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DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 11/21/2008 8:45 PM (GMT -6)   
I have not visited here much the past few months, but have referred several new PC patients to the site.
 
Thought I would check in and update everyone on my status.
 
Roughly 99% continent now.  Virtually no problem other than getting it all out when I urinate.  Shake, shake, shake....and leak a slight amount....lol.  Wear a very thin pad for that reason, but it is practically dry at the end of the day.
 
ED still with me.  Health willing, I plan to have a penile implant done in May or June 2009.  May 13 will be 18 months since surgery.  If things have not changed by then, both my urologist and I believe the time is right for the implant.  Have spoken with 3 men who have had it done, including one who posts on this site, and all speak glowingly of the results.  Have watched a couple of internet videos of the procedure.  Seems fairly straightforward, as surgeries go....
 
PSA undetectable until this latest one, when it rose to 0.2 (from 0.1, since my urologist uses the assay that measures in tenths only). 
 
Was referred to radiology oncologist, who I visited today. She indicated:

1. Reading is so small that it could be due to machine error.
2. If not from machine error, she is pretty confident that the cancer is localized (in prostate bed). If local, that is a great thing.....radiation would usually zap it.
3. Will redo PSA test Dec. 19. If still up, even at the current small level, will schedule radiation starting in January. If back down to undetectable, then will continue to monitor.
4. If radiation is done, will use IMRT, with the Calypso 4D Localization System in place to monitor the target positions and help ensure accurate alignment.

All things considered, the report this afternoon was encouraging.
 
I wish all of you the very best.
 
Dan Man Bob


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 11/21/2008 9:09 PM (GMT -6)   
DanmanBob,

Good to hear from you. Very glad to here you are doing well. Good luck with your implant plans.

Keep in touch.

Frank
Diagnosed @ 53 years old now54
DRE normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
PSA @ surgery 6 
Bone and Ct scans negative
clinicaly Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008
University of Chicago,Hospital stay 30 hours -
Catheter out in 7 days 
normaly expected leakage
Post Pathology T2C, Gleason 7, 10 % of both portions of prostate
Seminal vessels clear, fat tissue clear
single positve margin measureing less than 1/2mm 
Six week PSA < 0.1 , 4 month PSA <.05 Gen II test. 6 month PSA  <0.01
Urologist recomends to hold off on Radiation and watch PSA closely. Oncologist and Radiation Oncologist seem to lean to doing pre-emptive radiation.Uroligist says 50/50 chance of PSA re-occurence.  
I have decided to hold off and see in 3 months lets see in 9 months.
Next PSA January 2009.
11-08-08 (7months) starting to go without day pads, 100 mg Viagra seeing good results
 
 
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/21/2008 9:58 PM (GMT -6)   
Hi DanmanBob!
While I am sorry to hear some of this news, I also have confidence that you know how to proceed. And that is with a positive attitude. I sincerely am disheartened when a brother leaves with good signs yet returns with more work to do. But I know you are the type of guy to get after it, and I know you will accept our support, too. You have worked so hard to get things back to normal. Stay true to that commitment! You are a wonderful friend of this site! Stay with us, and well you know my motto...

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 11/21/2008 10:23 PM (GMT -6)   
Thanks, Tony and Frank.
 
Yes, I think this is a wonderful site.  Been busy at work and sometimes I need a break from thinking about PCa all the time, so I take breaks from visiting the site.  Not that PCa ever leaves my mind for long, but I found for many months that I thought about it almost constantly.
 
I appreciate everyone's support.  Lots of great, caring and insightful people here.
 
When it comes to my health, I am a fighter.  A friend told me I am brave and heroic.  I thanked him, but made sure he knows there is nothing brave or heroic about me.  Cancer scares me.  Like all of us, I have little choice but to face the reality that I am a cancer patient, make informed decisions and do my best to conquer the beast.
 
All the best to everyone.
 
DanMan Bob
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 11/22/2008 9:22 AM (GMT -6)   
DM-Bob:

Good to hear from you again, but good grief - some of your news is not so good. I certainly hope there has been an error somewhere along the way. During my initial diagnosis, my urologist told me over the phone that - according to his reports - nothing was wrong with me. I asked him to double check his findings and he flipped the page on his clipboard, and TA-DA! The assistant had put the old PSA report on top, and the new (and darning) PSA report on the bottom. Mistakes can happen.

I can also empathize with the continence issue. After 6 months I am on a recovery curve only slightly ahead of yours.

I have enjoyed your posts and I expect to read a great many more of them in the years to come.

darn the big C! Live on!
kcragman
Age: 52
March 2006: PSA 2.5

Dec 2007: PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.

March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th was suspect.  

May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph nodes and associated glands all appear to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.
Nov 2008: PSA at 6 months was undetectable.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 11/22/2008 10:29 AM (GMT -6)   
Hi DanmanBob! Great to hear from you! Please keep us posted as you move forward! We will continue to cheer you on in your fight! It sounds like you have a great game plan! All the best!

Chayna
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

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