Posted 11/21/2008 9:45 PM (GMT -6)
I have not visited here much the past few months, but have referred several new PC patients to the site.
Thought I would check in and update everyone on my status.
Roughly 99% continent now. Virtually no problem other than getting it all out when I urinate. Shake, shake, shake....and leak a slight amount....lol. Wear a very thin pad for that reason, but it is practically dry at the end of the day.
ED still with me. Health willing, I plan to have a penile implant done in May or June 2009. May 13 will be 18 months since surgery. If things have not changed by then, both my urologist and I believe the time is right for the implant. Have spoken with 3 men who have had it done, including one who posts on this site, and all speak glowingly of the results. Have watched a couple of internet videos of the procedure. Seems fairly straightforward, as surgeries go....
PSA undetectable until this latest one, when it rose to 0.2 (from 0.1, since my urologist uses the assay that measures in tenths only).
Was referred to radiology oncologist, who I visited today. She indicated:
1. Reading is so small that it could be due to machine error.
2. If not from machine error, she is pretty confident that the cancer is localized (in prostate bed). If local, that is a great thing.....radiation would usually zap it.
3. Will redo PSA test Dec. 19. If still up, even at the current small level, will schedule radiation starting in January. If back down to undetectable, then will continue to monitor.
4. If radiation is done, will use IMRT, with the Calypso 4D Localization System in place to monitor the target positions and help ensure accurate alignment.
All things considered, the report this afternoon was encouraging.
I wish all of you the very best.
Dan Man Bob
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008