone is different and people opt for different treatments and have different recoveries. The worst time for me was the first couple of months after the operation and then I started to see gradual improvement in bladder control. I still have ED but I prefer not to try Viagra or similar. My doctor tells me it could be up to a year before I know if my ED will go away. That's the downside, but considering the alternative, I think I'm very lucky.
Age 59 - diagnosed in Jan. 08 after biopsy
da Vinci Robotic Prostatectomy 4/11/08 - both nerves spared
Catheter removed 4/25/08
Prostate Pathology:
Gleason Grade 6 (3+3)
5 wks post-op Continence: 1 pad night, 2 during day
7 wks post-op Continence: 2 pads every 24 hours
First post-op PSA at 7 wks: >0.1
14 wks post-op Continence: 1 pad days, no pad nights
Post-Op PSA at 5 months: >0.1


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 11/17/2008 9:21 PM (GMT -6)   
Ivory, we are all in the same boat. I got the word the day after my 57th birthday. This is the best ,and only, siteI will go to for advice and encouragement. There are a lot of options out there so I suggest you research all there are. This is a great site for it. Don't jump to the first conclusion. Take your time and make a decision you are willing to live with. My wife and I are opting for DaVinci surgery alnd are meetin with the doc on Wednesday to see if I am a candidate. Will advise. Until then ...Hang tough, read and enjoy the Calif. weather as I am in Mo. and am not looking forward to a nasty winter. If your Urologist is worth his salt he won't mind you getting a second opinion, or talking to an oncolgist. Be positive and attack this situation. It doesn't hurt to go to the driving range and hit a bucket of balls either. Great therapy. Hang in there.
Ralph

Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 11/18/2008 11:40 AM (GMT -6)   
You've come to a good place to talk about PC and the associated issues, including treatment.  If you have a good primary care physician and he/she is involved in the process of helping selecting/referring a Urologist/Specialist and in reviewing with you and the specialist the analysis of the testing results and possible options - I think you'll make the decision process easier.  Some people have time to wait, others don't.  Each of us is different.  I'm confident I made the right choice for me and really don't look back - it was a short term incident that I haven't let interfere much with my life.  I'm fortunate though, that my PC was caught early and apparently removed completely.  Best wishes as you consider your options.


Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0

 


Ivory63
New Member


Date Joined Nov 2008
Total Posts : 13
   Posted 11/18/2008 3:02 PM (GMT -6)   
Thank you everyone for your encouragement in my time of need. I visited a surgeon yesterday who said he was very optimistic of a good outcome due to the early detection. I am still waiting for my bone scan results which I had done on Friday11/14. Both my urologist and the surgeon feel confident that it will be fine, but I am still nervous awaiting the results. Thanks again everyone for your kind advice and support.

Ivory

Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 11/18/2008 8:26 PM (GMT -6)   
Mavica said...
You've come to a good place to talk about PC and the associated issues, including treatment. If you have a good primary care physician and he/she is involved in the process of helping selecting/referring a Urologist/Specialist and in reviewing with you and the specialist the analysis of the testing results and possible options - I think you'll make the decision process easier. Some people have time to wait, others don't. Each of us is different. I'm confident I made the right choice for me and really don't look back - it was a short term incident that I haven't let interfere much with my life. I'm fortunate though, that my PC was caught early and apparently removed completely. Best wishes as you consider your options.


Mavica what is the deal with you and your primary care doctor? Your posts always start like that. WE all listen to our primary physician initially, and most I assume may get the first urologist referral that way. Mine is fine in fact one of the urologists I saw said his was a good initial find of a DRE on me. That said he's/she's a general practioner or an internal medicine doctor who doesn't keep up with Pca like a urologist nor does he/she need to. I respect him but it makes more sense to review tests with a urologist. I found my surgeon who is the director of research at the University of Colorado Urologic Oncology, through a local TV news report. My primary doctor had no idea of the advanced treatments that were offered there and nothing of the one I chose. Most of us diagnosed with PCa have time or should make time to learn and choose options. PCa is not a short term incident that should be quickly resolved so one can get on with his life. No it's frikken cancer after all and should be thoroughly learned about and what treatment you opt for should not be taken lightly or rushed to judgment. I think it's great you put so much trust in your primary doctor. Just don't advise everyone else to have such child like faith in theirs that you have in yours. You may take an initial recommendation to a urologist from him and go see that doctor, but don't let it end there. MD as another always said here does not stand for Medical Deity.
Diagnosed 10/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32
 
11/10/08
Psa.62
 
April, 2009
Final Biopsy scheduled to
complete clinical research study 
 
 
 

Post Edited (realziggy) : 11/18/2008 6:51:08 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 11/18/2008 11:17 PM (GMT -6)   
Ivory, with those specs you list, sounds like your doctor is talking a pretty normal approach and sounds reasonable. I just joined this PC club a few months ago too, it is scary Just got home from my surgery, open rp, spent 4 days in hospital, awaiting pathlogy reports post surgery It was tough, but got a great doctor, wife, and family support, and feel it was the right decision for me, that is what is should come down to, what is right for you and your family. We are all here for you, every step of the way. Good luck and good decision ahead I trust.

David in SC
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 7-2008 12.3
PSA 9-2008 14.9
 
Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
Periunual Invasion noted
Additonal High Grade PIN noted
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Nerve bundles not able to be spared, awaiting pathology report, Cath scheduled to be removed on 12-15-2008,


SebringR
Regular Member


Date Joined Oct 2008
Total Posts : 29
   Posted 11/19/2008 10:14 PM (GMT -6)   

Ivory.  The good news is you have time.  And you have this wonderful place to exchange ideas.  But we are only a source of ideas, you have to find the right Doctor.  My situation was not much different than yours.  I had by biopsy 12/31/07 and then held off on the surgery until 4/14/08.  Prostate cancer does not move that fast, use the time to make sure you have the right medical team around you.

 

Just as you wait, start doing your kegel exercises.


Age 51
Father died of prostate cancer at 73
Yearly PSA testing.
Biopsy after PSA went up .75 in one year
6 of 12 in needle biopsy where cancerous
DaVinci surgery 4/15/2008
Last PSA .008
 


Gleason10
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 11/20/2008 9:55 PM (GMT -6)   
Ivory,

Become your own advocate. Learn as much about your options as you can. Fortunately, you are found early and it is very treatable. I bought a lot of books from Amazon.com (used- as low as 1 cent!!) that discussed prostate cancer.

Good luck, hopefully the journey will not be as bad as it sounds at first.
62 Y.0. PSA 29; Gleason 10 (all 12 cores) -diagnosed 2/07
Lupron; DaVinci;Radiation (Seminal Vesicle invasion). Last Lupron 2/08!
PSA less than .01 for last 12 months
InVance sling for incontinence 11/18/08 (looks good so far)
Facilitator: "Man to Man"

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